1.This Act may be cited as
the Native Hawaiian and Other Pacific
Islander Health Data Act of 2011
.
2.Native Hawaiians
and other Pacific Islander health dataPart B of title III of the Public Health
Service Act (42 U.S.C. 243 et seq.) is amended by inserting after section 317T
the following:
317U.Native
Hawaiian and other Pacific Islander health data
(a)In
this section:
(1)The term community group means a group of
NHOPI who are organized at the community level, and may include a church group,
social service group, national advocacy organization, or cultural group.
(2)Nonprofit,
nongovernmental organizationThe term nonprofit,
nongovernmental organization means a group of NHOPI with a demonstrated
history of addressing NHOPI issues, including a NHOPI coalition.
(3)The term designated organization means
an entity established to represent NHOPI populations and which has statutory
responsibilities to provide, or has community support for providing, health
care.
(4)Government
representativesThe term government representatives
means representatives from Hawai‘i, American Samoa, the Commonwealth of the
Northern Mariana Islands, the Federated States of Micronesia, Guam, the
Republic of Palau, and the Republic of the Marshall Islands.
(5)Native
Hawaiians and other pacific islanders or NHOPIThe term
Native Hawaiians and Other Pacific Islanders or NHOPI
means people having origins in any of the original peoples of American Samoa,
the Commonwealth of the Northern Mariana Islands, the Federated States of
Micronesia, Guam, Hawai‘i, the Republic of the Marshall Islands, the Republic
of Palau, or any other Pacific Island.
(6)The term insular area means Guam, the
Commonwealth of Northern Mariana Islands, American Samoa, the United States
Virgin Islands, the Federated States of Micronesia, the Republic of Palau, or
the Republic of the Marshall Islands.
(b)
(1)The Secretary, acting through the Director of the
National Center for Health Statistics (referred to in this section as
NCHS
) of the Centers for Disease Control and Prevention, and
other agencies within the Department of Health and Human Services as the
Secretary determines appropriate, shall develop and implement an ongoing and
sustainable national strategy for identifying and evaluating the health status
and health care needs of NHOPI populations living in the continental United
States, Hawai‘i, American Samoa, the Commonwealth of the Northern Mariana
Islands, the Federated States of Micronesia, Guam, the Republic of Palau, and
the Republic of the Marshall Islands.
(2)In
developing and implementing a national strategy, as described in paragraph (1),
not later than 180 days after the date of enactment of the
Native Hawaiian and Other Pacific Islander
Health Data Act of 2011, the Secretary—
(A)shall consult
with representatives of community groups, designated organizations, and
nonprofit, nongovernmental organizations and with government representatives of
NHOPI populations; and
(B)may solicit the
participation of representatives from other Federal departments.
(c)Preliminary
health survey
(1)The Secretary, acting through the Director of NCHS, shall
conduct a preliminary health survey in order to identify the major areas and
regions in the continental United States, Hawai‘i, American Samoa, the
Commonwealth of the Northern Mariana Islands, the Federated States of
Micronesia, Guam, the Republic of Palau, and the Republic of the Marshall
Islands in which NHOPI people reside.
(2)The
health survey described in paragraph (1) shall include health data and any
other data the Secretary determines to be—
(A)useful in
determining health status and health care needs; or
(B)required for
developing or implementing a national strategy.
(3)Methodology
for the health survey described in paragraph (1), including plans for designing
questions, implementation, sampling, and analysis, shall be developed in
consultation with community groups, designated organizations, nonprofit,
nongovernmental organizations, and government representatives of NHOPI
populations, as determined by the Secretary.
(4)The
survey required under this subsection shall be completed not later than 18
months after the date of enactment of the Native Hawaiian and Other Pacific Islander Health Data Act
of 2011.
(d)Not later than 2 years after the date of enactment of the
Native Hawaiian and Other Pacific Islander
Health Data Act of 2011, the Secretary shall submit to Congress a
progress report, which shall include the national strategy described in
subsection (b)(1).
(e)Study and
report by the IOM
(1)The Secretary shall enter into an agreement with the
Institute of Medicine to conduct a study, with input from stakeholders in
insular areas, on the following:
(A)The standards and
definitions of health care applied to health care systems in insular areas and
the appropriateness of such standards and definitions.
(B)The status and
performance of health care systems in insular areas, evaluated based upon
standards and definitions, as the Secretary determines.
(C)The effectiveness
of donor aid in addressing health care needs and priorities in insular
areas.
(D)The progress
toward implementation of recommendations of the Committee on Health Care
Services in the United States–Associated Pacific Basin of the Institute of
Medicine that are set forth in the 1998 report, Pacific Partnerships for
Health: Charting a New Course for the 21st Century
.
(2)An
agreement described in paragraph (1) shall require the Institute of Medicine to
submit to the Secretary and to Congress, not later than 2 years after the date
of the enactment of the Native Hawaiian and
Other Pacific Islander Health Data Act of 2011, a report
containing a description of the results of the study conducted under paragraph
(1), including the conclusions and recommendations of the Institute of Medicine
for each of the items described in subparagraphs (A) through (D) of such
paragraph.
(f)Authorization
of appropriationsTo carry out this section, there are authorized
to be appropriated such sums as may be necessary for fiscal years 2012 through
2017.
.