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<dc:title>118 S1852 RS: Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023</dc:title>
<dc:publisher>U.S. Senate</dc:publisher>
<dc:date>2023-09-06</dc:date>
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<dc:language>EN</dc:language>
<dc:rights>Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain.</dc:rights>
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<distribution-code display="yes">II</distribution-code><calendar>Calendar No. 201</calendar><congress>118th CONGRESS</congress><session>1st Session</session><legis-num>S. 1852</legis-num><current-chamber>IN THE SENATE OF THE UNITED STATES</current-chamber><action><action-date date="20230607">June 7, 2023</action-date><action-desc><sponsor name-id="S365">Mr. Scott of South Carolina</sponsor> (for himself, <cosponsor name-id="S370">Mr. Booker</cosponsor>, and <cosponsor name-id="S415">Mr. Warnock</cosponsor>) introduced the following bill; which was read twice and referred to the <committee-name committee-id="SSHR00">Committee on Health, Education, Labor, and Pensions</committee-name></action-desc></action><action stage="Reported-in-Senate"><action-date date="20230906">September 6, 2023</action-date><action-desc>Reported by <sponsor name-id="S313">Mr. Sanders</sponsor>, without amendment</action-desc></action><legis-type>A BILL</legis-type><official-title>To amend the Public Health Service Act to reauthorize a sickle cell disease prevention and treatment demonstration program.</official-title></form><legis-body><section id="S1" section-type="section-one"><enum>1.</enum><header>Short title</header><text display-inline="no-display-inline">This Act may be cited as the <quote><short-title>Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023</short-title></quote>.</text></section><section commented="no" display-inline="no-display-inline" id="idfdcfb972933246509b4e8eae07fc3fc3"><enum>2.</enum><header>Sickle cell disease treatment prevention and treatment</header><subsection commented="no" display-inline="no-display-inline" id="id701b8e0d63b1480eaebfaf510098eecb"><enum>(a)</enum><header display-inline="yes-display-inline">In general</header><text display-inline="yes-display-inline">Section 1106(b) of the Public Health Service Act (<external-xref legal-doc="usc" parsable-cite="usc/42/300b-5">42 U.S.C. 300b–5(b)</external-xref>) is amended—</text><paragraph commented="no" display-inline="no-display-inline" id="idfd69330b8b3c47ff8d36cc2ebcff7217"><enum>(1)</enum><text>in paragraph (1)(A)(iii), by striking <quote>prevention and treatment of sickle cell disease</quote> and inserting <quote>treatment of sickle cell disease and the prevention and treatment of complications of sickle cell disease</quote>;</text></paragraph><paragraph commented="no" display-inline="no-display-inline" id="id533d36c7d22a4f099952e21912de2852"><enum>(2)</enum><text>in paragraph (2)(D), by striking <quote>prevention and treatment of sickle cell disease</quote> and inserting <quote>treatment of sickle cell disease and the prevention and treatment of complications of sickle cell disease</quote>;</text></paragraph><paragraph commented="no" display-inline="no-display-inline" id="id2c82647ccb624d5fa4925dc7583424dc"><enum>(3)</enum><text display-inline="yes-display-inline">in paragraph (3)—</text><subparagraph commented="no" display-inline="no-display-inline" id="id271d47c483934ebe9f5d6541fa0f41c4"><enum>(A)</enum><text display-inline="yes-display-inline">in subparagraph (A), by striking <quote>enter into a contract with</quote> and inserting <quote>make a grant to, or enter into a contract or cooperative agreement with,</quote>; and</text></subparagraph><subparagraph commented="no" display-inline="no-display-inline" id="idcc400c8a285e4fa281d35a2ffbb3de0a"><enum>(B)</enum><text>in subparagraph (B), in each of clauses (ii) and (iii), by striking <quote>prevention and treatment of sickle cell disease</quote> and inserting <quote>treatment of sickle cell disease and the prevention and treatment of complications of sickle cell disease</quote>; and</text></subparagraph></paragraph><paragraph commented="no" display-inline="no-display-inline" id="id20c9475d653545ba8439e7b88d30cd82"><enum>(4)</enum><text>in paragraph (6), by striking <quote>$4,455,000 for each of fiscal years 2019 through 2023</quote> and inserting <quote>$8,205,000 for each of fiscal years 2024 through 2028</quote>.</text></paragraph></subsection><subsection id="idddc07be001ec4a46bcd596c41b0e6f35"><enum>(b)</enum><header>Sense of Congress</header><text>It is the sense of Congress that further research should be undertaken to expand the understanding of the causes of, and to find cures for, heritable blood disorders, including sickle cell disease.</text></subsection></section></legis-body><endorsement><action-date date="20230906">September 6, 2023</action-date><action-desc>Reported without amendment</action-desc></endorsement></bill> 

