[Congressional Bills 113th Congress]
[From the U.S. Government Publishing Office]
[H.R. 4631 Enrolled Bill (ENR)]
H.R.4631
One Hundred Thirteenth Congress
of the
United States of America
AT THE SECOND SESSION
Begun and held at the City of Washington on Friday,
the third day of January, two thousand and fourteen
An Act
To reauthorize certain provisions of the Public Health Service Act
relating to autism, and for other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Autism Collaboration,
Accountability, Research, Education, and Support Act of 2014'' or the
``Autism CARES Act of 2014''.
SEC. 2. NATIONAL AUTISM SPECTRUM DISORDER INITIATIVE.
(a) In General.--The Secretary of Health and Human Services shall
designate an existing official within the Department of Health and
Human Services to oversee, in consultation with the Secretaries of
Defense and Education, national autism spectrum disorder research,
services, and support activities.
(b) Duties.--The official designated under subsection (a) shall--
(1) implement autism spectrum disorder activities, taking into
account the strategic plan developed by the Interagency Autism
Coordinating Committee under section 399CC(b) of the Public Health
Service Act (42 U.S.C. 280i-2(b)); and
(2) ensure that autism spectrum disorder activities of the
Department of Health and Human Services and of other Federal
departments and agencies are not unnecessarily duplicative.
SEC. 3. RESEARCH PROGRAM.
Section 399AA of the Public Health Service Act (42 U.S.C. 280i) is
amended--
(1) in subsection (a)(1), by inserting ``for children and
adults'' after ``reporting of State epidemiological data'';
(2) in subsection (b)(1)--
(A) by striking ``establishment of regional centers of
excellence'' and inserting ``establishment or support of
regional centers of excellence''; and
(B) by inserting ``for children and adults'' before the
period at the end;
(3) in subsection (b)(2), by striking ``center to be
established'' and inserting ``center to be established or
supported''; and
(4) in subsection (e), by striking ``2014'' and inserting
``2019''.
SEC. 4. AUTISM INTERVENTION.
Section 399BB of the Public Health Service Act (42 U.S.C. 280i-1)
is amended--
(1) in subsection (b)(1), by inserting ``culturally competent''
after ``provide'';
(2) in subsection (c)(2)(A)(ii), by inserting ``(which may
include respite care for caregivers of individuals with an autism
spectrum disorder)'' after ``services and supports'';
(3) in subsection (e)(1)(B)(v), by inserting before the
semicolon the following: ``, which may include collaborating with
research centers or networks to provide training for providers of
respite care (as defined in section 2901)'';
(4) in subsection (f), by striking ``grants or contracts'' and
all that follows through ``for individuals with'' and inserting
``grants or contracts, which may include grants or contracts to
research centers or networks, to determine the evidence-based
practices for interventions to improve the physical and behavioral
health of individuals with''; and
(5) in subsection (g), by striking ``2014'' and inserting
``2019''.
SEC. 5. INTERAGENCY AUTISM COORDINATING COMMITTEE.
Section 399CC of the Public Health Service Act (42 U.S.C. 280i-2)
is amended--
(1) in subsection (b)--
(A) in paragraph (1)--
(i) by striking ``and annually update''; and
(ii) by striking ``intervention'' and inserting
``interventions, including school and community-based
interventions'';
(B) by striking paragraph (2);
(C) by redesignating paragraph (1) as paragraph (2), and
inserting before such redesignated paragraph the following:
``(1) monitor autism spectrum disorder research, and to the
extent practicable services and support activities, across all
relevant Federal departments and agencies, including coordination
of Federal activities with respect to autism spectrum disorder;'';
(D) in paragraph (3), by striking ``recommendations to the
Director of NIH'';
(E) in paragraph (4), by inserting before the semicolon the
following: ``, and the process by which public feedback can be
better integrated into such decisions''; and
(F) by striking paragraphs (5) and (6) and inserting the
following:
``(5) develop a strategic plan for the conduct of, and support
for, autism spectrum disorder research, including as practicable
for services and supports, for individuals with an autism spectrum
disorder and the families of such individuals, which shall
include--
``(A) proposed budgetary requirements; and
``(B) recommendations to ensure that autism spectrum
disorder research, and services and support activities to the
extent practicable, of the Department of Health and Human
Services and of other Federal departments and agencies are not
unnecessarily duplicative; and
``(6) submit to Congress and the President--
``(A) an annual update on the summary of advances described
in paragraph (2); and
``(B) an annual update to the strategic plan described in
paragraph (5), including any progress made in achieving the
goals outlined in such strategic plan.'';
(2) in subsection (c)--
(A) in paragraph (1)--
(i) by striking the paragraph designation, the heading,
and the matter preceding subparagraph (A) and inserting the
following:
``(1) Federal membership.--The Committee shall be composed of
the following Federal members--'';
(ii) in subparagraph (C)--
(I) by inserting ``, such as the Administration for
Community Living, Administration for Children and
Families, the Centers for Medicare & Medicaid Services,
the Food and Drug Administration, and the Health
Resources and Services Administration'' before the
semicolon at the end; and
(II) by adding at the end ``and'';
(iii) in subparagraph (D)--
(I) by inserting ``and the Department of Defense''
after ``Department of Education''; and
(II) by striking at the end ``; and'' and inserting
a period; and
(iv) by striking subparagraph (E);
(B) in paragraph (2)--
(i) in the paragraph heading, by striking
``Additional'' and inserting ``Non-federal'';
(ii) in the matter preceding subparagraph (A), by
striking ``Not fewer than 6 members of the Committee, or
\1/3\ of the total membership of the Committee, whichever
is greater'' and inserting ``Not more than \1/2\, but not
fewer than \1/3\, of the total membership of the
Committee'';
(iii) in subparagraph (A), by striking ``one such
member shall be an individual'' and inserting ``two such
members shall be individuals'';
(iv) in subparagraph (B), by striking ``one such member
shall be a parent or legal guardian'' and inserting ``two
such members shall be parents or legal guardians''; and
(v) in subparagraph (C), by striking ``one such member
shall be a representative'' and inserting ``two such
members shall be representatives''; and
(C) by adding at the end the following:
``(3) Period of appointment; vacancies.--
``(A) Period of appointment for non-federal members.--Non-
Federal members shall serve for a term of 4 years, and may be
reappointed for one or more additional 4-year terms.
``(B) Vacancies.--A vacancy on the Committee shall be
filled in the manner in which the original appointment was made
and shall not affect the powers or duties of the Committee. Any
member appointed to fill a vacancy for an unexpired term shall
be appointed for the remainder of such term. A member may serve
after the expiration of the member's term until a successor has
been appointed.'';
(3) in subsection (d)--
(A) by striking paragraph (2); and
(B) by redesignating paragraphs (3) and (4) as paragraphs
(2) and (3), respectively; and
(4) in subsection (f), by striking ``2014'' and inserting
``2019''.
SEC. 6. REPORTS.
Section 399DD of the Public Health Service Act (42 U.S.C. 280i-3)
is amended--
(1) in the section heading, by striking ``report'' and
inserting ``reports'';
(2) in subsection (b), by redesignating paragraphs (1) through
(9) as subparagraphs (A) through (I), respectively, and realigning
the margins accordingly;
(3) by redesignating subsections (a) and (b) as paragraphs (1)
and (2), respectively, and realigning the margins accordingly;
(4) by inserting after the section heading the following:
``(a) Progress Report.--'';
(5) in subsection (a)(1) (as so redesignated)--
(A) by striking ``2 years after the date of enactment of
the Combating Autism Reauthorization Act of 2011'' and
inserting ``4 years after the date of enactment of the Autism
CARES Act of 2014'';
(B) by inserting ``and the Secretary of Defense'' after
``the Secretary of Education''; and
(C) by inserting ``, and make publicly available, including
through posting on the Internet Web site of the Department of
Health and Human Services,'' after ``Representatives''; and
(6) in subsection (a)(2) (as so redesignated)--
(A) in subparagraph (A), (as so redesignated), by striking
``Combating Autism Act of 2006'' and inserting ``Autism CARES
Act of 2014'';
(B) in subparagraph (B) (as so redesignated), by striking
``particular provisions of Combating Autism Act of 2006'' and
inserting ``amendments made by the Autism CARES Act of 2014'';
(C) by striking subparagraph (C) (as so redesignated), and
inserting the following:
``(C) information on the incidence and prevalence of autism
spectrum disorder, including available information on the
prevalence of autism spectrum disorder among children and
adults, and identification of any changes over time with
respect to the incidence and prevalence of autism spectrum
disorder;'';
(D) in subparagraph (D) (as so redesignated), by striking
``6-year period beginning on the date of enactment of the
Combating Autism Act of 2006'' and inserting ``4-year period
beginning on the date of enactment of the Autism CARES Act of
2014 and, as appropriate, how this age varies across population
subgroups'';
(E) in subparagraph (E) (as so redesignated), by striking
``6-year period beginning on the date of enactment of the
Combating Autism Act of 2006'' and inserting ``4-year period
beginning on the date of enactment of the Autism CARES Act of
2014 and, as appropriate, how this age varies across population
subgroups'';
(F) in subparagraph (F) (as so redesignated), by inserting
``and, as appropriate, on how such average time varies across
population subgroups'' before the semicolon at the end;
(G) in subparagraph (G) (as so redesignated)--
(i) by striking ``including by various subtypes,'' and
inserting ``including by severity level as practicable,'';
and
(ii) by striking ``child may'' and inserting ``child or
other factors, such as demographic characteristics, may'';
and
(H) by striking subparagraph (I) (as so redesignated), and
inserting the following:
``(I) a description of the actions taken to implement and
the progress made on implementation of the strategic plan
developed by the Interagency Autism Coordinating Committee
under section 399CC(b).''; and
(7) by adding at the end the following new subsection:
``(b) Report on Young Adults and Transitioning Youth.--
``(1) In general.--Not later than 2 years after the date of
enactment of the Autism CARES Act of 2014, the Secretary of Health
and Human Services, in coordination with the Secretary of Education
and in collaboration with the Secretary of Transportation, the
Secretary of Labor, the Secretary of Housing and Urban Development,
and the Attorney General, shall prepare and submit to the Committee
on Health, Education, Labor, and Pensions of the Senate and the
Committee on Energy and Commerce of the House of Representatives, a
report concerning young adults with autism spectrum disorder and
the challenges related to the transition from existing school-based
services to those services available during adulthood.
``(2) Contents.--The report submitted under paragraph (1) shall
contain--
``(A) demographic characteristics of youth transitioning
from school-based to community-based supports;
``(B) an overview of policies and programs relevant to
young adults with autism spectrum disorder relating to post-
secondary school transitional services, including an
identification of existing Federal laws, regulations, policies,
research, and programs;
``(C) proposals on establishing best practices guidelines
to ensure--
``(i) interdisciplinary coordination between all
relevant service providers receiving Federal funding;
``(ii) coordination with transitioning youth and the
family of such transitioning youth; and
``(iii) inclusion of the individualized education
program for the transitioning youth, as prescribed in
section 614 of the Individuals with Disabilities Education
Act (20 U.S.C. 1414);
``(D) comprehensive approaches to transitioning from
existing school-based services to those services available
during adulthood, including--
``(i) services that increase access to, and improve
integration and completion of, post-secondary education,
peer support, vocational training (as defined in section
103 of the Rehabilitation Act of 1973 (29 U.S.C. 723)),
rehabilitation, self-advocacy skills, and competitive,
integrated employment;
``(ii) community-based behavioral supports and
interventions;
``(iii) community-based integrated residential
services, housing, and transportation;
``(iv) nutrition, health and wellness, recreational,
and social activities;
``(v) personal safety services for individuals with
autism spectrum disorder related to public safety agencies
or the criminal justice system; and
``(vi) evidence-based approaches for coordination of
resources and services once individuals have aged out of
post-secondary education; and
``(E) proposals that seek to improve outcomes for adults
with autism spectrum disorder making the transition from a
school-based support system to adulthood by--
``(i) increasing the effectiveness of programs that
provide transition services;
``(ii) increasing the ability of the relevant service
providers described in subparagraph (C) to provide supports
and services to underserved populations and regions;
``(iii) increasing the efficiency of service delivery
to maximize resources and outcomes, including with respect
to the integration of and collaboration among services for
transitioning youth;
``(iv) ensuring access to all services necessary to
transitioning youth of all capabilities; and
``(v) encouraging transitioning youth to utilize all
available transition services to maximize independence,
equal opportunity, full participation, and self-
sufficiency.''.
SEC. 7. AUTHORIZATION OF APPROPRIATIONS.
Section 399EE of the Public Health Service Act (42 U.S.C. 280i-4)
is amended--
(1) in subsection (a), by striking ``fiscal years 2012 through
2014'' and inserting ``fiscal years 2015 through 2019'';
(2) in subsection (b), by striking ``fiscal years 2011 through
2014'' and inserting ``fiscal years 2015 through 2019''; and
(3) in subsection (c), by striking ``$161,000,000 for each of
fiscal years 2011 through 2014'' and inserting ``$190,000,000 for
each of fiscal years 2015 through 2019''.
Speaker of the House of Representatives.
Vice President of the United States and
President of the Senate.