1.This Act may be cited as the
Tom Lantos Pulmonary Hypertension
Research and Education Act of 2011
.
2.The table of contents
for this Act is as follows:
Sec. 1. Short title.
Sec. 2. Table of contents.
Title I—Research on pulmonary hypertension
Sec. 101. Expansion and intensification of
activities.
Title II—Increasing awareness of pulmonary
hypertension
Sec. 201. Promoting public awareness.
Sec. 202. Promoting awareness among health care
professionals.
<enum>I</enum><header>Research on
pulmonary hypertension</header>
<section id="H52525B648E3B4C7AB01E58C8FDD33D41"><enum>101.</enum><header>Expansion and
intensification of activities</header>
<subsection id="H61B2FAC79C0E42B0A660D6173264A414"><enum>(a)</enum><header>Sense of
Congress</header><text>It is the sense of the Congress that—</text>
<paragraph id="HE9B7657AEDC6428E9500BFE1881C1CCC"><enum>(1)</enum><text>the Secretary of
Health and Human Services (in this Act referred to as the
<quote>Secretary</quote>), acting through the Director of the National
Institutes of Health and the Director of the National Heart, Lung, and Blood
Institute (in this title referred to as the <quote>Institute</quote>), should
continue aggressive work on pulmonary hypertension;</text>
</paragraph><paragraph id="HCF17298F4AFC45E4A0EA3E1785AE97A1"><enum>(2)</enum><text>as part of such
work, the Director of the Institute should continue research to expand the
understanding of the causes of, and to find a cure for, pulmonary hypertension;
and</text>
</paragraph><paragraph id="H200E6275A138414EB086EB1BDDA4AC9B"><enum>(3)</enum><text>activities under
paragraph (1) may include conducting and supporting—</text>
<subparagraph id="H9EDFF8C8838F4E45A88C2D70F126EC39"><enum>(A)</enum><text>basic research
concerning the etiology and causes of pulmonary hypertension;</text>
</subparagraph><subparagraph id="HA0E25A1D295E4B119674F4AB95283F15"><enum>(B)</enum><text>basic research on
the relationship between scleroderma, sickle cell anemia (and other conditions
identified by the Director of the Institute that can lead to a secondary
diagnosis of pulmonary hypertension), and pulmonary hypertension;</text>
</subparagraph><subparagraph id="HF9598AE130774642A5E06F2266E03661"><enum>(C)</enum><text>clinical research
for the development and evaluation of new treatments for pulmonary
hypertension, including the establishment of a <quote>Pulmonary Hypertension
Clinical Research Network</quote>;</text>
</subparagraph><subparagraph id="H7A665215AEF14B7AA1B80800D020C78"><enum>(D)</enum><text>support for the
training of new clinicians and investigators with expertise in the pulmonary
hypertension; and</text>
</subparagraph><subparagraph id="H31916CB977D04CACA5531877DCCFC6B9"><enum>(E)</enum><text>information and
education programs for the general public.</text>
</subparagraph></paragraph></subsection><subsection id="HBBAE937A5F95419ABB22CCC882C874EE"><enum>(b)</enum><header>Biennial
reports</header><text>As part of the biennial report made under section 403 of
the Public Health Service Act (42 U.S.C. 283), the Secretary shall include
information on the status of pulmonary hypertension research at the National
Institutes of Health.</text>
</subsection></section><enum>II</enum><header>Increasing
awareness of pulmonary hypertension</header>
<section id="HCA238BFC44B94078889C4BEFF617B4E6"><enum>201.</enum><header>Promoting
public awareness</header>
<subsection id="HE7AA9ACE5B0E494F9C8DEB0177A8C113"><enum>(a)</enum><header>In
general</header><text>The Secretary, acting through the Director of the Centers
for Disease Control and Prevention, shall carry out an educational campaign to
increase public awareness of pulmonary hypertension. Print, video, and
Web-based materials distributed under this program may include—</text>
<paragraph id="H784A9A5A08A041A78BEF676220F0F7B1"><enum>(1)</enum><text>basic information
on pulmonary hypertension and its symptoms; and</text>
</paragraph><paragraph id="HA873F5900EB14642BD4D6D1D02493F68"><enum>(2)</enum><text>information
on—</text>
<subparagraph id="H54A69A047D9448AB98D3BFF4F129357B"><enum>(A)</enum><text>the incidence and
prevalence of pulmonary hypertension;</text>
</subparagraph><subparagraph id="HE566A6DC3BEB4BDAB0608769F71E8240"><enum>(B)</enum><text>diseases and
conditions that can lead to pulmonary hypertension as a secondary
diagnosis;</text>
</subparagraph><subparagraph id="HF2642BCFC2AC491F95752C9F8E05AB3D"><enum>(C)</enum><text>the importance of
early diagnosis; and</text>
</subparagraph><subparagraph id="HCE4D51E91585408CAAF6F6D6229A6C8"><enum>(D)</enum><text>the availability,
as medically appropriate, of a range of treatment options and pulmonary
hypertension.</text>
</subparagraph></paragraph></subsection><subsection id="H304372954EE24431ABDFDCD7DCAEAC"><enum>(b)</enum><header>Dissemination of
information</header><text>The Secretary is encouraged to disseminate
information under subsection (a) through a cooperative agreement with a
national nonprofit entity with expertise in pulmonary hypertension.</text>
</subsection><subsection id="HD1041C630F5B4A61A6491F7FBC5F0948"><enum>(c)</enum><header>Report to
Congress</header><text display-inline="yes-display-inline">Not later than
September 30, 2011, the Secretary shall report to the Committee on Energy and
Commerce of the House of Representatives, the Committee on Health, Education,
Labor, and Pensions of the Senate, and the Committee on Appropriations of the
House of Representatives and the Senate on the status of activities under this
section.</text>
</subsection><subsection id="HF05B1A6361F348B78672FC0089AFF2E2"><enum>(d)</enum><header>Authorization of
Appropriations</header><text>For the purpose of carrying out this section,
there are authorized to be appropriated such sums as are necessary to carry out
this section for each of fiscal years 2012, 2013, and 2014.</text>
</subsection></section><section id="H2A03387019F54CA0A41E5D26D3BBA862"><enum>202.</enum><header>Promoting
awareness among health care professionals</header>
<subsection id="H933FA7D4C94348389E59CDD1559C2CDC"><enum>(a)</enum><header>In
general</header><text>The Secretary, acting through the Administrator of the
Health Resources and Services Administration and the Director of the Centers
for Disease Control and Prevention, shall carry out an educational campaign to
increase awareness of pulmonary hypertension among health care providers.
Print, video, and Web-based materials distributed under this program may
include information on—</text>
<paragraph id="H2FC0904D27404FA0B6B9AD9DD296D5C"><enum>(1)</enum><text>the symptoms of
pulmonary hypertension;</text>
</paragraph><paragraph id="H08C0AEB2B0BE4A8CA81381011321E0BF"><enum>(2)</enum><text>the importance of
early diagnosis;</text>
</paragraph><paragraph id="H85DCD2CCFCF74D02AD9EC9C625F7F8E"><enum>(3)</enum><text>current diagnostic
criteria; and</text>
</paragraph><paragraph id="HEBC70819551F4E0E8D49DD2042FD38E"><enum>(4)</enum><text>Food and Drug
Administration-approved therapies for the disease.</text>
</paragraph></subsection><subsection id="H87EFB8859F204E8EB08FC020A8987740"><enum>(b)</enum><header>Targeted health
care providers</header><text display-inline="yes-display-inline">Health care
providers targeted through the campaign under subsection (a) shall include, but
not be limited to, cardiologists, pulmonologists, rheumatologists, primary care
physicians, pediatricians, and nurse practitioners.</text>
</subsection><subsection id="H64FB0B3ED231430FB1003CEEC791E3DC"><enum>(c)</enum><header>Dissemination of
information</header><text>The Secretary is encouraged to disseminate
information under subsection (a) through a cooperative agreement with a
national nonprofit entity with expertise in pulmonary hypertension.</text>
</subsection><subsection id="H98487AF953F8477D957CF1AF1D8DB31"><enum>(d)</enum><header>Report to
Congress</header><text display-inline="yes-display-inline">Not later than
September 30, 2011, the Secretary shall report to the Committee on Energy and
Commerce of the House of Representatives, the Committee on Health, Education,
Labor, and Pensions of the Senate, and the Committee on Appropriations of the
House of Representatives and the Senate on the status of activities under this
section.</text>
</subsection><subsection id="H1F64EEB4410D41688F61B5ECD981B0C3"><enum>(e)</enum><header>Authorization of
appropriations</header><text display-inline="yes-display-inline">For the
purpose of carrying out this section, there are authorized to be appropriated
such sums as are necessary to carry out this section for each of fiscal years
2012, 2013 and 2014.</text>
</subsection></section>