[Congressional Record Volume 147, Number 91 (Wednesday, June 27, 2001)]
[House]
[Page H3622]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
CONGRATULATIONS TO MARTHA DE NORFOLK OF FLORIDA
(Ms. ROS-LEHTINEN asked and was given permission to address the House
for 1 minute and to revise and extend her remarks.)
Ms. ROS-LEHTINEN. Mr. Speaker, I congratulate Martha De Norfolk, a
single mother from my congressional district who is working to found
the Arthrogryposis Foundation to help her disabled son Bryant Amastha,
and other local children who suffer from this rare disease.
One in every 3,000 babies is born with this disease, which limits
motions in their joints, usually accompanied by muscle weakness. In the
classic case, hands, wrists, elbows, shoulders, hips, feet and knees
are affected. In some cases, even the central nervous system. Most
people with arthrogryposis are of normal intelligence and are able to
lead productive lives as adults. However, if not treated through
surgery and physical therapy, this disease can become terminal, as the
body deforms so that internal organs cannot function properly.
Nine-year-old Bryant recently completed his 36th operation, enabling
him to use an electric wheelchair to move about in home and in school.
With the help of the foundation that Bryant's mother, Martha De
Norfolk, is working to establish, parents of these children will soon
have the financial assistance and the support groups on which to
depend; and local doctors will have access to education on this
debilitating illness and its treatment.
We congratulate Martha and Bryant and many others.
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