[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H.R. 7877 Introduced in House (IH)]
<DOC>
119th CONGRESS
2d Session
H. R. 7877
To require the Secretary of Health and Human Services to establish a
demonstration program to test mandatory coverage of treatment for wound
care for epidermolysis bullosa under the Medicaid program.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
March 9, 2026
Mr. Landsman introduced the following bill; which was referred to the
Committee on Energy and Commerce
_______________________________________________________________________
A BILL
To require the Secretary of Health and Human Services to establish a
demonstration program to test mandatory coverage of treatment for wound
care for epidermolysis bullosa under the Medicaid program.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Shane DiGiovanna Act''.
SEC. 2. DEMONSTRATION PROGRAM TO TEST MANDATORY COVERAGE OF TREATMENT
FOR WOUND CARE FOR EPIDERMOLYSIS BULLOSA UNDER THE
MEDICAID PROGRAM.
(a) In General.--Beginning not later than 1 year after the date of
the enactment of this Act, the Secretary of Health and Human Services
(in this section referred to as the ``Secretary'') shall conduct a 2-
year demonstration program under which items and services specified in
subsection (b) furnished for the treatment of epidermolysis bullosa are
required to be included as medical assistance under a State plan (or
waiver of such plan) under title XIX of the Social Security Act (42
U.S.C. 1396 et seq.) for individuals described in section
1902(a)(10)(A)(i) of such Act (42 U.S.C. 1396a(a)(10)(A)(i)).
(b) Specified Items and Services.--For purposes of subsection (a),
the items and services specified in this subsection are over-the-
counter antihistamines, acetaminophen, nonsteroidal anti-inflammatory
drugs, antiseptics, zinc oxide, antibiotic ointments, and necessary
wound care supplies, including wound care dressings (inclusive of
primary and secondary dressings), gauze, and bandage retainers.
(c) Scope of Demonstration.--The Secretary shall conduct the
demonstration program described in subsection (a) on a nationwide
basis.
(d) Study.--Not later than 1 year after the end of the
demonstration program described in subsection (a), the Secretary shall
submit to Congress a report on such program. Such report shall include
the following:
(1) An evaluation of the effect of such program on
expenditures for treatment of individuals with epidermolysis
bullosa under the Medicaid program (taking into account any
such treatment avoided due to such program).
(2) An analysis of health outcomes for such individuals
compared to such outcomes before such program.
(3) Any recommendations relating to how to prevent
hospitalizations relating to epidermolysis bullosa.
<all>