[Congressional Bills 116th Congress]
[From the U.S. Government Publishing Office]
[H.R. 1058 Enrolled Bill (ENR)]

        H.R.1058

                     One Hundred Sixteenth Congress

                                 of the

                        United States of America


                          AT THE FIRST SESSION

          Begun and held at the City of Washington on Thursday,
           the third day of January, two thousand and nineteen


                                 An Act


 
  To amend the Public Health Service Act to enhance activities of the 
    National Institutes of Health with respect to research on autism 
spectrum disorder and enhance programs relating to autism, and for other 
                                purposes.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
    This Act may be cited as the ``Autism Collaboration, 
Accountability, Research, Education, and Support Act of 2019'' or the 
``Autism CARES Act of 2019''.
SEC. 2. EXPANSION, INTENSIFICATION, AND COORDINATION OF ACTIVITIES OF 
THE NIH WITH RESPECT TO RESEARCH ON AUTISM SPECTRUM DISORDER.
    Section 409C of the Public Health Service Act (42 U.S.C. 284g) is 
amended--
        (1) in subsection (a)(1)--
            (A) in the first sentence, by striking ``and toxicology'' 
        and inserting ``toxicology, and interventions to maximize 
        outcomes for individuals with autism spectrum disorder''; and
            (B) by striking the second sentence and inserting the 
        following: ``Such research shall investigate the causes 
        (including possible environmental causes), diagnosis or ruling 
        out, early and ongoing detection, prevention, services across 
        the lifespan, supports, intervention, and treatment of autism 
        spectrum disorder, including dissemination and implementation 
        of clinical care, supports, interventions, and treatments.'';
        (2) in subsection (b)--
            (A) in paragraph (2)--
                (i) in the second sentence, by striking ``cause'' and 
            all that follows through ``disorder'' and inserting 
            ``causes, diagnosis, early and ongoing detection, 
            prevention, and treatment of autism spectrum disorder 
            across the lifespan''; and
                (ii) in the third sentence, by striking 
            ``neurobiology'' and all that follows through the period 
            and inserting ``neurobiology, genetics, genomics, 
            psychopharmacology, developmental psychology, behavioral 
            psychology, and clinical psychology.''; and
            (B) in paragraph (3), by adding at the end the following:
            ``(D) Reducing disparities.--The Director may consider, as 
        appropriate, the extent to which a center can demonstrate 
        availability and access to clinical services for youth and 
        adults from diverse racial, ethnic, geographic, or linguistic 
        backgrounds in decisions about awarding grants to applicants 
        which meet the scientific criteria for funding under this 
        section.''.
SEC. 3. PROGRAMS RELATING TO AUTISM.
    (a) Developmental Disabilities Surveillance and Research Program.--
Section 399AA of the Public Health Service Act (42 U.S.C. 280i) is 
amended--
        (1) in subsection (a)(1), by striking ``adults on autism 
    spectrum disorder'' and inserting ``adults with autism spectrum 
    disorder'';
        (2) in subsection (a)(2)--
            (A) by striking ``State and local public health officials'' 
        and inserting ``State, local, and Tribal public health 
        officials'';
            (B) by striking ``or other developmental disabilities'' and 
        inserting ``and other developmental disabilities'';
        (3) in subsection (a)(3), by striking ``a university, or any 
    other educational institution'' and inserting ``a university, any 
    other educational institution, an Indian tribe, or a tribal 
    organization'';
        (4) in subsection (b)(2)(A), by striking ``relevant State and 
    local public health officials, private sector developmental 
    disability researchers, and advocates for individuals with 
    developmental disabilities'' and inserting ``State, local, and 
    Tribal public health officials, private sector developmental 
    disability researchers, advocates for individuals with autism 
    spectrum disorder, and advocates for individuals with other 
    developmental disabilities'';
        (5) in subsection (d)--
            (A) by redesignating paragraphs (1) and (2) as paragraphs 
        (2) and (3), respectively; and
            (B) by inserting before paragraph (2), as so redesignated, 
        the following new paragraph:
        ``(1) Indian tribe; tribal organization.--The terms `Indian 
    tribe' and `tribal organization' have the meanings given such terms 
    in section 4 of the Indian Health Care Improvement Act.''; and
        (6) in subsection (e), by striking ``2019'' and inserting 
    ``2024''.
    (b) Autism Education, Early Detection, and Intervention.--Section 
399BB of the Public Health Service Act (42 U.S.C. 280i-1) is amended--
        (1) in subsection (a)(1)--
            (A) by striking ``individuals with autism spectrum disorder 
        or other developmental disabilities'' and inserting 
        ``individuals with autism spectrum disorder and other 
        developmental disabilities''; and
            (B) by striking ``children with autism spectrum disorder'' 
        and all that follows through ``disabilities;'' and inserting 
        ``individuals with autism spectrum disorder and other 
        developmental disabilities across their lifespan;'';
        (2) in subsection (b)--
            (A) in paragraph (2), by inserting ``individuals with'' 
        before ``autism spectrum disorder'';
            (B) by redesignating paragraphs (4) through (6) as 
        paragraphs (5) through (7), respectively; and
            (C) by inserting after paragraph (3) the following:
        ``(4) promote evidence-based screening techniques and 
    interventions for individuals with autism spectrum disorder and 
    other developmental disabilities across their lifespan;'';
        (3) in subsection (c)--
            (A) in paragraph (1), in the matter preceding subparagraph 
        (A), by striking ``the needs of individuals with autism 
        spectrum disorder or other developmental disabilities and their 
        families'' and inserting ``the needs of individuals with autism 
        spectrum disorder and other developmental disabilities across 
        their lifespan and the needs of their families''; and
            (B) in paragraph (2)--
                (i) in subparagraph (A)(ii), by striking ``caregivers 
            of individuals with an autism spectrum disorder'' and 
            inserting ``caregivers of individuals with autism spectrum 
            disorder or other developmental disabilities'';
                (ii) in subparagraph (B)(i)(II), by inserting ``autism 
            spectrum disorder and'' after ``individuals with''; and
                (iii) in subparagraph (B)(ii), by inserting ``autism 
            spectrum disorder and'' after ``individuals with'';
        (4) in subsection (e)--
            (A) in paragraph (1)--
                (i) in the matter preceding subparagraph (A), by 
            inserting ``across their lifespan'' before ``and ensure''; 
            and
                (ii) in subparagraph (B)(iv), by inserting ``across 
            their lifespan'' after ``other developmental 
            disabilities'';
            (B) by redesignating paragraphs (2) and (3) as paragraphs 
        (3) and (4), respectively; and
            (C) by inserting after paragraph (1) the following:
        ``(2) Developmental-behavioral pediatrician training 
    programs.--
            ``(A) In general.--In making awards under this subsection, 
        the Secretary may prioritize awards to applicants that are 
        developmental-behavioral pediatrician training programs located 
        in rural or underserved areas.
            ``(B) Definition of underserved area.--In this paragraph, 
        the term `underserved area' means--
                ``(i) a health professional shortage area (as defined 
            in section 332(a)(1)(A)); and
                ``(ii) an urban or rural area designated by the 
            Secretary as an area with a shortage of personal health 
            services (as described in section 330(b)(3)(A)).'';
        (5) in subsection (f), by inserting ``across the lifespan of 
    such individuals'' after ``other developmental disabilities''; and
        (6) in subsection (g), by striking ``2019'' and inserting 
    ``2024''.
    (c) Interagency Autism Coordinating Committee.--Section 399CC of 
the Public Health Service Act (42 U.S.C. 280i-2) is amended--
        (1) in subsection (b)--
            (A) in paragraph (2), by inserting ``across the lifespan of 
        such individuals'' before the semicolon; and
            (B) in paragraph (5), by inserting ``across the lifespan of 
        such individuals'' before ``and the families'';
        (2) in subsection (c)--
            (A) in paragraph (1)(D), by inserting ``, the Department of 
        Labor, the Department of Justice, the Department of Veterans 
        Affairs, the Department of Housing and Urban Development,'' 
        after ``Department of Education'';
            (B) in subparagraphs (A), (B), and (C) of paragraph (2), by 
        striking ``at least two such members'' each place it appears 
        and inserting ``at least three such members'';
            (C) in paragraph (3)(A), by striking ``one or more 
        additional 4-year terms'' and inserting ``one additional 4-year 
        term''; and
        (3) in subsection (f), by striking ``2019'' and inserting 
    ``2024''.
    (d) Reports to Congress.--Section 399DD of the Public Health 
Service Act (42 U.S.C. 280i-3) is amended--
        (1) in subsection (a)--
            (A) in paragraph (1), by striking ``Autism CARES Act of 
        2014'' and inserting ``Autism CARES Act of 2019''; and
            (B) in paragraph (2)--
                (i) in subparagraphs (A), (B), (D), and (E), by 
            striking ``Autism CARES Act of 2014'' each place it appears 
            and inserting ``Autism CARES Act of 2019'';
                (ii) in subparagraph (G), by striking ``age of the 
            child'' and inserting ``age of the individual'';
                (iii) in subparagraph (H), by striking ``; and'' and 
            inserting ``;'';
                (iv) in subparagraph (I), by striking the period and 
            inserting ``; and''; and
                (v) by adding at the end the following:
            ``(J) information on how States use home- and community-
        based services and other supports to ensure that individuals 
        with autism spectrum disorder and other developmental 
        disabilities are living, working, and participating in their 
        community.''; and
        (2) in subsection (b)--
            (A) in the heading, by striking ``Young Adults and 
        Transitioning Youth'' and inserting ``the Health and Well-Being 
        of Individuals With Autism Spectrum Disorder Across Their 
        Lifespan'';
            (B) by amending paragraph (1) to read as follows:
        ``(1) In general.--Not later than 2 years after the date of 
    enactment of the Autism CARES Act of 2019, the Secretary shall 
    prepare and submit, to the Committee on Health, Education, Labor, 
    and Pensions of the Senate and the Committee on Energy and Commerce 
    of the House of Representatives, a report concerning the health and 
    well-being of individuals with autism spectrum disorder.''; and
            (C) in paragraph (2)--
                (i) by amending subparagraph (A) to read as follows:
            ``(A) demographic factors associated with the health and 
        well-being of individuals with autism spectrum disorder;'';
                (ii) in subparagraph (B), by striking ``young adults'' 
            and all that follows through the semicolon and inserting 
            ``the health and well-being of individuals with autism 
            spectrum disorder, including an identification of existing 
            Federal laws, regulations, policies, research, and 
            programs;''; and
                (iii) by amending subparagraphs (C), (D), and (E) to 
            read as follows:
            ``(C) recommendations on establishing best practices 
        guidelines to ensure interdisciplinary coordination between all 
        relevant service providers receiving Federal funding;
            ``(D) comprehensive approaches to improving health outcomes 
        and well-being for individuals with autism spectrum disorder, 
        including--
                ``(i) community-based behavioral supports and 
            interventions;
                ``(ii) nutrition, recreational, and social activities; 
            and
                ``(iii) personal safety services related to public 
            safety agencies or the criminal justice system for such 
            individuals; and
            ``(E) recommendations that seek to improve health outcomes 
        for such individuals, including across their lifespan, by 
        addressing--
                ``(i) screening and diagnosis of children and adults;
                ``(ii) behavioral and other therapeutic approaches;
                ``(iii) primary and preventative care;
                ``(iv) communication challenges;
                ``(v) aggression, self-injury, elopement, and other 
            behavioral issues;
                ``(vi) emergency room visits and acute care 
            hospitalization;
                ``(vii) treatment for co-occurring physical and mental 
            health conditions;
                ``(viii) premature mortality;
                ``(ix) medical practitioner training; and
                ``(x) caregiver mental health.''.
    (e) Authorization of Appropriations.--Section 399EE of the Public 
Health Service Act (42 U.S.C. 280i-4) is amended--
        (1) in subsection (a), by striking ``$22,000,000 for each of 
    fiscal years 2015 through 2019'' and inserting ``$23,100,000 for 
    each of fiscal years 2020 through 2024'';
        (2) in subsection (b), by striking ``$48,000,000 for each of 
    fiscal years 2015 through 2019'' and inserting ``$50,599,000 for 
    each of fiscal years 2020 through 2024''; and
        (3) in subsection (c), by striking ``there is authorized to be 
    appropriated $190,000,000 for each of fiscal years 2015 through 
    2019'' and inserting ``there are authorized to be appropriated 
    $296,000,000 for each of fiscal years 2020 through 2024''.

                               Speaker of the House of Representatives.

                            Vice President of the United States and    
                                               President of the Senate.