119 HRES 1509 IH: Recognizing the extraordinary resilience and courage of children and families fighting neuroblastoma and supports the incredible effort of clinicians and researchers working to address this disease and expressing support for September 3, 2026, to be designated as “Neuroblastoma Awareness Day”. U.S. House of Representatives 2026-09-03 text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain.

IV119th CONGRESS2d SessionH. RES. 1509IN THE HOUSE OF REPRESENTATIVESSeptember 3, 2026Ms. Chu (for herself and Mr. Kelly of Pennsylvania) submitted the following resolution; which was referred to the Committee on Oversight and Government ReformRESOLUTIONRecognizing the extraordinary resilience and courage of children and families fighting neuroblastoma and supports the incredible effort of clinicians and researchers working to address this disease and expressing support for September 3, 2026, to be designated as Neuroblastoma Awareness Day.

Whereas neuroblastoma is the most common cancer in infants and the most common extracranial solid tumor in childhood; Whereas there are approximately 600 to 800 new cases of neuroblastoma diagnosed each year in the United States; Whereas neuroblastoma accounts for about 8 to 10 percent of all childhood cancers and approximately 15 percent of childhood cancer deaths; Whereas approximately 90 percent of neuroblastoma cases are diagnosed before 5 years of age, with many cases occurring during infancy; Whereas symptoms are often nonspecific, which can delay diagnosis and treatment; Whereas neuroblastoma accounts for a disproportionate share of pediatric cancer deaths relative to its incidence; Whereas high-risk neuroblastoma remains one of the most difficult pediatric cancers to treat successfully; Whereas the estimated 5-year survival rate for children with high-risk neuroblastoma is approximately 63 percent; Whereas treatment for high-risk neuroblastoma typically requires intensive multimodal therapy, including chemotherapy, surgery, radiation therapy, stem cell transplant, and immunotherapy; Whereas survivors may experience significant lifelong health complications, including hearing loss, organ failure, and subsequent malignancies; Whereas children with neuroblastoma often require prolonged treatment and repeated hospitalizations; Whereas anti-GD2 immunotherapy has improved outcomes for children with high-risk neuroblastoma; Whereas emerging therapies, including CAR-T cell treatments targeting tumor antigens such as B7-H3, are under active investigation for relapsed disease; Whereas childhood cancers, including neuroblastoma, historically receive significantly less research funding compared to adulthood cancers; Whereas children with high-risk or relapsed neuroblastoma continue to face limited effective treatment options and a high risk of relapse, highlighting the need for continued research and therapeutic development; Whereas increased awareness can support earlier diagnosis, improve outcomes, and help drive investment in research and treatment advancements for pediatric cancers; Whereas September is recognized as Childhood Cancer Awareness Month in the United States; and Whereas the House of Representatives supports designating September 3, 2026, as Neuroblastoma Awareness Day: Now, therefore, be it

That the House of Representatives supports the designation of a Neuroblastoma Awareness Day to provide a dedicated opportunity to recognize the extraordinary resilience and courage of children and families fighting this disease and support the incredible effort of clinicians and researchers working to address this disease.