[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[H.R. 3946 Introduced in House (IH)]

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118th CONGRESS
  1st Session
                                H. R. 3946

 To amend the Public Health Service Act to reauthorize and extend the 
 Fetal Alcohol Spectrum Disorders Prevention and Services program, and 
                          for other purposes.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                              June 9, 2023

Mr. Bacon (for himself and Ms. McCollum) introduced the following bill; 
       which was referred to the Committee on Energy and Commerce

_______________________________________________________________________

                                 A BILL


 
 To amend the Public Health Service Act to reauthorize and extend the 
 Fetal Alcohol Spectrum Disorders Prevention and Services program, and 
                          for other purposes.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Advancing FASD Research, Services 
and Prevention Act'' or the ``FASD Respect Act''.

SEC. 2. HHS PROGRAM ON FETAL ALCOHOL SPECTRUM DISORDERS.

    (a) In General.--Part O of title III of the Public Health Service 
Act (42 U.S.C. 280f et seq.) is amended--
            (1) by amending the part heading to read as follows: 
        ``fetal alcohol spectrum disorders prevention and services 
        program'';
            (2) in section 399H (42 U.S.C. 280f)--
                    (A) in the section heading, by striking 
                ``establishment of fetal alcohol syndrome prevention'' 
                and inserting ``fetal alcohol spectrum disorders 
                prevention, intervention,'';
                    (B) by striking ``Fetal Alcohol Syndrome and Fetal 
                Alcohol Effect'' each place it appears and inserting 
                ``FASD'';
                    (C) in subsection (a)--
                            (i) by amending the heading to read as 
                        follows: ``In General'';
                            (ii) in the matter preceding paragraph 
                        (1)--
                                    (I) by inserting ``or continue 
                                activities to support'' after ``shall 
                                establish'';
                                    (II) by striking ``FASD'' (as 
                                amended by subparagraph (B)) and 
                                inserting ``fetal alcohol spectrum 
                                disorders (referred to in this section 
                                as `FASD')'';
                                    (III) by striking ``prevention, 
                                intervention'' and inserting 
                                ``awareness, prevention, 
                                identification, intervention,''; and
                                    (IV) by striking ``that shall'' and 
                                inserting ``, which may'';
                            (iii) in paragraph (1)--
                                    (I) in subparagraph (A)--
                                            (aa) by striking ``medical 
                                        schools'' and inserting 
                                        ``health professions schools''; 
                                        and
                                            (bb) by inserting 
                                        ``infants,'' after ``provision 
                                        of services for''; and
                                    (II) in subparagraph (D), by 
                                striking ``medical and mental'' and 
                                inserting ``agencies providing'';
                            (iv) in paragraph (2)--
                                    (I) in the matter preceding 
                                subparagraph (A), by striking ``a 
                                prevention and diagnosis program to 
                                support clinical studies, 
                                demonstrations and other research as 
                                appropriate'' and inserting 
                                ``supporting and conducting research on 
                                FASD, as appropriate, including'';
                                    (II) in subparagraph (B)--
                                            (aa) by striking 
                                        ``prevention services and 
                                        interventions for pregnant, 
                                        alcohol-dependent women'' and 
                                        inserting ``culturally and 
                                        linguistically informed 
                                        evidence-based or practice-
                                        based interventions and 
                                        appropriate societal supports 
                                        for preventing prenatal alcohol 
                                        exposure, which may co-occur 
                                        with exposure to other 
                                        substances''; and
                                            (bb) by striking ``; and'' 
                                        and inserting a semicolon;
                            (v) by striking paragraph (3) and inserting 
                        the following:
            ``(3) integrating into surveillance practice an evidence-
        based standard case definition for fetal alcohol syndrome and, 
        in collaboration with other Federal and outside partners, 
        support organizations of appropriate medical and mental health 
        professionals in their development and refinement of evidence-
        based clinical diagnostic guidelines and criteria for all fetal 
        alcohol spectrum disorders; and
            ``(4) building State and Tribal capacity for the 
        identification, treatment, and support of individuals with FASD 
        and their families, which may include--
                    ``(A) utilizing and adapting existing Federal, 
                State, or Tribal programs to include FASD 
                identification and FASD-informed support;
                    ``(B) developing and expanding screening and 
                diagnostic capacity for FASD;
                    ``(C) developing, implementing, and evaluating 
                targeted FASD-informed intervention programs for FASD;
                    ``(D) increasing awareness of FASD;
                    ``(E) providing training with respect to FASD for 
                professionals across relevant sectors; and
                    ``(F) disseminating information about FASD and 
                support services to affected individuals and their 
                families.'';
                    (D) in subsection (b)--
                            (i) by striking ``described in section 
                        399I'';
                            (ii) by striking ``The Secretary'' and 
                        inserting the following:
            ``(1) In general.--The Secretary''; and
                            (iii) by adding at the end the following:
            ``(2) Eligible entities.--To be eligible to receive a 
        grant, or enter into a cooperative agreement or contract, under 
        this section, an entity shall--
                    ``(A) be a State, Indian Tribe or Tribal 
                organization, local government, scientific or academic 
                institution, or nonprofit organization; and
                    ``(B) prepare and submit to the Secretary an 
                application at such time, in such manner, and 
                containing such information as the Secretary may 
                require, including a description of the activities that 
                the entity intends to carry out using amounts received 
                under this section.''; and
                    (E) by striking subsections (c) and (d); and
                    (F) by adding at the end the following:
    ``(c) Definition of FASD-Informed.--For purposes of this section, 
the term `FASD-informed', with respect to support or an intervention 
program, means that such support or intervention program uses 
culturally and linguistically informed evidence-based or practice-based 
interventions and appropriate societal supports to support an improved 
quality of life for an individual with FASD and the family of such 
individual.'';
            (3) by striking sections 399I, 399J, and 399K (42 U.S.C. 
        280f-1, 280f-2, 280f-3) and inserting the following:

``SEC. 399I. FETAL ALCOHOL SPECTRUM DISORDERS CENTERS FOR EXCELLENCE.

    ``(a) In General.--The Secretary shall, as appropriate, award 
grants, cooperative agreements, or contracts to public or nonprofit 
entities with demonstrated expertise in the prevention of, 
identification of, and intervention services with respect to, fetal 
alcohol spectrum disorders (referred to in this section as `FASD') and 
other related adverse conditions. Such awards shall be for the purposes 
of establishing Fetal Alcohol Spectrum Disorders Centers for Excellence 
to build local, Tribal, State, and national capacities to prevent the 
occurrence of FASD and other related adverse conditions, and to respond 
to the needs of individuals with FASD and their families by carrying 
out the programs described in subsection (b).
    ``(b) Programs.--An entity receiving an award under subsection (a) 
may use such award for the following purposes:
            ``(1) Initiating or expanding diagnostic capacity for FASD 
        by increasing screening, assessment, identification, and 
        diagnosis.
            ``(2) Developing and supporting public awareness and 
        outreach activities, including the use of a range of media and 
        public outreach, to raise public awareness of the risks 
        associated with alcohol consumption during pregnancy, with the 
        goals of reducing the prevalence of FASD and improving the 
        developmental, health (including mental health), and 
        educational outcomes of individuals with FASD and supporting 
        families caring for individuals with FASD.
            ``(3) Acting as a clearinghouse for evidence-based 
        resources on FASD prevention, identification, and culturally 
        and linguistically informed best practices, including the 
        maintenance of a national data-based directory on FASD-specific 
        services in States, Indian Tribes, and local communities, and 
        disseminating ongoing research and developing resources on FASD 
        to help inform systems of care for individuals with FASD across 
        their lifespan.
            ``(4) Increasing awareness and understanding of 
        efficacious, evidence-based FASD screening tools and 
        culturally- and linguistically-appropriate evidence-based 
        intervention services and best practices, which may include by 
        conducting national, regional, State, Tribal, or peer cross-
        State webinars, workshops, or conferences for training 
        community leaders, medical and mental health and substance use 
        disorder professionals, education and disability professionals, 
        families, law enforcement personnel, judges, individuals 
        working in financial assistance programs, social service 
        personnel, child welfare professionals, and other service 
        providers.
            ``(5) Improving capacity for State, Tribal, and local 
        affiliates dedicated to FASD awareness, prevention, and 
        identification and family and individual support programs and 
        services.
            ``(6) Providing technical assistance to grantees under 
        section 399H, as appropriate.
            ``(7) Carrying out other functions, as appropriate.
    ``(c) Application.--To be eligible for a grant, contract, or 
cooperative agreement under this section, an entity shall submit to the 
Secretary an application at such time, in such manner, and containing 
such information as the Secretary may require.
    ``(d) Subcontracting.--A public or private nonprofit entity may 
carry out the following activities required under this section through 
contracts or cooperative agreements with other public and private 
nonprofit entities with demonstrated expertise in FASD:
            ``(1) Prevention activities.
            ``(2) Screening and identification.
            ``(3) Resource development and dissemination, training and 
        technical assistance, administration, and support of FASD 
        partner networks.
            ``(4) Intervention services.

``SEC. 399J. AUTHORIZATION OF APPROPRIATIONS.

    ``There are authorized to be appropriated to carry out this part 
such sums as may be necessary for each of fiscal years 2024 through 
2028.''.
    (b) Report.--Not later than 4 years after the date of enactment of 
this Act, the Secretary of Health and Human Services shall submit to 
the Committee on Health, Education, Labor, and Pensions of the Senate 
and the Committee on Energy and Commerce of the House of 
Representatives a report on the efforts of the Department of Health and 
Human Services to advance public awareness on, and facilitate the 
identification of best practices related to, fetal alcohol spectrum 
disorders identification, prevention, treatment, and support.
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