Designating May 2025 as “ALS Awareness Month”.

Designating May 2025 as “ALS Awareness Month”.

Whereas amyotrophic lateral sclerosis (referred to in this preamble as “ALS”) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord;

Whereas the life expectancy for an individual with ALS is between 2 and 5 years after the date on which the individual receives an ALS diagnosis;

Whereas ALS occurs throughout the world with no racial, ethnic, gender, or socioeconomic boundaries;

Whereas ALS may affect any individual in any location;

Whereas the cause of ALS is unknown in up to 90 percent of cases;

Whereas approximately 10 percent of ALS cases have a known genetic driver;

Whereas, on average, the period between the date on which an individual first experiences symptoms of ALS and the date on which the individual is diagnosed with ALS is more than 1 year;

Whereas the onset of ALS often involves muscle weakness or stiffness, and the progression of ALS results in the further weakening, wasting, and paralysis of—

(1) the muscles of the limbs and trunk; and

(2) the muscles that control vital functions, such as speech, swallowing, and breathing;

Whereas ALS can strike individuals of any age, but it predominantly strikes adults;

Whereas it is estimated that tens of thousands of individuals in the United States have ALS at any given time;

Whereas, based on studies of the population of the United States, more than 5,000 individuals in the United States are diagnosed with ALS each year, and 15 individuals in the United States are diagnosed with ALS each day;

Whereas, in the United States, every 90 minutes someone dies from ALS, and every 90 minutes someone is diagnosed with ALS;

Whereas the majority of individuals with ALS die of respiratory failure;

Whereas, in the United States, military veterans are more likely to be diagnosed with ALS than individuals with no history of military service;

Whereas, as of the date of introduction of this resolution, there is no cure for ALS;

Whereas the spouses, children, and family members of individuals living with ALS provide support to those individuals with love, day-to-day care, and more; and

Whereas an individual with ALS, and the caregivers of such an individual, may bear significant costs for medical care, equipment, and home care services for the individual as the disease progresses: Now, therefore, be it

Resolved, That the Senate—

(1) designates May 2025 as “ALS Awareness Month”;

(2) affirms the dedication of the Senate to—

(A) ensuring individuals with amyotrophic lateral sclerosis (referred to in this resolution as “ALS”) have access to effective treatments and high-quality services and supports as early as possible after diagnosis;

(B) identifying risk factors and causes of ALS to prevent new cases;

(C) empowering individuals with ALS to maintain their personal independence to the maximum extent possible; and

(D) reducing the physical and emotional burdens of living with ALS; and

(3) commends the dedication of the family members, friends, organizations, volunteers, researchers, and caregivers across the United States who are working to improve the quality and length of life of ALS patients and develop treatments and cures that reach patients as soon as possible.