[Congressional Bills 115th Congress]
[From the U.S. Government Publishing Office]
[H. Con. Res. 58 Introduced in House (IH)]

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115th CONGRESS
  1st Session
H. CON. RES. 58

Expressing support for a month to be known as Cystic Fibrosis Awareness 
                     Month, and for other purposes.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                              May 19, 2017

   Mr. Marino (for himself and Mr. McGovern) submitted the following 
 concurrent resolution; which was referred to the Committee on Energy 
                              and Commerce

_______________________________________________________________________

                         CONCURRENT RESOLUTION


 
Expressing support for a month to be known as Cystic Fibrosis Awareness 
                     Month, and for other purposes.

Whereas cystic fibrosis, commonly referred to as ``CF'', is a genetic disease 
        affecting more than 30,000 children and adults in the United States and 
        nearly 75,000 children and adults worldwide;
Whereas a defective gene causes the body to produce an abnormally thick, sticky 
        mucus that clogs the lungs, and these secretions produce life-
        threatening lung infections and obstruct the pancreas, preventing 
        digestive enzymes from reaching the intestines to help break down and 
        absorb food;
Whereas there are approximately 900 new cases of CF each year in the United 
        States;
Whereas infant blood screening to detect genetic defects is the most reliable 
        and least costly method to identify individuals likely to have one of 
        1,800 different CF mutations;
Whereas early diagnosis of CF permits early treatment and enhances quality of 
        life, longevity, and treatment;
Whereas CF impacts families as well as patients because of the intense daily 
        disease management protocols patients must endure;
Whereas there are more than 120 world-class treatment centers with highly 
        trained and dedicated providers in the United States that specialize in 
        delivering high-quality, coordinated care for CF patients and their 
        families;
Whereas the number of adults with CF has steadily grown and the median age of 
        survival for a person with CF is now nearly 40 years of age in the 
        United States;
Whereas innovative precision medicines and treatments have greatly improved and 
        extended the lives of CF patients; and
Whereas May would be an appropriate month to establish as ``Cystic Fibrosis 
        Awareness Month'': Now, therefore, be it
    Resolved by the House of Representatives (the Senate concurring), 
That the House of Representatives--
            (1) supports the designation of ``Cystic Fibrosis Awareness 
        Month'';
            (2) congratulates the CF community for their unrelenting 
        dedication to patients;
            (3) recognizes that the CF care delivery system can be a 
        model for building better care coordination in the larger 
        health care system;
            (4) acknowledges the tremendous investment and scientific 
        achievements that have significantly improved CF patients' 
        lives;
            (5) urges researchers, developers, patients and providers 
        to do everything possible to find a cure for this deadly 
        disease; and
            (6) encourages the people of the United States to observe 
        ``Cystic Fibrosis Awareness Month'' with appropriate ceremonies 
        and activities that promote awareness of the disease.
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