[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[S. 3532 Introduced in Senate (IS)]

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118th CONGRESS
  1st Session
                                S. 3532

To amend the Public Health Service Act to provide for the establishment 
        of a Task Force on Youth Mental Health Data Integration.


_______________________________________________________________________


                   IN THE SENATE OF THE UNITED STATES

                           December 14, 2023

   Mr. Casey (for himself, Mr. Brown, and Mr. Booker) introduced the 
 following bill; which was read twice and referred to the Committee on 
                 Health, Education, Labor, and Pensions

_______________________________________________________________________

                                 A BILL


 
To amend the Public Health Service Act to provide for the establishment 
        of a Task Force on Youth Mental Health Data Integration.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Youth Mental Health Data Act of 
2023''.

SEC. 2. TASK FORCE ON YOUTH MENTAL HEALTH.

    Title III of the Public Health Service Act (42 U.S.C. 241 et seq.) 
is amended by inserting after section 317L-1 (42 U.S.C. 247b-13a) the 
following:

``SEC. 317L-2. TASK FORCE ON YOUTH MENTAL HEALTH DATA INTEGRATION.

    ``(a) Establishment.--Not later than 90 days after the date of 
enactment of the Youth Mental Health Data Act of 2023, the Secretary, 
in consultation with the Behavioral Health Coordinating Council, the 
Interagency Working Group on Youth Programs, and any other councils on 
children designated by the Secretary, shall establish a task force, to 
be known as the Task Force on Youth Mental Health Data Integration 
(referred to in this section as the `Task Force'), to assess and make 
recommendations to improve Federal data systems on youth mental health.
    ``(b) Membership.--
            ``(1) Composition.--The Task Force shall be composed of--
                    ``(A) the Assistant Secretary for Health of the 
                Department of Health and Human Services (or the 
                Assistant Secretary's designee) who shall serve as the 
                Chair of the Task Force;
                    ``(B) the Federal members under paragraph (2); and
                    ``(C) the non-Federal members under paragraph (3).
            ``(2) Federal members.--In addition to the Assistant 
        Secretary for Health, the Federal members of the Task Force 
        shall consist of the heads of the following Federal departments 
        and agencies (or their designees):
                    ``(A) The Administration for Children and Families.
                    ``(B) The Agency for Healthcare Research and 
                Quality.
                    ``(C) The Centers for Disease Control and 
                Prevention.
                    ``(D) The Centers for Medicare & Medicaid Services.
                    ``(E) The Health Resources and Services 
                Administration.
                    ``(F) The Food and Drug Administration.
                    ``(G) The Indian Health Service.
                    ``(H) The Office of the Assistant Secretary for 
                Planning and Evaluation of the Department of Health and 
                Human Services.
                    ``(I) The Office of Minority Health of the 
                Department of Health and Human Services.
                    ``(J) The Office of the Surgeon General.
                    ``(K) The National Institutes of Health.
                    ``(L) The Substance Abuse and Mental Health 
                Services Administration.
                    ``(M) The Administration for Strategic Preparedness 
                and Response.
                    ``(N) The Department of Education.
                    ``(O) The Department of Justice.
                    ``(P) The Department of Labor.
                    ``(Q) Such other Federal departments and agencies 
                as the Secretary determines appropriate, such as the 
                Department of Agriculture and the Department of Housing 
                and Urban Development.
            ``(3) Non-federal members.--The non-Federal members of the 
        Task Force shall--
                    ``(A) compose not less than half of the total 
                membership of the Task Force;
                    ``(B) be appointed by the Secretary; and
                    ``(C) include--
                            ``(i) representatives of medical societies 
                        with expertise in youth mental health;
                            ``(ii) representatives of nonprofit 
                        organizations with expertise in youth mental 
                        health;
                            ``(iii) individuals under age 21, including 
                        at least one such individual who has received a 
                        diagnosis of a mental health condition;
                            ``(iv) individuals ages 21 to 24, including 
                        at least one such individual who has received a 
                        diagnosis of a mental health condition;
                            ``(v) representatives of media and 
                        technology companies; and
                            ``(vi) other representatives, as 
                        appropriate.
            ``(4) Deadline for designating designees.--If the Assistant 
        Secretary for Health, or the head of a Federal department or 
        agency serving as a member of the Task Force under paragraph 
        (2), chooses to be represented on the Task Force by a designee, 
        the Assistant Secretary or head shall designate such designee 
        not later than 90 days after the date of the enactment of the 
        Youth Mental Health Data Act of 2023.
    ``(c) National Strategy.--The Task Force shall develop a national 
strategy to improve data systems to understand youth mental health 
needs, services, and evidence-based or evidence-informed interventions, 
including processes for--
            ``(1) data integration across governments and health 
        systems, to enable real-time, longitudinal surveillance of 
        youth mental health trends, including de-identified data that 
        can be disaggregated, with appropriate protections to ensure 
        the anonymity and personal privacy of youth with mental health 
        conditions or functional mental health needs, by--
                    ``(A) location, at the State and national levels;
                    ``(B) age;
                    ``(C) gender;
                    ``(D) race;
                    ``(E) ethnicity;
                    ``(F) mental health diagnosis;
                    ``(G) insurance status and payor type;
                    ``(H) health care provider type, including primary 
                care provider type and, if applicable, mental health 
                specialist type;
                    ``(I) youth involved in the juvenile justice 
                system;
                    ``(J) youth involved in the child welfare system; 
                and
                    ``(K) other relevant categories identified by the 
                Task Force;
            ``(2) tracking the use of electronic health records among 
        pediatric primary care and mental health service providers, and 
        barriers to such use;
            ``(3) developing and strengthening public-private research 
        partnerships between academic institutions, community-based 
        organizations, media and technology companies, health care 
        organizations, and others, as appropriate, to understand needs, 
        risk and protective factors, and outcomes for youth mental 
        health;
            ``(4) tracking the scale of use and outcomes associated 
        with innovative, scalable therapies and approaches, such as 
        self-guided, computerized, and group-based therapies and peer 
        support programs;
            ``(5) using dissemination and implementation science to 
        scale up evidence-based or evidence-informed prevention, 
        screening, and treatment of mental health conditions in systems 
        that serve youth, such as academic, health care, social 
        services, child welfare, and juvenile justice settings;
            ``(6) understanding social media and digital technology's 
        impact on youth mental health, evaluating guardrails for safe 
        use of media and digital technology by youth, and identifying 
        opportunities for the use of technology to engage youth and 
        families in positive mental health behaviors and suicide 
        prevention, including use of the 988 Suicide and Crisis 
        Lifeline;
            ``(7) facilitating information sharing between federally-
        funded research and programs addressing youth mental health in 
        order to maximize the impact of such programs and inform 
        related State and Federal programs; and
            ``(8) creating a public-facing website that integrates and 
        displays real-time information on youth mental health needs and 
        trends, the status of federally-funded work to address such 
        needs, and opportunities for community-based organizations to 
        support youth mental health.
    ``(d) Meetings.--The Task Force shall--
            ``(1) meet not less than 4 times each year; and
            ``(2) convene public meetings, as appropriate, to fulfill 
        its duties under this section.
    ``(e) Reports to the Public and Federal Leaders.--The Task Force 
shall make publicly available and submit to the heads of relevant 
Federal departments and agencies, the Committee on Health, Education, 
Labor, and Pensions of the Senate, the Committee on Energy and Commerce 
of the House of Representatives, and other relevant congressional 
committees, the following:
            ``(1) Not later than 1 years after the first meeting of the 
        Task Force, an initial national strategy under subsection (c).
            ``(2) Each year thereafter--
                    ``(A) an updated national strategy under subsection 
                (c), as appropriate; and
                    ``(B) a report summarizing the activities of the 
                Task Force.
    ``(f) Reports to Governors.--Upon finalizing the national strategy 
under subsection (c), or a subsequent update to such strategy pursuant 
to subsection (e)(2)(A), the Task Force shall submit to the governors 
of all States a report describing opportunities for local- and State-
level partnerships identified under subsection (c)(3) and information 
sharing described in subsection (c)(7).
    ``(g) Sunset.--The Task Force shall terminate on the date that is 5 
years after the date on which the Task Force is established under 
subsection (a).''.
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