[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 484 Introduced in House (IH)]

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119th CONGRESS
  1st Session
H. RES. 484

 Expressing support for the recognition of ``Hidradenitis Suppurativa 
                           Awareness Week''.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                              June 6, 2025

Mrs. Dingell submitted the following resolution; which was referred to 
                  the Committee on Energy and Commerce

_______________________________________________________________________

                               RESOLUTION


 
 Expressing support for the recognition of ``Hidradenitis Suppurativa 
                           Awareness Week''.

Whereas Hidradenitis Suppurativa (in this resolution referred to as ``HS'') is a 
        chronic, inflammatory skin disease that affects approximately 3,300,000 
        people in the United States;
Whereas HS causes painful, boil-like nodules and abscesses anywhere on the body, 
        and can progress to form tunnels under the skin and cause extensive 
        scarring;
Whereas individuals with HS frequently suffer from 5 primary domains of physical 
        and emotional suffering, pain, drainage, odor, itching, and profound 
        psychological distress;
Whereas HS is associated with one of the highest completed suicide rates among 
        dermatological diseases, second only to melanoma;
Whereas 75 percent of individuals with HS are misdiagnosed or not diagnosed 
        until after age 25, missing critical windows for early intervention and 
        care;
Whereas delayed diagnosis contributes to worsening disease progression, higher 
        healthcare costs, avoidable emergency room visits, and unnecessary 
        procedures;
Whereas individuals are often diagnosed with HS in the prime of their lives, 
        affecting their ability to work, maintain relationships, and participate 
        fully in society;
Whereas, as of June 1, 2025, there are only 3 biologic therapies approved by the 
        Food and Drug Administration for the treatment of HS;
Whereas additional research is urgently needed to develop new treatments, 
        understand the pathogenesis of the disease, identify biomarkers of HS, 
        and improve outcomes for HS patients;
Whereas Federal policy can play a critical role in improving access to biologic 
        therapies, wound care, and comprehensive care for HS patients; and
Whereas designating the first week of June as ``Hidradenitis Suppurativa 
        Awareness Week'' would increase public awareness, foster understanding, 
        and catalyze progress in diagnosing, treating, and ultimately curing HS: 
        Now, therefore, be it
    Resolved, That the House of Representatives--
            (1) supports the recognition of ``Hidradenitis Suppurativa 
        Awareness Week''; and
            (2) recognizes the importance of--
                    (A) increasing awareness and education about HS 
                among the public and health professionals;
                    (B) promoting timely and accurate diagnosis of HS 
                through improved screening and culturally competent 
                care;
                    (C) supporting biomedical research to better 
                understand HS pathogenesis, treatment efficacy, and 
                long-term outcomes;
                    (D) accelerating the development of effective 
                treatments and expanding access to existing therapies 
                for HS; and
                    (E) advancing policies that address disparities in 
                access to care for patients with HS and improve the 
                quality of life for individuals living with HS and the 
                caregivers of such individuals.
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