[Congressional Record Volume 146, Number 60 (Tuesday, May 16, 2000)]
[House]
[Pages H3146-H3147]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
FINDING A CURE FOR AUTISM
The SPEAKER pro tempore. Under a previous order of the House, the
gentlewoman from Florida (Ms. Ros-Lehtinen) is recognized for 5
minutes.
Ms. ROS-LEHTINEN. Mr. Speaker, every morning Miami-Dade County
Commissioner Jimmy Morales helps his 6-year-old daughter get ready for
school. Like many 6-year-old kids, Nora sings along to Britney Spears,
N-Sync or Cristina Aguilera. Once at school, she introduces her dad to
all of her classmates, gives daddy a kiss and a hug, and sends him off
to work.
While to most people this may sound like a normal day in the life of
a 6-year-old for Nora, many of these achievements have come only as a
result of hard work. Unlike most little girls, Nora would not like to
wear ribbons or clips in her hair. She could not look her parents in
the eye nor tell them about her day with her grandparents. In fact,
Nora's parents were not even sure she recognized her own name.
The reason: 4 years ago, Nora was diagnosed with autism; a
neurological disorder which impacts a half a million people in America.
The world through the eyes of an autistic child is a complex puzzle
with no solution. Autism affects the normal development of the brain
and it impacts in the area of social interaction and communication
skills. As a result, children living with autism have a difficult time
responding appropriately to their environment. This includes playing
with friends and forming relationships, even with their own parents.
Autism is four times more prevalent in boys than in girls, but it
does not discriminate. It knows no racial, ethnic, or social
boundaries. And family income, life-style and educational level do not
affect the chances of autism's occurrence. In fact, according to the
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Centers for Disease Control and Prevention, no one knows exactly why
autism strikes approximately 1 in every 500 individuals.
Autism not only has no known cause, but it has, sadly, no known cure.
Sadly enough, the national rates of children being diagnosed with
autism are increasing dramatically. For example, in the State of
California, the numbers have increased 237 percent in the last 10
years. In my home State, 50 percent of the children diagnosed with
autism reside within my community of south Florida.
The pictures that I would like to show to my colleagues and to the
viewers tonight that we see here are of Bonnie and Willis Flick, two
autistic children residing in my Congressional District who are
fortunate enough to receive treatment and intervention therapy to help
them cope with every day life.
A good day for Bonnie is similar to the one we just heard about Nora.
Bonnie is a high functioning autistic child who attends a very special
school, The Learning Experience in Miami. And because autism is a
spectrum disease that is manifested in a variety of forms, some
children are not as high functioning as Bonnie.
{time} 2015
For example, life for Bonnie's autistic brother, Willis, is a bit
more difficult. Willis is mostly nonverbal and is not able to tell his
mother that he is hungry or sleepy or not feeling well. He is unable to
verbally express his joy, anger, or frustration; and that makes life
all the more difficult for those around him.
Bonnie and Willis receive professional assistance to help them
optimize their potential and learning capabilities. But there are many
autistic children who are less fortunate.
As if families of autistic children did not suffer enough distress,
one of the biggest challenges facing them is finding health coverage
for treatment and therapy of this condition.
Fortunately, Nora's parents, as well as Bonnie and Willis' parents,
have been able to work through obstacles to ultimately find the care
that their families so desperately need.
Many families, however, are not as fortunate. We must continue to
work so that all health insurance and health maintenance organizations
include coverage for services to treat autism.
In my Congressional district, the University of Miami operates the
Center for Autism and Related Diseases, CARD, which helps hundreds of
children and their families whose lives are impacted with autism.
The CARD centers operate throughout the State of Florida and provide
free individual and family assistance services as well as training
programs for the parent and the professional. These centers focus on
finding ways to change the behaviors and perceptions of individuals
with autism in a way that will allow them to successfully learn, work,
and communicate.
Mr. Speaker, we need to continue to support centers like CARD whose
services benefit families struggling through the ordeal of autism.
Last week, the House passed the Children's Health Act, which contains
a provision to establish centers of research and expertise. It is
establishments like these that will help families of autistic children.
I hope that, on behalf of the Bonnies and the Willises and the Noras
in their districts, my colleagues will continue to pass legislation
like the Children's Health Act and provide funding to research the
causes for this disorder. With continued research, every day we are one
day closer to finding a cure for this debilitating disability.
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