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<dc:title>118 HR 9237 IH: Compassionate Care Act</dc:title>
<dc:publisher>U.S. House of Representatives</dc:publisher>
<dc:date>2024-08-02</dc:date>
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<dc:language>EN</dc:language>
<dc:rights>Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain.</dc:rights>
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<distribution-code display="yes">I</distribution-code>
<congress display="yes">118th CONGRESS</congress><session display="yes">2d Session</session>
<legis-num display="yes">H. R. 9237</legis-num>
<current-chamber>IN THE HOUSE OF REPRESENTATIVES</current-chamber>
<action display="yes">
<action-date date="20240802">August 2, 2024</action-date>
<action-desc><sponsor name-id="B001300">Ms. Barragán</sponsor> introduced the following bill; which was referred to the <committee-name committee-id="HIF00">Committee on Energy and Commerce</committee-name>, and in addition to the Committee on <committee-name committee-id="HWM00">Ways and Means</committee-name>, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned</action-desc>
</action>
<legis-type>A BILL</legis-type>
<official-title display="yes">To improve end-of-life care.</official-title>
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<legis-body id="H5A7DB9BFEB834DED80E48C5E83D8B702" style="OLC"> 
<section section-type="section-one" id="H6E8A0A641FB54FE9BB0B1E942A99E19C"><enum>1.</enum><header>Short title</header> 
<subsection id="H8C3DDEE062F4405E80739E0554FAC970"><enum>(a)</enum><header>Short title</header><text display-inline="yes-display-inline">This Act may be cited as the <quote><short-title>Compassionate Care Act</short-title></quote>.</text></subsection> <subsection id="HCEE0008E640749599D227324DD4C0E66"><enum>(b)</enum><header>Table of contents</header><text>The table of contents of this Act is as follows:</text> 
<toc> 
<toc-entry level="section" idref="H6E8A0A641FB54FE9BB0B1E942A99E19C">Sec. 1. Short title.</toc-entry> 
<toc-entry level="section" idref="H0C42BFDDEF7F49568434F92C16DA34D6">Sec. 2. Definitions.</toc-entry> 
<toc-entry level="title" idref="H7FAFC10ECD1F453CB99BE1A8BB26486B">TITLE I—Advance care planning</toc-entry> 
<toc-entry level="subtitle" idref="H0DD1E3BD9F8F48F785C212F34FBAA1E3">Subtitle A—Consumer education</toc-entry> 
<toc-entry level="section" idref="H351552609F9242FDB0A3E88CFB06B25D">Sec. 101. Advance care planning guidelines.</toc-entry> 
<toc-entry level="section" idref="HEE05E4CE07814892B737167B794055BB">Sec. 102. National public education campaign.</toc-entry> 
<toc-entry level="subtitle" idref="H8BAFCA893A294AB2BDA6F3F750BC18AA">Subtitle B—Provider education</toc-entry> 
<toc-entry level="section" idref="H655892EBEB644CE0BE3A945E1C934490">Sec. 111. Public provider advance care planning website.</toc-entry> 
<toc-entry level="section" idref="HF181F6F2978F4E848DDBD1D83616B7EC">Sec. 112. Advance care curricula pilot program.</toc-entry> 
<toc-entry level="section" idref="HDEE09FC96CB1455FA9A5357858F078CC">Sec. 113. Development of core end-of-life care quality measures across each relevant provider setting.</toc-entry> 
<toc-entry level="section" idref="H8C8781F63E5D4F4D8ED89F8E3966EBF2">Sec. 114. Continuing education for qualified health care providers.</toc-entry> 
<toc-entry level="subtitle" idref="H041C5A5C75944A46A6D35AC9C176637F">Subtitle C—Medicare amendments</toc-entry> 
<toc-entry level="section" idref="HEF441C6716F34C53BEB5CFF3D429DA49">Sec. 121. Permanent extension of authorization for use of telehealth to conduct face-to-face encounter prior to recertification of eligibility for hospice care.</toc-entry> 
<toc-entry level="section" idref="HEE44ED7EFBEE4CC799C06CA2C5B35F2A">Sec. 122. Improvements to advance care planning through telehealth.</toc-entry> 
<toc-entry level="title" idref="HAA279A6008974766B07C2EACC311C7FC">TITLE II—Reports, research, and evaluations</toc-entry> 
<toc-entry level="section" idref="H9DA9A812B3174C9F8A84958F0172989A">Sec. 201. Study and report by the Secretary regarding the establishment and implementation of a national uniform policy on advance directives.</toc-entry> 
<toc-entry level="section" idref="HEEE25C6AFB824BF98300DD0652FED897">Sec. 202. Gao study and report on establishment of national advance directive registry; other studies.</toc-entry></toc></subsection></section> 
<section id="H0C42BFDDEF7F49568434F92C16DA34D6"><enum>2.</enum><header>Definitions</header><text display-inline="no-display-inline">In this Act:</text> <paragraph id="H0D9F7ED7E108487DBD8D076B59DB09B8"><enum>(1)</enum><header>Advance care planning</header><text>The term <term>advance care planning</term> means the process of discussion of care in the event that an individual is unable to make treatment decisions on their own behalf, clarification of related values and goals, and embodiment of preferences and decision making through written documents and medical orders.</text></paragraph> 
<paragraph commented="no" id="HFDCB825F097549D88568B47E2C654407"><enum>(2)</enum><header>Advance directive</header><text>The term <term>advance directive</term> means a written or otherwise recorded instruction, such as a living will or durable power of attorney for health care, recognized under the law of the State in which it was executed (whether statutory or as recognized by the courts of the State) and relating to the provision of such care when the individual is incapacitated.</text></paragraph> <paragraph commented="no" id="H3EB8A30E3C2842CB8873292E40FED1B1"><enum>(3)</enum><header>Certified chaplain</header><text>The term <term>certified chaplain</term> means a member of clergy who has met the requirements under the Common Qualifications and Competencies for Professional Chaplains and has is board certified by a national chaplaincy organization.</text></paragraph> 
<paragraph id="HB7DB469EF2494B3DA943DA268699485D"><enum>(4)</enum><header>CHIP</header><text>The term <term>CHIP</term> means the State Children's Health Insurance Program under title XXI of the Social Security Act (<external-xref legal-doc="usc" parsable-cite="usc/42/1397aa">42 U.S.C. 1397aa et seq.</external-xref>)</text></paragraph> <paragraph id="HF45A7737A87242BBB9B5080BBD9A6E28"><enum>(5)</enum><header>End-of-life-care</header><text>The term <term>end-of-life care</term> means all aspects of care of a patient with a potentially fatal condition, and includes care that is focused on preparations for an impending death.</text></paragraph> 
<paragraph commented="no" id="HFFEF36D155DF4F79A7CCBBB446E191E7"><enum>(6)</enum><header>Health care agent</header><text>The term <term>health care agent</term> means the person, designated in a health care power of attorney, who is selected to make medical decisions on behalf of the person who executed such power of attorney, in the case of incapacity of such person who executed the power of attorney.</text></paragraph> <paragraph commented="no" id="H2A18CA983E6C420D8154540AB29AB3E9"><enum>(7)</enum><header>Health care power of attorney</header><text>The term <term>health care power of attorney</term> means a legal document that identifies the health care agent of the person executing such document.</text></paragraph> 
<paragraph commented="no" id="H3E2C2A28379A45819193F3527308D44E"><enum>(8)</enum><header>Living will</header><text>The term <term>living will</term> means a written document or a video statement about the kinds of medical care or other care a person does or does not want under certain specific conditions, in the event that such person no longer is able to express those wishes.</text></paragraph> <paragraph id="H1A81046B4F0C40E9B6E4DB6F028EB902"><enum>(9)</enum><header>Medicaid</header><text>The term <term>Medicaid</term> means the program established under title XIX of the Social Security Act (<external-xref legal-doc="usc" parsable-cite="usc/42/1396">42 U.S.C. 1396 et seq.</external-xref>).</text></paragraph> 
<paragraph id="HB5E38765199743349FF09A0B15A1EFE7"><enum>(10)</enum><header>Medicare</header><text>The term <term>Medicare</term> means the program established under title XVIII of the Social Security Act (<external-xref legal-doc="usc" parsable-cite="usc/42/1395">42 U.S.C. 1395 et seq.</external-xref>).</text></paragraph> <paragraph id="HC05270E4653F4AA18629F1AB7065CD3B"><enum>(11)</enum><header>Orders for life-sustaining treatment</header><text>The term <term>orders for life-sustaining treatment</term> means a set of portable medical orders (such as physician orders for life-sustaining treatment or similar portable medical orders) that address key medical decisions consistent with the patient’s goals of care and results from a clinical process designed to facilitate shared, informed medical decisionmaking and communication between qualified health care professionals and patients with serious, progressive illness or frailty.</text></paragraph> 
<paragraph id="H10B9D14E0F05409DB51689B9144E03AC"><enum>(12)</enum><header>Qualified health care provider</header><text>The term <term>qualified health care provider</term> means a medical doctor, doctor of osteopathy, nurse, physician assistant, nurse practitioner, social worker, home health aide, palliative care professional, community health worker, community health educator, or individual in a similar position, as designated by the Secretary.</text></paragraph> <paragraph id="H412F002B36E442D9A2BC3D7292057B8A"><enum>(13)</enum><header>Secretary</header><text>The term <term>Secretary</term> means the Secretary of Health and Human Services.</text></paragraph></section> 
<title id="H7FAFC10ECD1F453CB99BE1A8BB26486B"><enum>I</enum><header>Advance care planning</header> 
<subtitle id="H0DD1E3BD9F8F48F785C212F34FBAA1E3" style="OLC"><enum>A</enum><header>Consumer education</header> 
<section id="H351552609F9242FDB0A3E88CFB06B25D"><enum>101.</enum><header>Advance care planning guidelines</header><text display-inline="no-display-inline">It is the sense of the Senate that, to the extent practicable, advance care planning should—</text> <paragraph id="H1F863A660C944A7CA53E3512F28A0EFB"><enum>(1)</enum><text display-inline="yes-display-inline">occur with an individual and such individual’s health care agent, primary clinician, other authorized decisionmaker, or members of the entire interdisciplinary health care team;</text></paragraph> 
<paragraph id="HAFFD5A3C51724603A84013AA281EF62E"><enum>(2)</enum><text display-inline="yes-display-inline">be recorded and updated as needed; and</text></paragraph> <paragraph id="HB54D750A9F5B4A7F9429D2DA8C385305"><enum>(3)</enum><text display-inline="yes-display-inline">allow for flexible decisionmaking in the context of the patient’s medical situation, in accordance with best practice guidelines provided by the Secretary.</text></paragraph></section> 
<section id="HEE05E4CE07814892B737167B794055BB"><enum>102.</enum><header>National public education campaign</header> 
<subsection id="H0049B890B79048E69441CD5B1795D43A"><enum>(a)</enum><header>National public education campaign</header> 
<paragraph id="H503C3BB3A17042229479BA7EB7E5DCAA"><enum>(1)</enum><header>In general</header><text>Not later than January 1, 2024, the Secretary, acting through the Director of the Centers for Disease Control and Prevention and in consultation with public and private entities, shall, directly or through grants, contracts, or interagency agreements, develop and implement a national campaign to inform the public of the importance of advance care planning and of an individual’s right to direct and participate in health care decisions affecting such individual.</text></paragraph> <paragraph id="H8A3A789852F94C8C965913AA6E70D7C7"><enum>(2)</enum><header>Content of educational campaign</header><text>The national public education campaign established under paragraph (1) shall—</text> 
<subparagraph id="HDEA5A937679D40149EB628A6A0B7B57F"><enum>(A)</enum><text>employ the use of various media, including social media platforms and televised public service announcements;</text></subparagraph> <subparagraph id="H9399CF159860490F9A8F03038A8828A4"><enum>(B)</enum><text>provide culturally and linguistically appropriate information;</text></subparagraph> 
<subparagraph id="H445584653ADD484A8E0356EAAAE58EF4"><enum>(C)</enum><text>be conducted continuously over a period of not less than 5 years;</text></subparagraph> <subparagraph id="HDEB59CAC780E42B4ABC560E514E697DA"><enum>(D)</enum><text>identify and promote the advance care planning information available on the Internet Websites of the Department of Health and Human Service’s National Clearinghouse for Long-Term Care Information, the Administration for Children and Families, the Administration for Community Living, and the Centers for Medicare &amp; Medicaid Services;</text></subparagraph> 
<subparagraph id="H8819146F88524AEAA59E3AE2F0A34F04"><enum>(E)</enum><text>address the importance of individuals speaking to family members, health care proxies, and qualified health care providers as part of an ongoing dialogue regarding health care choices;</text></subparagraph> <subparagraph id="HBA4E6FD0DF2E4CC58202BB2992A48990"><enum>(F)</enum><text>address the need for individuals to use portable, interoperable, and accessible methods to communicate their health care decisions through a variety of means, using legally effectuated documents that express their health care decisions in the form of advance directives (including living wills, orders for life-sustaining treatment, and durable powers of attorney for health care);</text></subparagraph> 
<subparagraph id="H9D7AD1FCB39E492AA4220FCCF075578A"><enum>(G)</enum><text>raise public awareness regarding the availability of hospice and palliative care and the quality of life benefits of early use of such services;</text></subparagraph> <subparagraph id="HC5D886ACAE744ECCB32956D5898B5D27"><enum>(H)</enum><text>encourage individuals to speak with qualified health care professionals about their options and intentions for end-of-life care; and</text></subparagraph> 
<subparagraph id="HF983E51DA1E145AD88FBB0A2E779A8AE"><enum>(I)</enum><text>adhere to evidence-based research on the most effective ways to communicate the necessity and benefits of advance care planning. </text></subparagraph></paragraph> <paragraph id="H44B2F14D524A430FA652387B50209B0D"><enum>(3)</enum><header>Evaluation</header><text>Not later than July 1, 2026, the Secretary shall report to the appropriate committees of Congress on the effectiveness of the public education campaign under this section, and include in such report any recommendations that the Secretary determines appropriate regarding the need for continuation of legislative or administrative changes to facilitate changing public awareness, attitudes, and behaviors regarding advance care planning.</text></paragraph> 
<paragraph id="HBE5DC9E7D647428FBCB4B84064F2629A"><enum>(4)</enum><header>Authorization of appropriations</header><text>There are authorized to be appropriated such sums as may be necessary to carry out this section.</text></paragraph></subsection> <subsection id="H30323A44E0C242698824B6777E456EDA"><enum>(b)</enum><header>Repeal</header><text>Section 4751(d) of the Omnibus Budget Reconciliation Act of 1990 (<external-xref legal-doc="usc" parsable-cite="usc/42/1396a">42 U.S.C. 1396a</external-xref> note; <external-xref legal-doc="public-law" parsable-cite="pl/101/508">Public Law 101–508</external-xref>) is repealed.</text></subsection></section></subtitle> 
<subtitle id="H8BAFCA893A294AB2BDA6F3F750BC18AA" style="OLC"><enum>B</enum><header>Provider education</header> 
<section id="H655892EBEB644CE0BE3A945E1C934490"><enum>111.</enum><header>Public provider advance care planning website</header> 
<subsection id="H99637DA561C341BD8C2075B45B4C7793"><enum>(a)</enum><header>Development</header><text>Not later than January 1, 2025, the Secretary, acting through the Administrator of the Centers for Medicare &amp; Medicaid Services and the Director of the Agency for Healthcare Research and Quality, shall establish an, or expand upon an existing, internet website for providers under Medicare, Medicaid, CHIP, the Indian Health Service (including contract providers), and other qualified health care providers, including qualified health care providers receiving assistance under the Older Americans Act of 1965 (<external-xref legal-doc="usc" parsable-cite="usc/42/3002">42 U.S.C. 3002 et seq.</external-xref>) to serve older individuals, on each individual’s right to make decisions concerning medical care, including the right to accept or refuse medical or surgical treatment, and engage in advance care planning. </text></subsection> <subsection id="HAB4E89289C98487285A1C73B8587DCAF"><enum>(b)</enum><header>Maintenance</header><text>The internet website described in subsection (a) shall be maintained and publicized by the Secretary on an ongoing basis.</text></subsection> 
<subsection id="HB5E6FC16676941E6B3BDE36B319CF26B"><enum>(c)</enum><header>Content</header><text>The internet website shall include content, tools, and resources necessary to do the following:</text> <paragraph id="H93E3FBFB59AF4954BC4D794A1022594B"><enum>(1)</enum><text>Inform qualified health care providers and certified chaplains about the advance directive requirements under the health care programs described in subsection (a) and State and Federal laws and regulations related to advance care planning.</text></paragraph> 
<paragraph id="H41A010E9471C481DA699E2A1AC080149"><enum>(2)</enum><text>Educate qualified health care providers and certified chaplains about advance care planning quality improvement activities.</text></paragraph> <paragraph id="HD0B85E432BEF46538C568FC5E785C439"><enum>(3)</enum><text>Provide assistance to qualified health care providers to—</text> 
<subparagraph id="H9CB1972C1B2D41829E00505F8E619A2F"><enum>(A)</enum><text>integrate advance care planning documents into electronic health records; and</text></subparagraph> <subparagraph id="HB0E19CD843964C828D8A7DA7D9E6535E"><enum>(B)</enum><text>develop and disseminate advance care planning informational materials for patients.</text></subparagraph></paragraph> 
<paragraph id="HFE21ACA0589F4A08BAEAE0C5B5597AFB"><enum>(4)</enum><text>Inform qualified health care providers about advance care planning continuing education requirements and opportunities.</text></paragraph> <paragraph id="H2B1CF382DA1A419C80E2359CEB779D21"><enum>(5)</enum><text>Encourage qualified health care providers to discuss advance care planning with patients of all ages, as appropriate.</text></paragraph> 
<paragraph id="H0C74330F3BCD470A82ABA04F1889B27D"><enum>(6)</enum><text>Assist qualified health care providers and certified chaplains in understanding the continuum of end-of-life care services and supports available to patients, including palliative care and hospice.</text></paragraph> <paragraph id="H7FB038E64BCF4443B1FF077CC3B9213A"><enum>(7)</enum><text>Inform qualified health care providers of best practices for discussing end-of-life care with patients who have a serious or terminal diagnosis or prognosis and their loved ones.</text></paragraph></subsection></section> 
<section id="HF181F6F2978F4E848DDBD1D83616B7EC"><enum>112.</enum><header>Advance care curricula pilot program</header> 
<subsection id="HAD60BFE62607473FBCF4C2DD0D4D2F0E"><enum>(a)</enum><header>In general</header><text>The Secretary, in consultation with appropriate professional associations, shall establish a pilot program by which the Secretary awards grants to eligible entities for purposes of supporting such entities in establishing end-of-life training requirements in the entities' applicable degree programs.</text></subsection> <subsection id="H0F38E0C8DC994C0596DDB7BF423F6D4D"><enum>(b)</enum><header>Eligibility</header><text>To be eligible to participate in the pilot program under this section, an entity shall—</text> 
<paragraph id="HB7CA736DE09D47A1889486B1865A0C5D"><enum>(1)</enum><text>be a school of medicine, school of osteopathic medicine, a physician assistant education program (as defined in section 799B(3) of the Public Health Service Act (<external-xref legal-doc="usc" parsable-cite="usc/42/295p">42 U.S.C. 295p(3)</external-xref>)), a school of allied health (as defined in section 799B(4) of the Public Health Service Act (<external-xref legal-doc="usc" parsable-cite="usc/42/295p">42 U.S.C. 295p(4)</external-xref>)), a school of nursing, a school of social work, a graduate medical education program accredited by the Accreditation Council for Graduate Medical Education or the American Osteopathic Association, or other school, as the Secretary determines appropriate;</text></paragraph> <paragraph id="HF7DE32D609AD406196A919B549CEB57E"><enum>(2)</enum><text>be staffed by teaching health professionals who have experience or training in palliative medicine;</text></paragraph> 
<paragraph id="H724B772C2BE444668C99BC1FC81AF750"><enum>(3)</enum><text>provide training in palliative medicine through a variety of service rotations, such as consultation services, acute care services, extended care facilities, ambulatory care and comprehensive evaluation units, hospice, home health, and community care programs;</text></paragraph> <paragraph id="H2E0DCBD562F645EA9D20CDD0BD28A1D2"><enum>(4)</enum><text>develop specific performance-based measures to evaluate the competency of trainees; and</text></paragraph> 
<paragraph id="HC7B0557172BE442798756F8552DF574D"><enum>(5)</enum><text>ensure that by not later than the end of the 2-year period beginning on the date of enactment of this Act, professionals who are applicable faculty at the entity, or others as determined appropriate by the Secretary, shall be offered retraining in hospice and palliative medicine.</text></paragraph></subsection> <subsection id="HB5BE994120274888BCBF5B8A44B60845"><enum>(c)</enum><header>Training</header><text>Eligible entities participating in the pilot program under this section shall require minimum training for trainees that includes—</text> 
<paragraph id="H54B329587436471F97FB6466CF03D9E3"><enum>(1)</enum><text>training in how to discuss and help patients and their loved ones with advance care planning;</text></paragraph> <paragraph id="H315B45775D234059899A0D4BC833957B"><enum>(2)</enum><text>with respect to trainees who will work with children, specialized pediatric training;</text></paragraph> 
<paragraph id="H7C1C11AD0EA44D0EB035C5037F76ABEF"><enum>(3)</enum><text>training in the continuum of end-of-life services and supports, including palliative care and hospice;</text></paragraph> <paragraph id="H5DD065CD113A428CBCE2DFCF759BF666"><enum>(4)</enum><text>training in how to discuss end-of-life care with dying patients and their loved ones;</text></paragraph> 
<paragraph id="HD13D6AD78F954319B6B5747A4A936A0E"><enum>(5)</enum><text>medical and legal issues training associated with end of life care;</text></paragraph> <paragraph id="HD855BF332E4C472C952B91E674D5F231"><enum>(6)</enum><text>training in linguistic and cultural competency; and</text></paragraph> 
<paragraph id="HE4186A9919BD4AA4BB783E7AD85C63D8"><enum>(7)</enum><text>in the case of a graduate medical education program accredited by the Accreditation Council for Graduate Medical Education or the American Osteopathic Association, a longitudinal component of at least 6 months.</text></paragraph></subsection> <subsection id="H605E842E1B13496E9F2581E9873562BD"><enum>(d)</enum><header>Reports</header><text>Each recipient of a grant under this section shall report to the Secretary on the outcomes of the program within 18 months of receipt of the final allotment of grant funds. Not later than 1 year after receipt of all such reports, the Secretary shall submit to Congress a report compiling such results from all grant recipients.</text></subsection> 
<subsection id="H6A33E6027BF346DAAF2BE770572D39FC"><enum>(e)</enum><header>Authorization of appropriations</header><text>There are authorized to be appropriated such sums as may be necessary to carry out this section.</text></subsection></section> <section id="HDEE09FC96CB1455FA9A5357858F078CC"><enum>113.</enum><header>Development of core end-of-life care quality measures across each relevant provider setting</header> <subsection id="HFA747C6252FE4C7A9BFF1521F443DD91"><enum>(a)</enum><header>In general</header><text>The Secretary, acting through the Director of the Agency for Healthcare Research and Quality (in this section referred to as the <quote>Director</quote>) and in consultation with the Administrator of the Centers for Medicare &amp; Medicaid Services, shall require the development of specific end-of-life quality measures for each relevant qualified health care provider setting, as identified by the Director, in accordance with the requirements of subsection (b).</text></subsection> 
<subsection id="HD590C20BA4A74A9DB20F7D12C318777A"><enum>(b)</enum><header>Requirements</header><text>For purposes of subsection (a), the requirements specified in this subsection are the following:</text> <paragraph id="HA709F36BC7AB428990B92AE353B94860"><enum>(1)</enum><text>Selection of the specific measure or measures for an identified provider setting shall be based on an assessment of what is likely to have the greatest positive impact on quality of end-of-life care in that setting, and made in consultation with affected providers, patients, and private organizations, that have developed such measures.</text></paragraph> 
<paragraph id="HE2B636FD52814C9A809595993DF62C8E"><enum>(2)</enum><text>The measures may be structure-oriented, process-oriented, or outcome-oriented, as determined appropriate by the Director, and shall be patient-oriented.</text></paragraph> <paragraph id="HF786A7E3BDA24D30B9B7D8F31FB35B81"><enum>(3)</enum><text>The Director shall ensure that reporting requirements related to such measures—</text> 
<subparagraph id="HF02E5835B0144632A635ACF84E30738D"><enum>(A)</enum><text>are imposed consistently with other applicable laws and regulations, and in a manner that takes into account existing measures, the needs of patient populations, the specific services provided, and the potential administrative burden to providers; and</text></subparagraph> <subparagraph id="H553BAF3DC1674ACEADD831F5D6FB2474"><enum>(B)</enum><text>include demographic information to account for race, ethnicity, age, and gender, and other appropriate categories.</text></subparagraph></paragraph> 
<paragraph id="HF843F51F968141B49E8EB6409B9ECF9D"><enum>(4)</enum><text>Not later than—</text> <subparagraph id="H52677B40283441018C68CD52BE8DC2C7"><enum>(A)</enum><text>January 1, 2024, the Secretary shall disseminate the reporting requirements to all affected providers and provide for a 60-day period for public comment; and</text></subparagraph> 
<subparagraph id="H5F0A72A3B0684EA1B13B5CA0C1E6ACDC"><enum>(B)</enum><text>January 1, 2026, initial reporting by health care providers relating to the measures shall begin.</text></subparagraph></paragraph></subsection></section> <section id="H8C8781F63E5D4F4D8ED89F8E3966EBF2"><enum>114.</enum><header>Continuing education for qualified health care providers</header> <subsection id="H4D59A93277C947F28F2880747EF93CEA"><enum>(a)</enum><header>In general</header><text>Not later than January 1, 2024, the Secretary, acting through the Administrator of the Health Resources and Services Administration, shall develop or enhance new and existing curricula on advance care planning and end-of-life care for continuing education that States may adopt for qualified health care providers.</text></subsection> 
<subsection id="H6B910A4721194ABA9370605A22C2730D"><enum>(b)</enum><header>Consultation</header><text>In carrying out subsection (a), the Secretary, acting through the Administrator of the Health Resources and Services Administration, may consult with qualified health care providers, applicable professional clinician associations, institutions of higher education, State boards of medicine and nursing, and other professionals, as the Secretary determines appropriate. </text></subsection> <subsection id="H0B0C79E243C04A8C9EBEFE97F91382E9"><enum>(c)</enum><header>Content</header><text>The continuing education curriculum developed or enhanced under subsection (a) shall, at a minimum, include—</text> 
<paragraph id="HB09DCC08254540D9A541A7587F4FC4A2"><enum>(1)</enum><text>a description of the meaning and importance of advance care planning;</text></paragraph> <paragraph id="HC0C38428D72848719E54C4D5DFB1BEF6"><enum>(2)</enum><text>a description of advance care planning documents, including living wills and durable powers of attorney, and the use of such directives;</text></paragraph> 
<paragraph id="H29B7D7B692B14A3F8D673AF017B2533C"><enum>(3)</enum><text>the appropriate use of orders for scope of treatment;</text></paragraph> <paragraph id="H6CAAE68B97BB46AF8A1B658D162838B1"><enum>(4)</enum><text>counseling skills for when and how to introduce and engage in advance care planning with patients and their loved ones;</text></paragraph> 
<paragraph id="H6DE1CF14666A452C96923D2220D32A19"><enum>(5)</enum><text>palliative care principles and approaches to care;</text></paragraph> <paragraph id="HE42A47B029B3434AAEE15AD675B16DDE"><enum>(6)</enum><text>the continuum of end-of-life services and supports, including palliative care and hospice; and</text></paragraph> 
<paragraph id="H3CFE501FD6514B4BA036F0C5E33811D7"><enum>(7)</enum><text>the importance of introducing palliative care and hospice early in illness in order to improve quality of life.</text></paragraph></subsection></section></subtitle> <subtitle id="H041C5A5C75944A46A6D35AC9C176637F" style="OLC"><enum>C</enum><header>Medicare amendments</header> <section section-type="subsequent-section" id="HEF441C6716F34C53BEB5CFF3D429DA49"><enum>121.</enum><header>Permanent extension of authorization for use of telehealth to conduct face-to-face encounter prior to recertification of eligibility for hospice care</header><text display-inline="no-display-inline">Section 1814(a)(7)(D)(i)(II) of the Social Security Act (<external-xref legal-doc="usc" parsable-cite="usc/42/1395f">42 U.S.C. 1395f(a)(7)(D)(i)(II)</external-xref>) is amended by striking <quote>during the emergency period</quote> and all that follows through <quote>ending on December 31, 2024</quote> and inserting the following: <quote>during and after the emergency period described in section 1135(g)(1)(B)</quote>.</text></section> 
<section id="HEE44ED7EFBEE4CC799C06CA2C5B35F2A"><enum>122.</enum><header>Improvements to advance care planning through telehealth</header><text display-inline="no-display-inline">Section 1834(m) of the Social Security Act (<external-xref legal-doc="usc" parsable-cite="usc/42/1395m">42 U.S.C. 1395m(m)</external-xref>) is amended—</text> <paragraph id="HAD49DBA58B16489FB1B6A1EA4247CFFE"><enum>(1)</enum><text display-inline="yes-display-inline">in paragraph (4)(C)—</text> 
<subparagraph id="H22C35FFC75D342E2B96B870C5536028F"><enum>(A)</enum><text display-inline="yes-display-inline">in clause (i), in the matter preceding subclause (I), by striking <quote>and (7)</quote> and inserting <quote>(7), and (10)</quote>; and</text></subparagraph> <subparagraph id="H5D58421C01034F5E8DC5DA7B82F0A6BC"><enum>(B)</enum><text>in clause (ii)(X), by inserting <quote>or paragraph (10)</quote> before the period; and</text></subparagraph></paragraph> 
<paragraph id="H995ACE528DDF40919F56D6B675951AAD"><enum>(2)</enum><text display-inline="yes-display-inline">by adding at the end the following new paragraph:</text> <quoted-block style="OLC" display-inline="no-display-inline" id="HF9C1EF2294A14FD6A324F99DFAC85D59"> <paragraph id="H4E636F7B96ED4BDDA6B03C70CCFAB7C2"><enum>(10)</enum><header>Treatment of advance care planning services</header><text>The geographic requirements described in paragraph (4)(C)(i) shall not apply with respect to telehealth services furnished on or after January 1, 2024, for purposes of furnishing advance care planning services, as determined by the Secretary.</text></paragraph><after-quoted-block>.</after-quoted-block></quoted-block></paragraph></section></subtitle></title> 
<title id="HAA279A6008974766B07C2EACC311C7FC" style="OLC"><enum>II</enum><header>Reports, research, and evaluations</header> 
<section id="H9DA9A812B3174C9F8A84958F0172989A"><enum>201.</enum><header>Study and report by the Secretary regarding the establishment and implementation of a national uniform policy on advance directives</header> 
<subsection id="H3F83589E794E4F7B843CE6E6F982BDB7"><enum>(a)</enum><header>Study</header> 
<paragraph id="H9270CBFC56804761825A48AA9466FE24"><enum>(1)</enum><header>In general</header><text>The Secretary, acting through the Office of the Assistant Secretary for Planning and Evaluation, shall conduct a study to evaluate the barriers to establishing and implementing a national uniform policy on advance directives and what needs to be done to overcome those barriers.</text></paragraph> <paragraph id="H0416CE9CF8C04AC98E5C727B5893F875"><enum>(2)</enum><header>Matters studied</header><text>The matters studied by the Secretary under paragraph (1) shall include issues concerning—</text> 
<subparagraph id="HBCD29FEFC0DD442BA385D5698645B0EF"><enum>(A)</enum><text>family satisfaction that a patient’s wishes, as stated in the patient’s advance directive, were carried out;</text></subparagraph> <subparagraph id="H30B5F5F5E5DD4538BC2F6DFA5234E467"><enum>(B)</enum><text>the usability, accessibility, interoperability, and portability of advance directives, including cases involving the transfer of an individual from one health care setting to another;</text></subparagraph> 
<subparagraph id="H724C8A9568814B62A2F0D4ECC6CB017F"><enum>(C)</enum><text>the feasibility of establishing an optional, national advance directive form deemed valid by any health care entity or qualified health care provider participating in Medicare, Medicaid, or CHIP, regardless of State law; and</text></subparagraph> <subparagraph id="H987203906F1A416994B7087A73311C5C"><enum>(D)</enum><text>State variations in advance directive laws that are relevant to the establishment and implementation of a national uniform policy of advance directives.</text></subparagraph></paragraph></subsection> 
<subsection id="H327A54484C214EA0AAF8624748556686"><enum>(b)</enum><header>Report to congress</header><text>Not later than 2 years after the date of enactment of this Act, the Secretary shall submit to Congress a report on the study conducted under subsection (a), together with recommendations for such legislation and administrative actions as the Secretary considers appropriate.</text></subsection> <subsection id="HB77B25B0C69F44768DE403949234733D"><enum>(c)</enum><header>Consultation</header><text>In conducting the study and developing the report under this section, the Secretary shall consult with relevant stakeholders and other interested parties.</text></subsection></section> 
<section id="HEEE25C6AFB824BF98300DD0652FED897"><enum>202.</enum><header>Gao study and report on establishment of national advance directive registry; other studies</header> 
<subsection id="H72510AC2BBCF4A20A2F83C50D6130FA6"><enum>(a)</enum><header>Study and report on establishment of national advance directive registry</header> 
<paragraph id="H65F7BDCB96594E59AD95CB24358E0B4A"><enum>(1)</enum><header>Study</header><text>The Comptroller General of the United States shall conduct a study on the feasibility of a national registry for advance directives, taking into consideration the constraints created by the privacy provisions enacted as a result of the Health Insurance Portability and Accountability Act of 1996 (<external-xref legal-doc="public-law" parsable-cite="pl/104/191">Public Law 104–191</external-xref>).</text></paragraph> <paragraph id="HB2A6FB591ABF4A1CBC9FEF8773B8E901"><enum>(2)</enum><header>Report</header><text>Not later than 18 months after the date of enactment of this Act, the Comptroller General of the United States shall submit to Congress a report on the study conducted under subsection (a) together with recommendations for such legislation and administrative action as the Comptroller General of the United States determines to be appropriate.</text></paragraph></subsection> 
<subsection id="HCEBD013A485248888AE14CE38E3C8932"><enum>(b)</enum><header>ONC Study</header><text>The National Coordinator of the Office of the National Coordinator for Health Information Technology shall conduct a study on the feasibility and impact on advance care planning of requiring that electronic health record vendors seeking certification have a prominent and easily visible field for storing and sharing advance care planning documents and related clinical notes. </text></subsection> <subsection id="HACE5871DC5E847E89D1F4EFD61C24C6B"><enum>(c)</enum><header>ONC demonstration programs</header><text>The National Coordinator for Health Information Technology, in collaboration with the Director of the National Institute of Standards and Technology, shall initiate 2 demonstration programs to establish best practices and recommended standards to support—</text> 
<paragraph id="H9D8ECBEEB0F54A7EAA07893341B51B9F"><enum>(1)</enum><text>usability, portability and interoperability of advance directives that are accessible to individuals, clinicians, and other authorized individuals; and </text></paragraph> <paragraph id="HB6A120E48D9C4CE89E0C3D04D513DB85"><enum>(2)</enum><text>the use of electronic signatures, electronic authentication of witnesses, and electronic notarization to effectuate advance directives. </text></paragraph></subsection> 
<subsection id="HDB1B2ED4AEB14F41862B93C8BDE2C4A0"><enum>(d)</enum><header>Additional study</header><text>The Comptroller General of the United States shall conduct a study and submit a report to Congress on the incidence of health care, tests, surgeries, drugs, and other services paid provided by qualified health care providers and paid for by the Federal Government or the patient and that were not the preference of the patient or the authorized health care agent of the patient.</text></subsection></section></title> </legis-body> </bill> 

