[Congressional Bills 114th Congress]
[From the U.S. Government Publishing Office]
[S. 1719 Reported in Senate (RS)]

<DOC>





                                                       Calendar No. 306
114th CONGRESS
  1st Session
                                S. 1719

 To provide for the establishment and maintenance of a National Family 
              Caregiving Strategy, and for other purposes.


_______________________________________________________________________


                   IN THE SENATE OF THE UNITED STATES

                              July 8, 2015

  Ms. Collins (for herself, Ms. Baldwin, Ms. Ayotte, Mr. Bennet, Ms. 
  Mikulski, Ms. Klobuchar, Mrs. Capito, Mr. Coons, Ms. Murkowski, Mr. 
  Toomey, Mr. Franken, and Mr. Murphy) introduced the following bill; 
     which was read twice and referred to the Committee on Health, 
                     Education, Labor, and Pensions

                            December 1, 2015

              Reported by Mr. Alexander, with an amendment
 [Strike out all after the enacting clause and insert the part printed 
                               in italic]

_______________________________________________________________________

                                 A BILL


 
 To provide for the establishment and maintenance of a National Family 
              Caregiving Strategy, and for other purposes.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

<DELETED>SECTION 1. SHORT TITLE.</DELETED>

<DELETED>    This Act may be cited as the ``Recognize, Assist, Include, 
Support, and Engage Family Caregivers Act of 2015'' or the ``RAISE 
Family Caregivers Act''.</DELETED>

<DELETED>SEC. 2. DEFINITIONS.</DELETED>

<DELETED>    In this Act:</DELETED>
        <DELETED>    (1) Advisory council.--The term ``Advisory 
        Council'' means the Family Caregiving Advisory Council convened 
        under section 4.</DELETED>
        <DELETED>    (2) Family caregiver.--The term ``family 
        caregiver'' means a relative, partner, friend, or neighbor who 
        has a significant relationship with, and who provides a broad 
        range of assistance for, a person with a chronic or other 
        health condition, disability, or functional 
        limitation.</DELETED>
        <DELETED>    (3) Secretary.--The term ``Secretary'' means the 
        Secretary of Health and Human Services.</DELETED>
        <DELETED>    (4) Strategy.--The term ``Strategy'' means the 
        National Family Caregiving Strategy established, maintained, 
        and updated under section 3.</DELETED>

<DELETED>SEC. 3. NATIONAL FAMILY CAREGIVING STRATEGY.</DELETED>

<DELETED>    (a) In General.--The Secretary, in consultation with the 
heads of other appropriate Federal agencies, shall develop, maintain, 
and periodically update a National Family Caregiving 
Strategy.</DELETED>
<DELETED>    (b) Contents.--The Strategy shall identify specific 
actions that Federal, State, and local governments, communities, health 
care, long-term services and supports and other providers, employers, 
and others can take to recognize and support family caregivers in a 
culturally competent manner, including with respect to the 
following:</DELETED>
        <DELETED>    (1) Promoting greater adoption of person- and 
        family-centered care in all health and long-term services and 
        supports settings, with the person receiving services and 
        supports and the family caregiver (as appropriate) at the 
        center of care teams.</DELETED>
        <DELETED>    (2) Assessment and service planning (including 
        care transitions and coordination) involving family caregivers 
        and care recipients.</DELETED>
        <DELETED>    (3) Training and other supports.</DELETED>
        <DELETED>    (4) Information, education, referral, and care 
        coordination, including hospice, palliative care, and advance 
        planning services.</DELETED>
        <DELETED>    (5) Respite options.</DELETED>
        <DELETED>    (6) Financial security.</DELETED>
        <DELETED>    (7) Workplace policies and supports that allow 
        family caregivers to remain in the workforce.</DELETED>
<DELETED>    (c) Responsibilities of the Secretary.--The Secretary, in 
carrying out this section, shall be responsible for the 
following:</DELETED>
        <DELETED>    (1) Collecting and making publically available 
        information, including evidence-based or promising practices 
        and innovative models (both domestically and internationally) 
        regarding the provision of care by family caregivers or support 
        for family caregivers.</DELETED>
        <DELETED>    (2) Coordinating Federal Government programs and 
        activities to recognize and support family caregivers while 
        ensuring maximum effectiveness and avoiding unnecessary 
        duplication.</DELETED>
        <DELETED>    (3) Providing technical assistance, such as best 
        practices and information sharing, to State or local efforts, 
        as appropriate, to support family caregivers.</DELETED>
        <DELETED>    (4) Addressing disparities in recognizing and 
        supporting family caregivers and meeting the needs of the 
        diverse family caregiving population.</DELETED>
        <DELETED>    (5) Assessing all Federal programs regarding 
        family caregivers, including with respect to funding 
        levels.</DELETED>
<DELETED>    (d) Initial Strategy; Updates.--The Secretary shall--
</DELETED>
        <DELETED>    (1) not later than 18 months after the date of 
        enactment of this Act, develop, publish, and submit to Congress 
        the initial Strategy incorporating the items addressed in the 
        Advisory Council's report in section 4(d)(2) and other priority 
        actions for recognizing and supporting family caregivers; 
        and</DELETED>
        <DELETED>    (2) not less than annually, update, republish, and 
        submit to Congress the Strategy, taking into account the most 
        recent annual report submitted under section 4(d)(1)--
        </DELETED>
                <DELETED>    (A) to reflect new developments, 
                challenges, opportunities, and solutions; and</DELETED>
                <DELETED>    (B) to assess progress in implementation 
                of the Strategy and, based on the results of such 
                assessment, recommend priority actions for such 
                implementation.</DELETED>
<DELETED>    (e) Process for Public Input.--The Secretary shall 
establish a process for public input to inform the development of, and 
updates to, the Strategy, including a process for the public to submit 
recommendations to the Advisory Council and an opportunity for public 
comment on the proposed Strategy.</DELETED>
<DELETED>    (f) No Preemption.--Nothing in this Act preempts any 
authority of a State or local government to recognize or support family 
caregivers.</DELETED>

<DELETED>SEC. 4. FAMILY CAREGIVING ADVISORY COUNCIL.</DELETED>

<DELETED>    (a) Convening.--The Secretary shall convene a Family 
Caregiving Advisory Council to provide advice to the Secretary on 
recognizing and supporting family caregivers.</DELETED>
<DELETED>    (b) Membership.--</DELETED>
        <DELETED>    (1) In general.--The members of the Advisory 
        Council shall consist of--</DELETED>
                <DELETED>    (A) the Federal members under paragraph 
                (2); and</DELETED>
                <DELETED>    (B) the appointed members under paragraph 
                (3).</DELETED>
        <DELETED>    (2) Federal members.--The Federal members of the 
        Advisory Council shall consist of the following:</DELETED>
                <DELETED>    (A) The Administrator of the Centers for 
                Medicare & Medicaid Services (or the Administrator's 
                designee).</DELETED>
                <DELETED>    (B) The Administrator of the 
                Administration for Community Living (or the 
                Administrator's designee who has experience in both 
                aging and disability).</DELETED>
                <DELETED>    (C) The Assistant Secretary for the 
                Administration for Children and Families (or the 
                Assistant Secretary's designee).</DELETED>
                <DELETED>    (D) The Secretary of Veterans Affairs (or 
                the Secretary's designee).</DELETED>
                <DELETED>    (E) The Secretary of Labor (or the 
                Secretary's designee).</DELETED>
                <DELETED>    (F) The Secretary of the Treasury (or the 
                Secretary's designee).</DELETED>
                <DELETED>    (G) The National Coordinator for Health 
                Information Technology (or the National Coordinator's 
                designee).</DELETED>
                <DELETED>    (H) The heads of other Federal departments 
                or agencies (or their designees), as appointed by the 
                President or the Chair of the Advisory 
                Council.</DELETED>
        <DELETED>    (3) Appointed members.--In addition to the Federal 
        members under paragraph (2), the Secretary shall appoint not 
        more than 15 members of the Advisory Council who are not 
        representatives of Federal departments or agencies and who 
        shall include at least one representative of each of the 
        following:</DELETED>
                <DELETED>    (A) Family caregivers.</DELETED>
                <DELETED>    (B) Older adults with long-term services 
                and supports needs, including older adults facing 
                disparities.</DELETED>
                <DELETED>    (C) Individuals with 
                disabilities.</DELETED>
                <DELETED>    (D) Advocates for family caregivers, older 
                adults with long-term services and supports needs, and 
                individuals with disabilities.</DELETED>
                <DELETED>    (E) Health care and social service 
                providers.</DELETED>
                <DELETED>    (F) Long-term services and supports 
                providers.</DELETED>
                <DELETED>    (G) Employers.</DELETED>
                <DELETED>    (H) Direct care workers or advocates for 
                such workers.</DELETED>
                <DELETED>    (I) State and local officials.</DELETED>
                <DELETED>    (J) Accreditation bodies.</DELETED>
                <DELETED>    (K) Relevant industries.</DELETED>
                <DELETED>    (L) Veterans.</DELETED>
                <DELETED>    (M) As appropriate, other experts in 
                family caregiving.</DELETED>
        <DELETED>    (4) Diverse representation.--The Secretary shall 
        ensure that the membership of the Advisory Council reflects the 
        diversity of--</DELETED>
                <DELETED>    (A) the overall population; and</DELETED>
                <DELETED>    (B) family caregivers.</DELETED>
<DELETED>    (c) Meetings.--The Advisory Council shall meet quarterly. 
Meetings of the Advisory Council shall be open to the public.</DELETED>
<DELETED>    (d) Advisory Council Annual Reports.--</DELETED>
        <DELETED>    (1) In general.--Not later than 15 months after 
        the date of enactment of this Act, and annually thereafter, the 
        Advisory Council shall submit to the Secretary and Congress a 
        report concerning the development, maintenance, and updating of 
        the Strategy and the implementation thereof, including a 
        description of the outcomes of the recommendations and 
        priorities under paragraph (2), as appropriate. Such report 
        shall be made publically available by the Advisory 
        Council.</DELETED>
        <DELETED>    (2) Initial report.--The Advisory Council's 
        initial report under paragraph (1) shall include--</DELETED>
                <DELETED>    (A) an inventory and assessment of all 
                federally funded efforts to recognize and support 
                family caregivers and the outcomes of such efforts, 
                including analyses of the extent to which federally 
                funded efforts are reaching family caregivers and gaps 
                in such efforts;</DELETED>
                <DELETED>    (B) recommendations for priority actions--
                </DELETED>
                        <DELETED>    (i) to improve and better 
                        coordinate programs; and</DELETED>
                        <DELETED>    (ii) to deliver services based on 
                        the performance, mission, and purpose of a 
                        program while eliminating redundancies and 
                        ensuring the needs of family caregivers are 
                        met;</DELETED>
                <DELETED>    (C) recommendations to reduce the 
                financial impact and other challenges of caregiving on 
                family caregivers; and</DELETED>
                <DELETED>    (D) an evaluation of how family caregiving 
                impacts the Medicare program, and Medicaid program, and 
                other Federal programs.</DELETED>

<DELETED>SEC. 5. SHARING OF DATA.</DELETED>

<DELETED>    The heads of Federal departments and agencies, as 
appropriate, shall share with the Secretary any data that is--
</DELETED>
        <DELETED>    (1) maintained by the respective department or 
        agency; and</DELETED>
        <DELETED>    (2) needed by the Secretary to prepare the initial 
        and updated Strategies under section 3(d).</DELETED>

<DELETED>SEC. 6. SUNSET PROVISION.</DELETED>

<DELETED>    The authority and obligations established by this Act 
shall terminate on December 31, 2030.</DELETED>

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Recognize, Assist, Include, Support, 
and Engage Family Caregivers Act of 2015'' or the ``RAISE Family 
Caregivers Act''.

SEC. 2. DEFINITIONS.

    In this Act:
            (1) Advisory council.--The term ``Advisory Council'' means 
        the Family Caregiving Advisory Council convened under section 
        4.
            (2) Family caregiver.--The term ``family caregiver'' means 
        an adult family member or other individual who has a 
        significant relationship with, and who provides a broad range 
        of assistance to, an individual with a chronic or other health 
        condition, disability, or functional limitation.
            (3) Secretary.--The term ``Secretary'' means the Secretary 
        of Health and Human Services.
            (4) Strategy.--The term ``Strategy'' means the National 
        Family Caregiving Strategy established, maintained, and updated 
        under section 3.

SEC. 3. NATIONAL FAMILY CAREGIVING STRATEGY.

    (a) In General.--The Secretary, in consultation with the heads of 
other appropriate Federal agencies, shall develop, maintain, and 
periodically update a National Family Caregiving Strategy.
    (b) Contents.--The Strategy shall identify specific actions that 
Federal, State, and local governments, communities, health care, long-
term services and supports and other providers, employers, and others 
can take to recognize and support family caregivers in a manner that 
reflects their diverse needs, including with respect to the following:
            (1) Promoting greater adoption of person- and family-
        centered care in all health and long-term services and supports 
        settings, with the person receiving services and supports and 
        the family caregiver (as appropriate) at the center of care 
        teams.
            (2) Assessment and service planning (including care 
        transitions and coordination) involving family caregivers and 
        care recipients.
            (3) Training and other supports.
            (4) Information, education, referral, and care 
        coordination, including hospice, palliative care, and advance 
        planning services.
            (5) Respite options.
            (6) Financial security.
            (7) Workplace policies and supports that allow family 
        caregivers to remain in the workforce.
    (c) Responsibilities of the Secretary.--The Secretary, in carrying 
out this section, shall be responsible for the following:
            (1) Collecting and making publicly available information, 
        including evidence-based or promising practices and innovative 
        models (both domestically and internationally) regarding the 
        provision of care by family caregivers or support for family 
        caregivers.
            (2) Coordinating Federal Government programs and activities 
        to recognize and support family caregivers while ensuring 
        maximum effectiveness and avoiding unnecessary duplication.
            (3) Providing technical assistance, such as best practices 
        and information sharing, to State or local efforts, as 
        appropriate, to support family caregivers.
            (4) Addressing disparities in recognizing and supporting 
        family caregivers and meeting the needs of the diverse family 
        caregiving population.
            (5) Assessing all Federal programs regarding family 
        caregivers, including with respect to funding levels.
    (d) Initial Strategy; Updates.--The Secretary shall--
            (1) not later than 18 months after the date of enactment of 
        this Act, develop, publish, and submit to Congress the initial 
        Strategy incorporating the items addressed in the Advisory 
        Council's report in section 4(d)(2) and other priority actions 
        for recognizing and supporting family caregivers; and
            (2) not less than every 2 years, update, republish, and 
        submit to Congress the Strategy, taking into account the most 
        recent annual report submitted under section 4(d)(1)--
                    (A) to reflect new developments, challenges, 
                opportunities, and solutions; and
                    (B) to assess progress in implementation of the 
                Strategy and, based on the results of such assessment, 
                recommend priority actions for such implementation.
    (e) Process for Public Input.--The Secretary shall establish a 
process for public input to inform the development of, and updates to, 
the Strategy, including a process for the public to submit 
recommendations to the Advisory Council and an opportunity for public 
comment on the proposed Strategy.
    (f) No Preemption.--Nothing in this Act preempts any authority of a 
State or local government to recognize or support family caregivers.

SEC. 4. FAMILY CAREGIVING ADVISORY COUNCIL.

    (a) Convening.--The Secretary shall convene a Family Caregiving 
Advisory Council to provide advice to the Secretary on recognizing and 
supporting family caregivers.
    (b) Membership.--
            (1) In general.--The members of the Advisory Council shall 
        consist of--
                    (A) the appointed members under paragraph (2); and
                    (B) the Federal members under paragraph (3).
            (2) Appointed members.--In addition to the Federal members 
        under paragraph (3), the Secretary shall appoint not more than 
        15 members of the Advisory Council who are not representatives 
        of Federal departments or agencies and who shall include at 
        least one representative of each of the following:
                    (A) Family caregivers.
                    (B) Older adults with long-term services and 
                supports needs, including older adults facing 
                disparities.
                    (C) Individuals with disabilities.
                    (D) Advocates for family caregivers, older adults 
                with long-term services and supports needs, and 
                individuals with disabilities.
                    (E) Health care and social service providers.
                    (F) Long-term services and supports providers.
                    (G) Employers.
                    (H) Paraprofessional workers.
                    (I) State and local officials.
                    (J) Accreditation bodies.
                    (K) Relevant industries.
                    (L) Veterans.
                    (M) As appropriate, other experts in family 
                caregiving.
            (3) Federal members.--The Federal members of the Advisory 
        Council, who shall be nonvoting members, shall consist of the 
        following:
                    (A) The Administrator of the Centers for Medicare & 
                Medicaid Services (or the Administrator's designee).
                    (B) The Administrator of the Administration for 
                Community Living (or the Administrator's designee who 
                has experience in both aging and disability).
                    (C) The Assistant Secretary for the Administration 
                for Children and Families (or the Assistant Secretary's 
                designee).
                    (D) The Secretary of Veterans Affairs (or the 
                Secretary's designee).
                    (E) The Secretary of Labor (or the Secretary's 
                designee).
                    (F) The Secretary of the Treasury (or the 
                Secretary's designee).
                    (G) The National Coordinator for Health Information 
                Technology (or the National Coordinator's designee).
                    (H) The Administrator of the Small Business 
                Administration (or the Administrator's designee).
                    (I) The Chief Executive Officer of the Corporation 
                for National and Community Service (or the Chief 
                Executive Officer's designee).
                    (J) The heads of other Federal departments or 
                agencies (or their designees), as appointed by the 
                Secretary or the Chair of the Advisory Council.
            (4) Diverse representation.--The Secretary shall ensure 
        that the membership of the Advisory Council reflects the 
        diversity of family caregivers and individuals receiving 
        services and supports.
    (c) Meetings.--The Advisory Council shall meet quarterly during the 
1-year period beginning on the date of enactment of this Act and at 
least three times during each year thereafter. Meetings of the Advisory 
Council shall be open to the public.
    (d) Advisory Council Annual Reports.--
            (1) In general.--Not later than 12 months after the date of 
        enactment of this Act, and annually thereafter, the Advisory 
        Council shall submit to the Secretary and Congress a report 
        concerning the development, maintenance, and updating of the 
        Strategy and the implementation thereof, including a 
        description of the outcomes of the recommendations and 
        priorities under paragraph (2), as appropriate. Such report 
        shall be made publicly available by the Advisory Council.
            (2) Initial report.--The Advisory Council's initial report 
        under paragraph (1) shall include--
                    (A) an inventory and assessment of all federally 
                funded efforts to recognize and support family 
                caregivers and the outcomes of such efforts, including 
                analyses of the extent to which federally funded 
                efforts are reaching family caregivers and gaps in such 
                efforts;
                    (B) recommendations for priority actions--
                            (i) to improve and better coordinate 
                        programs; and
                            (ii) to deliver services based on the 
                        performance, mission, and purpose of a program 
                        while eliminating redundancies and ensuring the 
                        needs of family caregivers are met;
                    (C) recommendations to reduce the financial impact 
                and other challenges of caregiving on family 
                caregivers; and
                    (D) an evaluation of how family caregiving impacts 
                the Medicare program, and Medicaid program, and other 
                Federal programs.
    (e) Nonapplicability of FACA.--The Federal Advisory Committee Act 
(5 U.S.C. App.) shall not apply to the Advisory Council.

SEC. 5. SUNSET PROVISION.

    The authority and obligations established by this Act shall 
terminate on December 31, 2025.
                                                       Calendar No. 306

114th CONGRESS

  1st Session

                                S. 1719

_______________________________________________________________________

                                 A BILL

 To provide for the establishment and maintenance of a National Family 
              Caregiving Strategy, and for other purposes.

_______________________________________________________________________

                            December 1, 2015

                       Reported with an amendment