[Congressional Record Volume 140, Number 39 (Wednesday, April 13, 1994)]
[Senate]
[Page S]
From the Congressional Record Online through the Government Printing Office [www.gpo.gov]


[Congressional Record: April 13, 1994]
From the Congressional Record Online via GPO Access [wais.access.gpo.gov]

 
                PRIMARY IMMUNE DEFICIENCY AWARENESS WEEK

  Mr. WOFFORD. Mr. President, I am very pleased to support Senate Joint 
Resolution 151, a joint resolution designating this week, April 10-16, 
1994, as ``Primary Immune Deficiency Awareness Week.''
  Ian Murray of Erie, PA brought the medical problem of primary immune 
deficiency to my attention some time ago. He and his family have been 
directly affected, and he has expressed his concern to me that primary 
immune deficiency, which can express itself in a wide range of disease 
conditions and levels of severity, is not widely understood in this 
country. Indeed, many of our young people who may suffer from the 
deficiency have gone undiagnosed and untreated.
  This resolution helps to educate the public and bring the matter to 
greater national awareness. Vicki and Fred Modell, who established the 
Jeffrey Modell Foundation in memory of their son who died at age 15 of 
the disease, have worked hard to bring the disease to the attention of 
parents, families, primary care physicians, and medical specialists in 
the field. They initially brought primary immune deficiency to the 
attention of Members of the U.S. Senate, and Senator Lieberman 
sponsored the resolution. I am pleased to cosponsor it with him.
  I salute Ian Murray, his family, and the Jeffrey Modell Foundation 
for their advocacy of this very important issue.

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