[Congressional Record Volume 140, Number 144 (Thursday, October 6, 1994)]
[Senate]
[Page S]
From the Congressional Record Online through the Government Printing Office [www.gpo.gov]


[Congressional Record: October 6, 1994]
From the Congressional Record Online via GPO Access [wais.access.gpo.gov]

 
         TRIBUTE TO THE PRADER-WILLI SYNDROME ASSOCIATION (USA)

 Mr. ROCKEFELLER. Mr. President, I know our time in the 103d 
Congress is running short, however, I could not allow this Congress to 
end without commending the Prader-Willi Syndrome Association (USA).
  First discovered by Drs. Prader and Willi in Switzerland in 1956, 
Prader-Willi syndrome is a condition that affects an unknown number of 
children each year. The syndrome has many common symptoms, so it is 
often misdiagnosed. Those who suffer from Prader-Willi syndrome are 
retarded, have weak facial muscles, are sterile, have an insatiable 
appetite, have stunted growth, are slow to walk, and never become fully 
coordinated. Although some children survive to early adulthood, their 
life expectancy does not extend beyond adolescence.
  The Prader-Willi Syndrome Association (USA) is an all-volunteer 
organization of parents, grandparents, friends, and health care 
providers. The association endeavors to raise the public's awareness of 
Prader-Willi Syndrome and provides a network of support and information 
to those who love and care for children with this syndrome. For their 
self-sacrifice and dedication, the Prader-Willi Association of America 
(USA) deserves our thanks and appreciation. With their continuing 
efforts, I hope that one day a course of treatment will be developed 
for Prader-Willi syndrome and eventually a cure will be found. Again, 
thank you to the Prader-Willi Association (USA).

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