III 111th CONGRESS 2d Session S. RES. 561 IN THE SENATE OF THE UNITED STATES June 21, 2010 Mr. Burr (for himself, Mr. Dodd, Mr. Inhofe, and Ms. Collins) submitted the following resolution; which was considered and agreed to RESOLUTION Designating June 25, 2010, as “National Huntington’s Disease Awareness Day”.

Whereas Huntington’s Disease is a progressive degenerative neurological disease that causes total physical and mental deterioration throughout a 15- to 20-year period; Whereas each child of a parent with Huntington’s Disease has a 50-percent chance of inheriting the Huntington’s Disease gene; Whereas the onset of Huntington’s Disease typically begins in mid-life, between the ages of 30 and 45, though onset may occur as early as the age of 2; Whereas children who develop the juvenile form of Huntington's Disease rarely live to adulthood; Whereas, after the onset of Huntington’s Disease, the average lifespan of an individual with Huntington's Disease is 15 to 20 years, and the younger the age of onset, the more rapid the progression of the disease; Whereas Huntington’s Disease affects approximately 30,000 individuals and 200,000 genetically ‘‘at risk’’ individuals in the United States; Whereas, since the discovery of the gene that causes Huntington’s Disease in 1993, the pace of Huntington’s Disease research has accelerated; Whereas, although no effective treatment or cure for Huntington's Disease exists as of the date of this resolution, scientists and researchers are hopeful that breakthroughs will be forthcoming; Whereas researchers across the United States are conducting important research projects involving Huntington’s Disease; and Whereas the Senate is an institution that can raise awareness in the general public and the medical community of Huntington’s Disease: Now, therefore, be it

That the Senate— (1)designates June 25, 2010, as National Huntington's Disease Awareness Day; and (2)recognizes that all people of the United States should become more informed about and aware of Huntington’s Disease.