[Congressional Bills 113th Congress]
[From the U.S. Government Publishing Office]
[H.R. 4631 Engrossed in House (EH)]
113th CONGRESS
2d Session
H. R. 4631
_______________________________________________________________________
AN ACT
To reauthorize certain provisions of the Public Health Service Act
relating to autism, and for other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Autism Collaboration,
Accountability, Research, Education, and Support Act of 2014'' or the
``Autism CARES Act of 2014''.
SEC. 2. NATIONAL AUTISM SPECTRUM DISORDER INITIATIVE.
(a) In General.--The Secretary of Health and Human Services shall
designate an existing official within the Department of Health and
Human Services to oversee, in consultation with the Secretaries of
Defense and Education, national autism spectrum disorder research,
services, and support activities.
(b) Duties.--The official designated under subsection (a) shall--
(1) implement autism spectrum disorder activities, taking
into account the strategic plan developed by the Interagency
Autism Coordinating Committee under section 399CC(b) of the
Public Health Service Act (42 U.S.C. 280i-2(b)); and
(2) ensure that autism spectrum disorder activities of the
Department of Health and Human Services and of other Federal
departments and agencies are not unnecessarily duplicative.
SEC. 3. RESEARCH PROGRAM.
Section 399AA of the Public Health Service Act (42 U.S.C. 280i) is
amended--
(1) in subsection (a)(1), by inserting ``for children and
adults'' after ``reporting of State epidemiological data'';
(2) in subsection (b)(1)--
(A) by striking ``establishment of regional centers
of excellence'' and inserting ``establishment or
support of regional centers of excellence''; and
(B) by inserting ``for children and adults'' before
the period at the end;
(3) in subsection (b)(2), by striking ``center to be
established'' and inserting ``center to be established or
supported''; and
(4) in subsection (e), by striking ``2014'' and inserting
``2019''.
SEC. 4. AUTISM INTERVENTION.
Section 399BB of the Public Health Service Act (42 U.S.C. 280i-1)
is amended--
(1) in subsection (b)(1), by inserting ``culturally
competent'' after ``provide'';
(2) in subsection (c)(2)(A)(ii), by inserting ``(which may
include respite care for caregivers of individuals with an
autism spectrum disorder)'' after ``services and supports'';
(3) in subsection (e)(1)(B)(v), by inserting before the
semicolon the following: ``, which may include collaborating
with research centers or networks to provide training for
providers of respite care (as defined in section 2901)'';
(4) in subsection (f), by striking ``grants or contracts''
and all that follows through ``for individuals with'' and
inserting ``grants or contracts, which may include grants or
contracts to research centers or networks, to determine the
evidence-based practices for interventions to improve the
physical and behavioral health of individuals with''; and
(5) in subsection (g), by striking ``2014'' and inserting
``2019''.
SEC. 5. INTERAGENCY AUTISM COORDINATING COMMITTEE.
Section 399CC of the Public Health Service Act (42 U.S.C. 280i-2)
is amended--
(1) in subsection (b)--
(A) in paragraph (1)--
(i) by striking ``and annually update'';
and
(ii) by striking ``intervention'' and
inserting ``interventions, including school and
community-based interventions'';
(B) by striking paragraph (2);
(C) by redesignating paragraph (1) as paragraph
(2), and inserting before such redesignated paragraph
the following:
``(1) monitor autism spectrum disorder research, and to the
extent practicable services and support activities, across all
relevant Federal departments and agencies, including
coordination of Federal activities with respect to autism
spectrum disorder;'';
(D) in paragraph (3), by striking ``recommendations
to the Director of NIH'';
(E) in paragraph (4), by inserting before the
semicolon the following: ``, and the process by which
public feedback can be better integrated into such
decisions''; and
(F) by striking paragraphs (5) and (6) and
inserting the following:
``(5) develop a strategic plan for the conduct of, and
support for, autism spectrum disorder research, including as
practicable for services and supports, for individuals with an
autism spectrum disorder and the families of such individuals,
which shall include--
``(A) proposed budgetary requirements; and
``(B) recommendations to ensure that autism
spectrum disorder research, and services and support
activities to the extent practicable, of the Department
of Health and Human Services and of other Federal
departments and agencies are not unnecessarily
duplicative; and
``(6) submit to Congress and the President--
``(A) an annual update on the summary of advances
described in paragraph (2); and
``(B) an annual update to the strategic plan
described in paragraph (5), including any progress made
in achieving the goals outlined in such strategic
plan.'';
(2) in subsection (c)--
(A) in paragraph (1)--
(i) by striking the paragraph designation,
the heading, and the matter preceding
subparagraph (A) and inserting the following:
``(1) Federal membership.--The Committee shall be composed
of the following Federal members--'';
(ii) in subparagraph (C)--
(I) by inserting ``, such as the
Administration for Community Living,
Administration for Children and
Families, the Centers for Medicare &
Medicaid Services, the Food and Drug
Administration, and the Health
Resources and Services Administration''
before the semicolon at the end; and
(II) by adding at the end ``and'';
(iii) in subparagraph (D)--
(I) by inserting ``and the
Department of Defense'' after
``Department of Education''; and
(II) by striking at the end ``;
and'' and inserting a period; and
(iv) by striking subparagraph (E);
(B) in paragraph (2)--
(i) in the paragraph heading, by striking
``Additional'' and inserting ``Non-federal'';
(ii) in the matter preceding subparagraph
(A), by striking ``Not fewer than 6 members of
the Committee, or \1/3\ of the total membership
of the Committee, whichever is greater'' and
inserting ``Not more than \1/2\, but not fewer
than \1/3\, of the total membership of the
Committee'';
(iii) in subparagraph (A), by striking
``one such member shall be an individual'' and
inserting ``two such members shall be
individuals'';
(iv) in subparagraph (B), by striking ``one
such member shall be a parent or legal
guardian'' and inserting ``two such members
shall be parents or legal guardians''; and
(v) in subparagraph (C), by striking ``one
such member shall be a representative'' and
inserting ``two such members shall be
representatives''; and
(C) by adding at the end the following:
``(3) Period of appointment; vacancies.--
``(A) Period of appointment for non-federal
members.--Non-Federal members shall serve for a term of
4 years, and may be reappointed for one or more
additional 4-year terms.
``(B) Vacancies.--A vacancy on the Committee shall
be filled in the manner in which the original
appointment was made and shall not affect the powers or
duties of the Committee. Any member appointed to fill a
vacancy for an unexpired term shall be appointed for
the remainder of such term. A member may serve after
the expiration of the member's term until a successor
has been appointed.'';
(3) in subsection (d)--
(A) by striking paragraph (2); and
(B) by redesignating paragraphs (3) and (4) as
paragraphs (2) and (3), respectively; and
(4) in subsection (f), by striking ``2014'' and inserting
``2019''.
SEC. 6. REPORTS.
Section 399DD of the Public Health Service Act (42 U.S.C. 280i-3)
is amended--
(1) in the section heading, by striking ``report'' and
inserting ``reports'';
(2) in subsection (b), by redesignating paragraphs (1)
through (9) as subparagraphs (A) through (I), respectively, and
realigning the margins accordingly;
(3) by redesignating subsections (a) and (b) as paragraphs
(1) and (2), respectively, and realigning the margins
accordingly;
(4) by inserting after the section heading the following:
``(a) Progress Report.--'';
(5) in subsection (a)(1) (as so redesignated)--
(A) by striking ``2 years after the date of
enactment of the Combating Autism Reauthorization Act
of 2011'' and inserting ``4 years after the date of
enactment of the Autism CARES Act of 2014'';
(B) by inserting ``and the Secretary of Defense''
after ``the Secretary of Education''; and
(C) by inserting ``, and make publicly available,
including through posting on the Internet Web site of
the Department of Health and Human Services,'' after
``Representatives''; and
(6) in subsection (a)(2) (as so redesignated)--
(A) in subparagraph (A), (as so redesignated), by
striking ``Combating Autism Act of 2006'' and inserting
``Autism CARES Act of 2014'';
(B) in subparagraph (B) (as so redesignated), by
striking ``particular provisions of Combating Autism
Act of 2006'' and inserting ``amendments made by the
Autism CARES Act of 2014'';
(C) by striking subparagraph (C) (as so
redesignated), and inserting the following:
``(C) information on the incidence and prevalence
of autism spectrum disorder, including available
information on the prevalence of autism spectrum
disorder among children and adults, and identification
of any changes over time with respect to the incidence
and prevalence of autism spectrum disorder;'';
(D) in subparagraph (D) (as so redesignated), by
striking ``6-year period beginning on the date of
enactment of the Combating Autism Act of 2006'' and
inserting ``4-year period beginning on the date of
enactment of the Autism CARES Act of 2014 and, as
appropriate, how this age varies across population
subgroups'';
(E) in subparagraph (E) (as so redesignated), by
striking ``6-year period beginning on the date of
enactment of the Combating Autism Act of 2006'' and
inserting ``4-year period beginning on the date of
enactment of the Autism CARES Act of 2014 and, as
appropriate, how this age varies across population
subgroups'';
(F) in subparagraph (F) (as so redesignated), by
inserting ``and, as appropriate, on how such average
time varies across population subgroups'' before the
semicolon at the end;
(G) in subparagraph (G) (as so redesignated)--
(i) by striking ``including by various
subtypes,'' and inserting ``including by
severity level as practicable,''; and
(ii) by striking ``child may'' and
inserting ``child or other factors, such as
demographic characteristics, may''; and
(H) by striking subparagraph (I) (as so
redesignated), and inserting the following:
``(I) a description of the actions taken to
implement and the progress made on implementation of
the strategic plan developed by the Interagency Autism
Coordinating Committee under section 399CC(b).''; and
(7) by adding at the end the following new subsection:
``(b) Report on Young Adults and Transitioning Youth.--
``(1) In general.--Not later than 2 years after the date of
enactment of the Autism CARES Act of 2014, the Secretary of
Health and Human Services, in coordination with the Secretary
of Education and in collaboration with the Secretary of
Transportation, the Secretary of Labor, the Secretary of
Housing and Urban Development, and the Attorney General, shall
prepare and submit to the Committee on Health, Education,
Labor, and Pensions of the Senate and the Committee on Energy
and Commerce of the House of Representatives, a report
concerning young adults with autism spectrum disorder and the
challenges related to the transition from existing school-based
services to those services available during adulthood.
``(2) Contents.--The report submitted under paragraph (1)
shall contain--
``(A) demographic characteristics of youth
transitioning from school-based to community-based
supports;
``(B) an overview of policies and programs relevant
to young adults with autism spectrum disorder relating
to post-secondary school transitional services,
including an identification of existing Federal laws,
regulations, policies, research, and programs;
``(C) proposals on establishing best practices
guidelines to ensure--
``(i) interdisciplinary coordination
between all relevant service providers
receiving Federal funding;
``(ii) coordination with transitioning
youth and the family of such transitioning
youth; and
``(iii) inclusion of the individualized
education program for the transitioning youth,
as prescribed in section 614 of the Individuals
with Disabilities Education Act (20 U.S.C.
1414);
``(D) comprehensive approaches to transitioning
from existing school-based services to those services
available during adulthood, including--
``(i) services that increase access to, and
improve integration and completion of, post-
secondary education, peer support, vocational
training (as defined in section 103 of the
Rehabilitation Act of 1973 (29 U.S.C. 723)),
rehabilitation, self-advocacy skills, and
competitive, integrated employment;
``(ii) community-based behavioral supports
and interventions;
``(iii) community-based integrated
residential services, housing, and
transportation;
``(iv) nutrition, health and wellness,
recreational, and social activities;
``(v) personal safety services for
individuals with autism spectrum disorder
related to public safety agencies or the
criminal justice system; and
``(vi) evidence-based approaches for
coordination of resources and services once
individuals have aged out of post-secondary
education; and
``(E) proposals that seek to improve outcomes for
adults with autism spectrum disorder making the
transition from a school-based support system to
adulthood by--
``(i) increasing the effectiveness of
programs that provide transition services;
``(ii) increasing the ability of the
relevant service providers described in
subparagraph (C) to provide supports and
services to underserved populations and
regions;
``(iii) increasing the efficiency of
service delivery to maximize resources and
outcomes, including with respect to the
integration of and collaboration among services
for transitioning youth;
``(iv) ensuring access to all services
necessary to transitioning youth of all
capabilities; and
``(v) encouraging transitioning youth to
utilize all available transition services to
maximize independence, equal opportunity, full
participation, and self-sufficiency.''.
SEC. 7. AUTHORIZATION OF APPROPRIATIONS.
Section 399EE of the Public Health Service Act (42 U.S.C. 280i-4)
is amended--
(1) in subsection (a), by striking ``fiscal years 2012
through 2014'' and inserting ``fiscal years 2015 through
2019'';
(2) in subsection (b), by striking ``fiscal years 2011
through 2014'' and inserting ``fiscal years 2015 through
2019''; and
(3) in subsection (c), by striking ``$161,000,000 for each
of fiscal years 2011 through 2014'' and inserting
``$190,000,000 for each of fiscal years 2015 through 2019''.
Passed the House of Representatives June 24, 2014.
Attest:
Clerk.
113th CONGRESS
2d Session
H. R. 4631
_______________________________________________________________________
AN ACT
To reauthorize certain provisions of the Public Health Service Act
relating to autism, and for other purposes.