[Congressional Bills 114th Congress]
[From the U.S. Government Publishing Office]
[S. 2060 Introduced in Senate (IS)]
<DOC>
114th CONGRESS
1st Session
S. 2060
To amend the Public Health Service Act to reauthorize and extend the
Fetal Alcohol Syndrome prevention and services program, and for other
purposes.
_______________________________________________________________________
IN THE SENATE OF THE UNITED STATES
September 17, 2015
Ms. Murkowski introduced the following bill; which was read twice and
referred to the Committee on Health, Education, Labor, and Pensions
_______________________________________________________________________
A BILL
To amend the Public Health Service Act to reauthorize and extend the
Fetal Alcohol Syndrome prevention and services program, and for other
purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Advancing FASD Research, Prevention,
and Services Act''.
SEC. 2. FINDINGS.
Congress makes the following findings:
(1) Fetal Alcohol Spectrum Disorders (FASD) are the
spectrum of serious, life-long disorders caused by prenatal
exposure to alcohol, which include Fetal Alcohol Syndrome,
Alcohol-Related Neurodevelopmental Disorder, and Alcohol-
Related Birth Defects.
(2) In the decades that have passed since Fetal Alcohol
Syndrome was first recognized in the United States, this fully
preventable condition has continued to affect American children
and families.
(3) Prenatal alcohol exposure can cause brain damage that
produces cognitive and behavioral impairments. Prenatal alcohol
exposure can cause intellectual disabilities or low IQ and
difficulties with learning, memory, attention, and problem
solving. It can also create problems with executive functioning
and adaptive behavior that impairs mental health and social
interaction. Prenatal alcohol exposure does not always result
in below average IQ or visible birth defects, which makes Fetal
Alcohol Spectrum Disorders difficult to identify, leading to
improper treatment or denial of support services.
(4) Prenatal alcohol exposure can cause growth retardation,
birth defects involving the heart, kidney, vision and hearing,
and a characteristic pattern of facial abnormalities. Prenatal
alcohol exposure also can result in secondary behavioral
characteristics that may include mental health disorders and
learning and behavioral problems, resulting in disrupted school
experience, trouble with the law, incarceration, inappropriate
sexual behavior, alcohol or drug problems, dependent living,
and problems with employment.
(5) According to the Substance Abuse and Mental Health
Services Administration, more than 1 in 5 women report drinking
alcohol in the first trimester of pregnancy, 1 in 14 in the
second trimester, and 1 in 20 in the third trimester, even
though there is no known safe level of alcohol consumption
during pregnancy.
(6) The incidence rate for all Fetal Alcohol Spectrum
Disorders is estimated in a publication of the National
Institute on Alcohol Abuse and Alcoholism to be about 10 out of
1,000 births (1 percent of births) or 40,000 newborns each
year. It is estimated that as many as 2 per 1,000, or 20
percent of alcohol exposed newborns, have Fetal Alcohol
Syndrome, the most serious and identifiable of the Fetal
Alcohol Spectrum Disorders.
(7) As measured by the Fetal Alcohol Syndrome Surveillance
Network, a partnership between the Centers for Disease Control
and Prevention and 5 different States, prevalence of Fetal
Alcohol Spectrum Disorders can be even higher in certain
populations, such as American Indians and Alaska Natives,
foster care children, adoptive children from the United States
and from countries where alcohol consumption is more prevalent,
and in certain areas, such as those characterized by low
socioeconomic status.
(8) Fetal Alcohol Spectrum Disorders pose extraordinary
financial costs to the Nation, including the cost of
specialized health care, education, foster care, incarceration,
job training, and general support services for individuals
affected by Fetal Alcohol Spectrum Disorders.
(9) Lifetime health costs for an individual with Fetal
Alcohol Syndrome ranges from $860,000 to $4,000,000. The cost
of Fetal Alcohol Syndrome in the United States is estimated to
be at least $6,000,000,000 in 2007. Total economic costs would
be even higher for all Fetal Alcohol Spectrum Disorders.
(10) There is a great need for research, surveillance,
prevention, treatment, and support services for individuals
with Fetal Alcohol Spectrum Disorders and their families.
(11) The National Institutes of Health, in coordination
with other Federal agencies, the Interagency Coordinating
Committee on Fetal Alcohol Syndrome, and the National Task
Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect, has
an opportunity to advance research on Fetal Alcohol Spectrum
Disorders in many areas, including the following:
(A) The identification of the mechanisms that
produce the cognitive and behavioral problems
associated with fetal alcohol exposure.
(B) The identification of a neurocognitive and
neurobehavioral phenotype for prenatal alcohol-related
conditions other than Fetal Alcohol Syndrome.
(C) The identification of biological markers that
can be used to indicate fetal alcohol exposure.
(D) The identification of fetal and maternal risk
factors that increase susceptibility to Fetal Alcohol
Spectrum Disorders.
(E) The investigation of behavioral and
pharmacotherapies for alcohol-dependent women to
determine new approaches for sustaining recovery.
(F) The development of scientific-based
pharmacologic and nutrient augmentation-based pre- and
post-natal interventions to antagonize or mitigate the
effects of prenatal alcohol exposure.
(G) The development of neurocognitive interventions
to address deficits in neurocognitive function for
individuals with Fetal Alcohol Spectrum Disorders.
(H) The development of standards for measuring,
reporting, and analyzing alcohol consumption patterns
in pregnant women.
(I) The development of enhanced technological
approaches for the diagnosis of Fetal Alcohol Spectrum
Disorders, including investigation of prenatal
ultrasound, non-invasive imaging, three-dimensional
facial feature imaging and their application in
telemedicine to aid in remote diagnosis.
(J) The evaluation of the role of alcohol in Sudden
Infant Death Syndrome (SIDS), unexplained stillbirth,
and premature birth.
(K) The collection and banking of biomaterials for
future analyses to aid in the identification of genetic
and other biological and environmental risk factors
contributing to the development of Fetal Alcohol
Spectrum Disorders.
(L) The identification of barriers to implementing
alcohol screening in primary care and obstetric
practice, and exploration of the acceptability of new
screening technologies, such as computer assisted
interviewing.
(M) The development of approaches for selected and
indicated prevention, to decrease the potential for
FASD births among the women at greatest risk for these
disorders.
SEC. 3. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS.
Section 399H of the Public Health Service Act (42 U.S.C. 280f) is
amended--
(1) by striking the section heading and inserting the
following: ``programs for fetal alcohol spectrum disorders.'';
(2) by redesignating subsections (a) through (d) as
subsections (h) through (k), respectively;
(3) by inserting after the section heading, the following:
``(a) Research on FAS and Related Disorders.--
``(1) In general.--The Secretary, acting through the
Director of the National Institutes of Health and in
coordination with the Interagency Coordinating Committee on
Fetal Alcohol Syndrome, shall--
``(A) establish a research agenda for Fetal Alcohol
Spectrum Disorders; and
``(B) award grants, contracts, or cooperative
agreements to public or private nonprofit entities to
pay all or part of carrying out research under such
agenda.
``(2) Types of research.--In carrying out paragraph (1),
the Secretary, acting through the Director of the National
Institute of Alcohol Abuse and Alcoholism, shall continue to
conduct and expand national and international research in
coordination with other Federal agencies that includes--
``(A) the most promising avenues of research in
Fetal Alcohol Spectrum Disorder diagnosis,
intervention, and prevention;
``(B) factors that may mitigate the effects of
fetal alcohol exposure; and
``(C) other research that the Director determines
to be appropriate.
``(3) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for each of fiscal years 2016
through 2020.
``(b) Surveillance, Public Health Research, and Prevention
Activities.--
``(1) In general.--The Secretary, acting through the
Director of the National Center on Birth Defects and
Developmental Disabilities, shall facilitate surveillance,
public health research, and prevention of Fetal Alcohol
Spectrum Disorders as provided for in this subsection.
``(2) Surveillance, public health research, and
prevention.--In carrying out this subsection, the Secretary
shall--
``(A) integrate into clinical practice the standard
case definition for diagnosis of Fetal Alcohol Syndrome
and, in collaboration with the National Institute on
Alcohol Abuse and Alcoholism, the Centers for Disease
Control and Prevention, researchers, and experts in the
field, develop a standard clinical case definition for
diagnostic guidelines and criteria for prenatal
alcohol-related conditions other than Fetal Alcohol
Syndrome;
``(B) conduct applied public health prevention
research to identify evidence-based strategies for
reducing alcohol-exposed pregnancies in women at high
risk for alcohol-exposed pregnancies;
``(C) disseminate and provide the necessary
training and support to implement evidence-based
strategies developed under subparagraph (A) to--
``(i) hospitals, federally qualified health
centers, outpatient programs, and other
appropriate health care providers;
``(ii) incarceration, detainment
facilities, and other judicial systems for
juveniles and adults;
``(iii) educational settings;
``(iv) social work and child welfare
offices;
``(v) foster care providers and adoption
agencies;
``(vi) State offices and others providing
services to individuals with disabilities;
``(vii) alcoholism treatment facilities;
and
``(viii) other entities that the Secretary
determines to be appropriate;
``(D) conduct activities related to risk factor
surveillance including the biannual monitoring and
reporting of alcohol consumption among pregnant women
and women of childbearing age; and
``(E) disseminate and evaluate brief behavioral
intervention strategies aimed at preventing alcohol-
exposed pregnancies among women of childbearing age in
special settings, including clinical primary health
centers, outpatient clinics, and jail and recovery
campuses.
``(3) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for each of fiscal years 2016
through 2020.
``(c) Building State FASD Systems.--
``(1) In general.--The Secretary, acting through the
Administrator of the Substance Abuse and Mental Health Services
Administration, shall award grants, contracts, or cooperative
agreements to States for the purpose of establishing or
expanding statewide programs of surveillance, prevention, and
clinical intervention for individuals with Fetal Alcohol
Spectrum Disorders.
``(2) Eligibility.--To be eligible to receive a grant,
contract, or cooperative agreement under paragraph (1) a State
shall--
``(A) prepare and submit to the Secretary an
application at such time, in such manner, and
containing such information as the Secretary may
reasonably require;
``(B) develop and implement a statewide strategic
plan for preventing Fetal Alcohol Spectrum Disorders
and clinical intervention for individuals with Fetal
Alcohol Spectrum Disorders;
``(C) consult with public and private non-profit
entities with relevant expertise on Fetal Alcohol
Spectrum Disorders within the State, including--
``(i) parent-led groups and other
organizations that support and advocate for
individuals with Fetal Alcohol Spectrum
Disorders; and
``(ii) Indian tribes and tribal
organizations; and
``(D) designate an individual to serve as the
coordinator of the State's Fetal Alcohol Spectrum
Disorders program.
``(3) Strategic plan.--The statewide strategic plan
prepared under paragraph (2)(B) shall include--
``(A) the identification of existing State programs
and systems that could be used to identify and assist
individuals with Fetal Alcohol Spectrum Disorders and
prevent alcohol consumption during pregnancy, such as--
``(i) programs for the developmentally
disabled, the mentally ill, and individuals
with alcohol dependency;
``(ii) educational settings;
``(iii) incarceration, detention centers,
and judicial systems for juveniles and adults;
``(iv) child welfare programs and social
service programs; and
``(v) other programs or systems the State
determines to be appropriate;
``(B) the identification of any barriers for
individuals with Fetal Alcohol Spectrum Disorders or
women at risk for alcohol consumption during pregnancy
to access the programs identified under subparagraph
(A); and
``(C) proposals to eliminate barriers to prevention
and treatment programs and coordinate the activities of
such programs.
``(4) Use of funds.--Amounts received under a grant,
contract, or cooperative agreement under paragraph (1) shall be
used for 1 or more of the following activities:
``(A) Establishing a statewide surveillance system.
``(B) Collecting, analyzing, and interpreting data.
``(C) Establishing a diagnostic center.
``(D) Developing, implementing, and evaluating
population-based and targeted prevention programs for
Fetal Alcohol Spectrum Disorders, including public
awareness campaigns.
``(E) Referring individuals with Fetal Alcohol
Spectrum Disorders to appropriate support services.
``(F) Implementing recommendations from relevant
agencies and organizations on the identification and
prevention of Fetal Alcohol Spectrum Disorders, and
clinical intervention for individuals with Fetal
Alcohol Spectrum Disorders.
``(G) Providing training to health care providers
on the prevention, identification, and treatment of
Fetal Alcohol Spectrum Disorders.
``(H) Disseminating information about Fetal Alcohol
Spectrum Disorders and the availability of support
services to families of individuals with Fetal Alcohol
Spectrum Disorders.
``(I) Other activities determined appropriate by
the Secretary.
``(5) Multi-state programs.--The Secretary shall permit the
formation of multi-State Fetal Alcohol Spectrum Disorders
programs under this subsection.
``(6) Other contracts and agreements.--A State may carry
out activities under paragraph (4) through contracts or
cooperative agreements with public and private non-profit
entities with a demonstrated expertise in Fetal Alcohol
Spectrum Disorders.
``(7) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for fiscal years 2016 through
2020.
``(d) Promoting Community Partnerships.--
``(1) In general.--The Secretary shall award grants,
contracts, or cooperative agreements to eligible entities to
enable such entities to establish, enhance, or improve
community partnerships for the purpose of collaborating on
common objectives and integrating the services available to
individuals with Fetal Alcohol Spectrum Disorders, such as
surveillance, prevention, treatment, and provision of support
services.
``(2) Eligible entities.--To be eligible to receive a
grant, contract, or cooperative agreement under paragraph (1),
an entity shall--
``(A) be a public or private nonprofit entity,
including--
``(i) a health care provider or health
professional;
``(ii) a primary or secondary school;
``(iii) a social work or child welfare
office;
``(iv) an incarceration, detainment
facility, or judicial systems for juveniles and
adults;
``(v) a parent-led group or other
organization that supports and advocates for
individuals with Fetal Alcohol Spectrum
Disorders;
``(vi) an Indian tribe or tribal
organization;
``(vii) any other entity the Secretary
determines to be appropriate; or
``(viii) a consortium of any of the
entities described in clauses (i) through
(vii); and
``(B) prepare and submit to the Secretary an
application at such time, in such manner, and
containing such information as the Secretary may
reasonably require, including assurances that the
entity submitting the application does, at the time of
application, or will, within a reasonable amount of
time from the date of application, include substantive
participation of a broad range of entities that work
with or provide services for individuals with Fetal
Alcohol Spectrum Disorders.
``(3) Activities.--An eligible entity shall use amounts
received under a grant, contract, or cooperative agreement
under this subsection shall carry out 1 or more of the
following activities:
``(A) Integrating Fetal Alcohol Spectrum Disorders
services into existing programs and services available
in the community.
``(B) Conducting a needs assessment to identify
services that are not available in a community.
``(C) Developing and implementing community-based
initiatives to prevent, diagnose, treat, and provide
support services to individuals with Fetal Alcohol
Spectrum Disorders.
``(D) Disseminating information about Fetal Alcohol
Spectrum Disorders and the availability of support
services.
``(E) Developing and implementing a community-wide
public awareness and outreach campaign focusing on the
dangers of drinking alcohol while pregnant.
``(F) Providing mentoring or other support to
families of individuals with Fetal Alcohol Spectrum
Disorders.
``(G) Other activities determined appropriate by
the Secretary.
``(4) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for each of fiscal years 2016
through 2020.
``(e) Development of Best Practices.--
``(1) In general.--The Secretary, in coordination with the
Administrator of the Substance Abuse and Mental Health Services
Administration, shall award grants to States, Indian tribes and
tribal organizations, and nongovernmental organizations for the
establishment of pilot projects to identify and implement best
practices for--
``(A) educating children with fetal alcohol
spectrum disorders, including--
``(i) activities and programs designed
specifically for the identification, treatment,
and education of such children; and
``(ii) curricula development and
credentialing of teachers, administrators, and
social workers who implement such programs;
``(B) educating judges, attorneys, probation
officers, child advocates, law enforcement officers,
prison wardens, alternative incarceration
administrators, and incarceration officials on how to
treat and support individuals suffering from Fetal
Alcohol Spectrum Disorders within the criminal justice
system, including--
``(i) programs designed specifically for
the identification, treatment, and education of
individuals with Fetal Alcohol Spectrum
Disorders; and
``(ii) curricula development and
credentialing within the justice system for
individuals who implement such programs; and
``(C) educating adoption or foster care agency
officials about available and necessary services for
children with Fetal Alcohol Spectrum Disorders,
including--
``(i) programs designed specifically for
the identification, treatment, and education of
individuals with Fetal Alcohol Spectrum
Disorders; and
``(ii) education and training for potential
parents of an adopted child with Fetal Alcohol
Spectrum Disorders.
``(2) Application.--To be eligible for a grant under
paragraph (1), an entity shall prepare and submit to the
Secretary an application at such time, in such manner, and
containing such information as the Secretary may reasonably
require.
``(3) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for each of fiscal years 2016
through 2020.
``(f) Transitional Services.--
``(1) In general.--The Secretary shall award demonstration
grants, contracts, and cooperative agreements to States, Indian
tribes and tribal organizations, and nongovernmental
organizations for the purpose of establishing integrated
systems for providing transitional services for those affected
by prenatal alcohol exposure and evaluating their
effectiveness.
``(2) Application.--To be eligible for a grant, contract,
or cooperative agreement under paragraph (1), an entity shall
prepare and submit to the Secretary an application at such
time, in such manner, and containing such information as the
Secretary may reasonably require, including specific
credentials relating to education, skills, training, and
continuing educational requirements relating to Fetal Alcohol
Spectrum Disorders.
``(3) Allowable uses.--An entity shall use amounts received
under a grant, contract, or cooperative agreement under
paragraph (1) to--
``(A) provide housing assistance to, or specialized
housing for, adults with Fetal Alcohol Spectrum
Disorders;
``(B) provide vocational training and placement
services for adults with Fetal Alcohol Spectrum
Disorders;
``(C) provide medication monitoring services for
adults with Fetal Alcohol Spectrum Disorders;
``(D) provide training and support to organizations
providing family services or mental health programs and
other organizations that work with adults with Fetal
Alcohol Spectrum Disorders; and
``(E) establish and evaluate housing models
specially designed for adults with Fetal Alcohol
Spectrum Disorders.
``(4) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for each of fiscal years 2016
through 2020.
``(g) Federally Qualified Health Center Initiative.--
``(1) In general.--The Secretary, acting through the
Administrator of the Health Resources and Services
Administration, shall award grants to federally qualified
health centers acting in collaboration with States, Indian
tribes, tribal organizations, and nongovernmental
organizations, for the establishment of a 5-year demonstration
program to implement and evaluate a program to increase the
awareness and identification of Fetal Alcohol Spectrum
Disorders in federally qualified health centers and to refer
affected individuals to appropriate support services.
``(2) Application.--To be eligible to receive a grant under
paragraph (1), a federally qualified health center, or a State,
Indian tribe, tribal organization, or nongovernmental
organization with a demonstrated record of implementing Fetal
Alcohol Spectrum Disorders programming in federally qualified
health centers, shall prepare and submit to the Administrator
an application at such time, in such manner, and containing
such information as the Administrator may reasonably require.
``(3) Activities.--A federally qualified health center, or
other eligible entity, shall use amounts received under a grant
under paragraph (1) to--
``(A) provide training for health care providers on
identifying and educating women who are at risk for
alcohol consumption during pregnancy;
``(B) provide training for health care providers on
screening children for Fetal Alcohol Spectrum
Disorders;
``(C) educate health care providers and other
relevant federally qualified health center workers on
the support services available for those with Fetal
Alcohol Spectrum Disorders and treatment services
available for women at risk for alcohol consumption
during pregnancy; and
``(D) implement a tracking system that can identify
the rates of Fetal Alcohol Spectrum Disorders by
racial, ethnic, and economic backgrounds.
``(4) Selection of participants.--The Administrator shall
determine the number of federally qualified health centers that
will participate in the demonstration program under this
subsection and shall select participants, to the extent
practicable, that are located in different regions of the
United States and that serve a racially and ethnically diverse
population.
``(5) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for each of fiscal years 2016
through 2020.
``(6) Report to congress.--Not later than 1 year after
completion of the demonstration program under this subsection,
the Administrator shall prepare and submit to Congress a report
on the results of the demonstration program, including--
``(A) changes in the number of women screened for
and identified as at risk for alcohol consumption
during pregnancy;
``(B) changes in the number of individuals
identified as having a Fetal Alcohol Spectrum Disorder;
and
``(C) changes in the number of alcohol-consuming
pregnant women and individuals with Fetal Alcohol
Spectrum Disorders who were referred to appropriate
services.'';
(4) in subsection (h)(1) (as so redesignated)--
(A) in subparagraph (C), by striking ``and'' after
the semicolon;
(B) in subparagraph (D), by adding ``and'' after
the semicolon; and
(C) by adding at the end the following:
``(E) national public service announcements to
raise public awareness of the risks associated with
alcohol consumption during pregnancy with the purpose
of reducing the prevalence of Fetal Alcohol Spectrum
Disorders, that shall--
``(i) be developed, conducted, and
evaluated prior to broadcast by relevant
Federal agencies with the advice of the
Interagency Coordinating Committee on Fetal
Alcohol Syndrome taking into consideration the
expertise and experience of other relevant
Federal agencies;
``(ii) be broadcast through appropriate
media outlets, including the Internet,
television or radio, in a manner intended to
reach women at risk of alcohol consumption
during pregnancy; and
``(iii) be measured prior to broadcast of
the national public service announcements to
provide baseline data that will be used to
evaluate the effectiveness of the
announcements.''; and
(5) in subsection (k) (as so redesignated)--
(A) in paragraph (1), by striking ``National Task
Force on Fetal Alcohol Syndrome and Fetal Alcohol
Effect'' and inserting ``National Task Force on Fetal
Alcohol Spectrum Disorders'';
(B) in paragraph (3)--
(i) in subparagraph (B), by striking
``and'' after the semicolon;
(ii) in subparagraph (C), by striking the
period and inserting a semicolon; and
(iii) by adding at the end the following:
``(D) explore the feasibility of whether Fetal
Alcohol Syndrome and other prenatal alcohol disorders,
or a subset of these disorders, should be included in
the Diagnostic and Statistic Manual of Mental
Disorders; and
``(E) in collaboration with the National Institute
on Alcohol Abuse and Alcoholism, the Centers for
Disease Control and Prevention, researchers, and
experts in the field, develop a standard clinical case
definition for diagnostic guideline and criteria for
prenatal alcohol-related conditions other than Fetal
Alcohol Syndrome.''; and
(C) by striking ``Fetal Alcohol Syndrome and Fetal
Alcohol Effect'' each place that such appears and
inserting ``Fetal Alcohol Spectrum Disorders''.
SEC. 4. COORDINATION AMONG FEDERAL ENTITIES.
Part O of title III of the Public Health Service Act (42 U.S.C.
280f et seq.) is amended by adding at the end the following:
``SEC. 399K-1. COORDINATION AMONG FEDERAL ENTITIES.
``(a) Interagency Coordinating Committee on Fetal Alcohol
Syndrome.--The Secretary, acting through the Director of the National
Institute on Alcohol Abuse and Alcoholism, shall provide for the
continuation of the Interagency Coordinating Committee on Fetal Alcohol
Syndrome so that such Committee may--
``(1) coordinate activities conducted by the Federal
Government on Fetal Alcohol Spectrum Disorders, including
convening meetings, establishing work groups, sharing
information, and facilitating and promoting collaborative
projects among Federal agencies; and
``(2) develop, in consultation with the National Task Force
on Fetal Alcohol Spectrum Disorders, priority areas for years
2016 through 2020 to guide Federal programs and activities
related to Fetal Alcohol Spectrum Disorders.
``(b) Coordination Among Federal Entities.--
``(1) In general.--The Comptroller General of the United
States shall evaluate and make recommendations regarding the
appropriate roles and responsibilities of Federal entities with
respect to programs and activities related to Fetal Alcohol
Spectrum Disorders.
``(2) Covered entities.--The Federal entities under
paragraph (1) shall include entities within the National
Institutes of Health, the Centers for Disease Control and
Prevention, the Substance Abuse and Mental Health Services
Administration, the Health Resources and Services
Administration, the Indian Health Service, the Agency for
Healthcare Research and Quality, the Interagency Coordinating
Committee on Fetal Alcohol Syndrome, the National Task Force on
Fetal Alcohol Spectrum Disorders, as well as the Office of
Special Education and Rehabilitative Services in the Department
of Education and the Office of Juvenile Justice and Delinquency
Prevention in the Department of Justice.
``(3) Evaluation.--The evaluation conducted by the
Comptroller General under paragraph (1) shall include--
``(A) an assessment of the current roles and
responsibilities of Federal entities with programs and
activities related to Fetal Alcohol Spectrum Disorders;
and
``(B) an assessment of whether there is duplication
in programs and activities, conflicting roles and
responsibilities, or lack of coordination among Federal
entities.
``(4) Recommendation.--The Comptroller General shall
provide recommendations on the appropriate roles and
responsibilities of the Federal entities described in paragraph
(2) in order to maximize the effectiveness of Federal programs
and activities related to Fetal Alcohol Spectrum Disorders.
``(5) Completion.--Not later than 1 year after the date of
enactment of the Advancing FASD Research, Prevention, and
Services Act, the Comptroller General shall complete the
evaluation and submit to Congress a report on the findings and
recommendations made as a result of the evaluation.''.
SEC. 5. SERVICES FOR INDIVIDUALS WITH FETAL ALCOHOL SPECTRUM DISORDERS.
Section 519C(b) of the Public Health Service Act (42 U.S.C. 290bb-
25c(b)) is amended--
(1) in paragraph (11), by striking ``and'' after the
semicolon;
(2) by redesignating paragraph (12) as paragraph (15); and
(3) by inserting after paragraph (11), the following:
``(12) provide respite care for caretakers of individuals
with Fetal Alcohol Syndrome and other prenatal alcohol-related
disorders;
``(13) recruit and train mentors for individuals with Fetal
Alcohol Syndrome and other prenatal alcohol-related disorders;
``(14) provide educational and supportive services to
families of individuals with Fetal Alcohol Spectrum Disorders;
and''.
SEC. 6. PREVENTION, INTERVENTION, AND SERVICES IN THE EDUCATION SYSTEM.
(a) General Rule.--The Secretary of Education shall be the lead
Federal official with responsibility over education-related issues with
respect to children with Fetal Alcohol Spectrum Disorders.
(b) Specific Responsibilities.--The Secretary of Education shall
direct the Office of Special Education and Rehabilitative Services to--
(1) conduct and disseminate training on a nationwide Fetal
Alcohol Spectrum Disorders surveillance campaign to local
education agencies and early childhood education providers in
collaboration with the National Center on Birth Defects and
Developmental Disabilities under section 399H(b) of the Public
Health Service Act (as added by this Act);
(2) collect, collate, and disseminate (through the Internet
Web site of the Department of Education, at teacher-to-teacher
workshops, and through other means) evidence-based practices
that are effective in the education and support of children
with Fetal Alcohol Syndrome Disorders, including any special
techniques on how to assist children with Fetal Alcohol
Spectrum Disorders, in both special and traditional educational
settings, such practices to incorporate information concerning
the identification, behavioral supports, teaching, and learning
associated with Fetal Alcohol Spectrum Disorders, to--
(A) education groups such as the National
Association of School Boards, the National Education
Association, the American Federation of Teachers, the
National Association of Elementary School Principals,
and the National Association of Secondary School
Principals;
(B) 21st Century Community Learning Center program
grantees and other after school program personnel; and
(C) Parent Teacher Associations, Parent Information
and Training Centers, family aid programs, and other
appropriate education organizations;
(3) ensure that, in administering the Individuals with
Disabilities Education Act, parents, educators, and advocates
for children with disabilities are aware that children with
Fetal Alcohol Spectrum Disorders have the right to access
general curriculum under the least restrictive environment;
(4) collaborate with other Federal agencies to include
Fetal Alcohol Spectrum Disorders-related information or
activities in programs related to maternal health, health
education, and sex education;
(5) collaborate with the Secretary of Health and Human
Services to ensure that Fetal Alcohol Spectrum Disorders
prevention grants under section 399H of the Public Health
Service Act include education concerning Fetal Alcohol Spectrum
Disorders in the sexual and health education curricula of
schools; and
(6) support efforts by peer advisory networks of
adolescents in schools organized to discourage the use of
alcohol while pregnant or considering getting pregnant.
SEC. 7. PREVENTION, INTERVENTION, AND SERVICES IN THE JUSTICE SYSTEM.
The Attorney General shall direct the Office of Juvenile Justice
and Delinquency Prevention to--
(1) implement screening procedures and conduct training on
a nationwide Fetal Alcohol Spectrum Disorders surveillance
campaign for the Department of Justice in collaboration with
the efforts of the National Center on Birth Defects and
Developmental Disabilities under section 399H(b) of the Public
Health Service Act (as added by this Act);
(2) introduce training curricula on how to most effectively
identify and interact with individuals with Fetal Alcohol
Spectrum Disorders in both the juvenile and adult justice
systems, and investigate incorporating information about the
identification, prevention, and treatment of the disorders into
justice professionals' credentialing requirements;
(3) promote the tracking of individuals entering the
juvenile justice system with at-risk backgrounds that indicates
them as high probability for having a Fetal Alcohol Spectrum
Disorder, especially those individuals whose mothers have a
record of heavy or binge drinking during pregnancy as reported
by the appropriate child protection agency;
(4) educate judges, attorneys, probation officers, child
advocates, law enforcement officers, prison wardens,
alternative incarceration administrators, and incarceration
officials on how to treat and support individuals suffering
from Fetal Alcohol Spectrum Disorders within the juvenile and
adult justice systems, including--
(A) programs designed specifically for the
identification, treatment, and education of such
children; and
(B) curricula development and credentialing of
teachers, administrators, and social workers who
implement such programs;
(5) conduct a study on the inadequacies of how the current
system processes children with certain developmental delays and
subsequently implement alternative methods of incarceration and
treatment that are more effective for youth offenders
identified to have a Fetal Alcohol Spectrum Disorder; and
(6) collaborate with Fetal Alcohol Spectrum Disorders
professionals and implement transition programs for juveniles
and adults with Fetal Alcohol Spectrum Disorders who are
released from incarceration.
SEC. 8. MISCELLANEOUS PROVISIONS.
(a) Authorization of Appropriations.--Section 399J of the Public
Health Service Act (42 U.S.C. 280f-2) is amended by striking ``this
part'' and all that follows through the period and inserting
``subsections (h) through (k) of section 399H, $27,000,000 for each of
fiscal years 2016 through 2020''.
(b) Repeal of Sunset.--Section 399K of the Public Health Service
Act (42 U.S.C. 280f-3) is repealed.
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