[Congressional Bills 116th Congress]
[From the U.S. Government Publishing Office]
[H.R. 1058 Introduced in House (IH)]
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116th CONGRESS
1st Session
H. R. 1058
To reauthorize certain provisions of the Public Health Service Act
relating to autism, and for other purposes.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
February 7, 2019
Mr. Smith of New Jersey (for himself and Mr. Michael F. Doyle of
Pennsylvania) introduced the following bill; which was referred to the
Committee on Energy and Commerce
_______________________________________________________________________
A BILL
To reauthorize certain provisions of the Public Health Service Act
relating to autism, and for other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Autism Collaboration,
Accountability, Research, Education, and Support Act of 2019'' or the
``Autism CARES Act of 2019''.
SEC. 2. EXPANSION, INTENSIFICATION, AND COORDINATION OF ACTIVITIES OF
NATIONAL INSTITUTES OF HEALTH WITH RESPECT TO RESEARCH ON
AUTISM SPECTRUM DISORDER.
Section 409C of the Public Health Service Act (42 U.S.C. 284g) is
amended--
(1) in subsection (a)(1)--
(A) by inserting after ``and toxicology'' the
following: ``, and interventions to maximize outcomes
for persons with autism spectrum disorder'';
(B) by inserting after ``early'' the following:
``and ongoing''; and
(C) by inserting after ``treatment of autism
spectrum disorder'' the following: ``, including
dissemination and implementation of clinical care,
supports, intervention, and treatment''; and
(2) in subsection (b)--
(A) by amending paragraph (2) to read as follows:
``(2) Research.--Each center under paragraph (1) shall
conduct basic and clinical research into autism spectrum
disorder. Such research should include investigations into the
causes, diagnosis, and early and ongoing detection, prevention,
and treatment of autism spectrum disorder across the lifespan.
The centers, as a group, shall conduct research including in
the fields of developmental neurobiology, genetics,
psychopharmacology, genomics, and developmental, behavioral,
and clinical psychology.''; and
(B) in paragraph (3), by adding at the end the
following new subparagraph:
``(D) Reducing disparities.--In awarding grants to
applicants which meet the scientific criteria for
funding under this section, the Director may consider,
as appropriate, the extent to which a center can
demonstrate availability and access to clinical
services for youth and adults from diverse racial,
ethnic, geographic, or linguistic backgrounds.''.
SEC. 3. DEVELOPMENTAL DISABILITIES SURVEILLANCE AND RESEARCH PROGRAM.
Section 399AA(e) of the Public Health Service Act (42 U.S.C.
280i(e)) is amended by striking ``2019'' and inserting ``2024''.
SEC. 4. AUTISM EDUCATION, EARLY DETECTION, AND INTERVENTION.
Section 399BB of the Public Health Service Act (42 U.S.C. 280i-1)
is amended--
(1) in subsection (a)(1), by striking ``for children'' and
inserting ``for individuals'';
(2) in subsection (b)--
(A) by redesignating paragraphs (4) through (6) as
paragraphs (5) through (7), respectively; and
(B) by inserting after paragraph (3) the following
new paragraph:
``(4) promote evidence-based screening techniques and
interventions for individuals with autism spectrum disorder
across their lifespans;'';
(3) in subsection (c)(1), in the matter preceding
subparagraph (A), by inserting after ``needs of individuals
with autism spectrum disorder or other developmental
disabilities'' the following: ``across the lifespan of such
individuals'';
(4) in subsection (e), by adding at the end the following
new paragraph:
``(4) Prioritization.--
``(A) In general.--In awarding grants and
agreements under paragraphs (1) and (2), the Secretary
may prioritize awards to training programs described in
paragraph (1) that are developmental-behavioral
pediatrician training programs located in rural areas
or underserved areas.
``(B) Underserved area defined.--In this paragraph,
the term `underserved area' means--
``(i) an area described in section
332(a)(1)(A); and
``(ii) a medically underserved population
(as defined in section 330(b)(3)(A)).'';
(5) in subsection (f), by inserting after ``individuals
with autism spectrum disorder or other developmental
disabilities'' the following: ``across the lifespan of such
individuals''; and
(6) in subsection (g), by striking ``2019'' and inserting
``2024''.
SEC. 5. INTERAGENCY AUTISM COORDINATING COMMITTEE.
Section 399CC of the Public Health Service Act (42 U.S.C. 280i-2)
is amended--
(1) in subsection (b)--
(A) in paragraph (2), by inserting after ``services
and supports for individuals with autism spectrum
disorder'' the following: ``across the lifespan of such
individuals''; and
(B) in paragraph (5), by inserting after
``individuals with an autism spectrum disorder'' the
following: ``across the lifespan of such individuals'';
(2) in subsection (c)--
(A) in paragraph (1)(D), by inserting after ``the
Department of Education'' the following: ``, the
Department of Labor, the Department of Justice, the
Department of Housing and Urban Development,''; and
(B) in paragraph (3)(A), by striking ``one or more
additional 4-year terms'' and inserting ``one
additional 4-year term''; and
(3) in subsection (f), by striking ``2019'' and inserting
``2024''.
SEC. 6. REPORTS TO CONGRESS.
Section 399DD of the Public Health Service Act (42 U.S.C. 280i-3)
is amended--
(1) in subsection (a)--
(A) in paragraph (1), by striking ``of 2014'' and
inserting ``of 2019''; and
(B) in paragraph (2)--
(i) by striking ``of 2014'' each place it
appears and inserting ``of 2019'';
(ii) in subparagraph (G), striking ``age of
the child'' and inserting ``age of the
individual'';
(iii) in subparagraph (H), by striking
``and'' at the end;
(iv) in subparagraph (I), by striking the
period at the end and inserting ``; and''; and
(v) by adding at the end the following new
subparagraph:
``(J) information on how States use home and
community-based services and other supports to ensure
that individuals with autism spectrum disorder or other
developmental disabilities are living, working, and
participating in the community.''; and
(2) by amending subsection (b) to read as follows:
``(b) Report on Health and Well-Being of Individuals With Autism
Spectrum Disorder.--
``(1) In general.--Not later than 2 years after the date of
enactment of the Autism CARES Act of 2019, the Secretary shall
prepare and submit to the Committee on Health, Education, Labor
and Pensions of the Senate and the Committee on Energy and
Commerce of the House of Representatives a report concerning
the health and well-being of individuals with autism spectrum
disorder.
``(2) Contents.--The report submitted under paragraph (1)
shall contain--
``(A) demographic factors associated with the
health and well-being of individuals with autism
spectrum disorder;
``(B) an overview of policies and programs relevant
to the health and well-being of individuals with autism
spectrum disorder, including an identification of
existing Federal laws, regulations, policies, research,
and programs;
``(C) proposals on establishing best practices
guidelines to ensure interdisciplinary coordination
between all relevant service providers receiving
Federal funding;
``(D) comprehensive approaches to improving health
outcomes and well-being for individuals with autism
spectrum disorder, including--
``(i) community-based behavioral supports
and interventions;
``(ii) nutrition, recreational, and social
activities; and
``(iii) personal safety services for
individuals with autism spectrum disorder
related to public safety agencies or the
criminal justice system; and
``(E) recommendations that seek to improve health
outcomes for individuals with autism spectrum disorder
by addressing--
``(i) screening and diagnosis of
individuals of all ages;
``(ii) behavioral and other therapeutic
approaches;
``(iii) primary and preventative care;
``(iv) communication challenges;
``(v) aggression, self-injury, elopement,
and other behavioral issues;
``(vi) emergency room visits and acute care
hospitalization;
``(vii) treatment for co-occurring physical
and mental health conditions;
``(viii) premature mortality;
``(ix) medical practitioner training; and
``(x) caregiver mental health.''.
SEC. 7. AUTHORIZATION OF APPROPRIATIONS.
Section 399EE of the Public Health Service Act (42 U.S.C. 280i-4)
is amended--
(1) in subsection (a), by striking ``$22,000,000 for each
of fiscal years 2015 through 2019'' and inserting ``$23,100,000
for each of fiscal years 2020 through 2024'';
(2) in subsection (b), by striking ``$48,000,000 for each
of fiscal years 2015 through 2019'' and inserting ``$50,599,000
for each of fiscal years 2020 through 2024''; and
(3) in subsection (c), by striking ``there is authorized to
be appropriated $190,000,000 for each of fiscal years 2015
through 2019'' and inserting ``there are authorized to be
appropriated such sums as may be necessary for each of fiscal
years 2020 through 2024''.
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