[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 1318 Introduced in House (IH)]

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119th CONGRESS
  2d Session
H. RES. 1318

  Expressing support for the designation of the month of May 2026 as 
    ``Progressive Supranuclear Palsy and Corticobasal Degeneration 
                           Awareness Month''.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                              May 21, 2026

     Mr. Subramanyam (for himself, Ms. Scanlon, Ms. Bonamici, Mr. 
   Walkinshaw, Mr. Quigley, Mr. Ryan, Mrs. Foushee, Ms. DelBene, Ms. 
Barragan, Mr. Bacon, Ms. Scholten, Mr. Lawler, Ms. Garcia of Texas, Ms. 
   McClellan, Mr. Stanton, Mrs. Dingell, Ms. Castor of Florida, Mr. 
 Vindman, Mr. Beyer, Mr. Cleaver, Mrs. Fletcher, Mr. Pappas, Mr. Scott 
    of Virginia, Ms. Norton, Ms. Leger Fernandez, and Ms. Salinas) 
submitted the following resolution; which was referred to the Committee 
                         on Energy and Commerce

_______________________________________________________________________

                               RESOLUTION


 
  Expressing support for the designation of the month of May 2026 as 
    ``Progressive Supranuclear Palsy and Corticobasal Degeneration 
                           Awareness Month''.

Whereas progressive supranuclear palsy, often referred to as ``PSP'', and 
        corticobasal degeneration, often referred to as ``CBD'', are rare, adult 
        onset, rapidly progressing neurodegenerative disorders that affect 
        multiple areas of the brain and cause complex symptoms and care needs;
Whereas although some symptoms may appear similar to that of other neurological 
        diagnoses like Parkinson's disease and frontotemporal dementia, 
        progressive supranuclear palsy and corticobasal degeneration are 
        distinct diseases with their own unique trajectories and care needs;
Whereas while estimates vary and the conditions are frequently misdiagnosed, 
        approximately 30,000 Americans are living with progressive supranuclear 
        palsy and 2,000 Americans are living with corticobasal degeneration;
Whereas delays to both accurate diagnosis of progressive supranuclear palsy and 
        corticobasal degeneration and access to neurology professionals 
        specialized in these diseases are common, causing confusion, anxiety, 
        and frustration;
Whereas progressive supranuclear palsy and corticobasal degeneration can cause 
        significant difficulty with movement, balance, speech, swallowing, 
        cognition, vision, mood, and a variety of other complex symptoms;
Whereas progressive supranuclear palsy and corticobasal degeneration are 
        aggressive in their progression, with most individuals becoming 
        dependent on care in 3 to 4 years and having an overall life expectancy 
        of 7 to 8 years from symptom onset;
Whereas there are currently no disease-modifying treatments for progressive 
        supranuclear palsy or corticobasal degeneration;
Whereas more research is needed to understand the roles of environmental factors 
        and genetics in why people develop progressive supranuclear palsy and 
        corticobasal degeneration;
Whereas there are countless family caregivers, friends, and loved ones whose 
        lives are greatly affected by progressive supranuclear palsy and 
        corticobasal degeneration;
Whereas additional research, support services, and education are needed to 
        maintain quality of life for those affected by the disease, lead to 
        better treatments and prevention of complications, and find cures for 
        progressive supranuclear palsy and corticobasal degeneration; and
Whereas the establishment of the month of May 2026 as ``Progressive Supranuclear 
        Palsy and Corticobasal Degeneration Awareness Month'' will benefit 
        individuals diagnosed, families, healthcare professionals, and 
        communities across the country and further bolster awareness of the 
        diseases: Now, therefore, be it
    Resolved, That the House of Representatives--
            (1) supports the designation of ``Progressive Supranuclear 
        Palsy and Corticobasal Degeneration Awareness Month'';
            (2) supports the goals and ideals of ``Progressive 
        Supranuclear Palsy and Corticobasal Degeneration Awareness 
        Month'';
            (3) supports research on diagnosis, prevention, treatments, 
        and cures for progressive supranuclear palsy and corticobasal 
        degeneration;
            (4) recognizes the strength and resilience of the 
        progressive supranuclear palsy and corticobasal degeneration 
        community; and
            (5) commends the individuals, families, volunteers, 
        healthcare professionals, researchers, and organizations across 
        the country who are working to improve the lives of people 
        living with progressive supranuclear palsy and corticobasal 
        degeneration.
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