1.This Act may be cited as the
Arthritis Prevention, Control, and
Cure Act of 2009
.
2.Enhancing the
public Health activities related to arthritis of the Centers for Disease
Control and Prevention through the National Arthritis Action PlanPart B of title III of the
Public Health Service Act (42 U.S.C.
243 et seq.) is amended by inserting after section 314 the following:
315.Implementation
of the National Arthritis Action PlanThe Secretary shall develop and implement a
National Arthritis Action Plan that consists of—
(1)the Federal
arthritis prevention and control activities, as described in section
315A;
(2)the State
arthritis control and prevention programs, as described in section 315B;
(3)the comprehensive
arthritis action grant program, as described in section 315C; and
(4)a national
arthritis education and outreach program, as described in section 315D.
315A.Federal
arthritis prevention and control activities
(a)The Secretary, acting through the Director of the Centers
for Disease Control and Prevention, shall, directly, or through a grant to an
eligible entity, conduct, support, and promote the coordination of research,
investigations, demonstrations, training, and studies relating to the control,
prevention, and surveillance of arthritis and other rheumatic diseases.
(b)The activities of the Secretary under subsection (a)
shall include—
(1)the collection,
publication, and analysis of data on the prevalence and incidence of arthritis
and other rheumatic diseases;
(2)the development
of uniform data sets for public health surveillance and clinical quality
improvement activities;
(3)the
identification of evidence-based and cost-effective best practices for the
prevention, diagnosis, management, and care of arthritis and other rheumatic
diseases;
(4)research,
including research on behavioral interventions to prevent arthritis and on
other evidence-based best practices relating to arthritis prevention,
diagnosis, management, and care; and
(5)demonstration
projects, including community-based and patient self-management programs of
arthritis control, prevention, and care, and similar collaborations with
academic institutions, hospitals, health insurers, researchers, health
professionals, and nonprofit organizations.
(c)Training and
Technical AssistanceWith respect to the planning, development,
and operation of any activity carried out under subsection (a), the Secretary
may provide training, technical assistance, supplies, equipment, or services,
and may assign any officer or employee of the Department of Health and Human
Services to a State or local health agency, or to any public or nonprofit
entity designated by a State health agency, in lieu of providing grant funds
under this section.
(d)Arthritis
Prevention Research at the Centers for Disease Control and Prevention
CentersThe Secretary shall provide additional grant support for
research projects at the Centers for Prevention Research by the Centers for
Disease Control and Prevention to encourage the expansion of research
portfolios at the Centers for Prevention Research to include arthritis-specific
research activities related to the prevention and management of
arthritis.
(e)Authorization
of AppropriationsThere are authorized to be appropriated to
carry out this section—
(1)$8,000,000 for
fiscal year 2010;
(2)$10,000,000 for
fiscal year 2011;
(3)$12,000,000 for
fiscal year 2012;
(4)$14,000,000 for
fiscal year 2013; and
(5)$16,000,000 for
fiscal year 2014.
315B.State
arthritis control and prevention programs
(a)The Secretary shall award grants to eligible entities to
provide support for comprehensive arthritis control and prevention programs and
to enable such entities to provide public health surveillance, prevention, and
control activities related to arthritis and other rheumatic diseases.
(b)To
be eligible to receive a grant under this section, an entity shall be a State
or Indian tribe.
(c)To
be eligible to receive a grant under this section, an entity shall submit to
the Secretary an application at such time, in such manner, and containing such
agreements, assurances, and information as the Secretary may require, including
a comprehensive arthritis control and prevention plan that—
(1)is developed with
the advice of stakeholders from the public, private, and nonprofit sectors that
have expertise relating to arthritis control, prevention, and treatment that
increase the quality of life and decrease the level of disability;
(2)is intended to
reduce the morbidity of arthritis, with priority on preventing and controlling
arthritis in at-risk populations and reducing disparities in arthritis
prevention, diagnosis, management, and quality of care in underserved
populations;
(3)describes the
arthritis-related services and activities to be undertaken or supported by the
entity; and
(4)is developed in a
manner that is consistent with the National Arthritis Action Plan or a
subsequent strategic plan designated by the Secretary.
(d)An eligible entity shall use amounts received under a grant
awarded under subsection (a) to conduct, in a manner consistent with the
comprehensive arthritis control and prevention plan submitted by the entity in
the application under subsection (c)—
(1)public health
surveillance and epidemiological activities relating to the prevalence of
arthritis and assessment of disparities in arthritis prevention, diagnosis,
management, and care;
(2)public
information and education programs; and
(3)education,
training, and clinical skills improvement activities for health professionals,
including allied health personnel.
(e)Authorization
of AppropriationsThere are authorized to be appropriated to
carry out this section—
(1)$12,000,000 for
fiscal year 2010;
(2)$17,000,000 for
fiscal year 2011;
(3)$22,000,000 for
fiscal year 2012;
(4)$27,000,000 for
fiscal year 2013; and
(5)$32,000,000 for
fiscal year 2014.
315C.Comprehensive
arthritis action grants
(a)The Secretary shall award grants on a competitive basis
to eligible entities to enable such eligible entities to assist in the
implementation of a national strategy for arthritis control and
prevention.
(b)To
be eligible to receive a grant under this section, an entity shall be a
national public or private nonprofit entity.
(c)To
be eligible to receive a grant under this section, an entity shall submit to
the Secretary an application at such time, in such manner, and containing such
agreements, assurances, and information as the Secretary may require, including
a description of how funds received under a grant awarded under this section
will—
(1)supplement or
fulfill unmet needs identified in the comprehensive arthritis control and
prevention plan of a State or Indian tribe; and
(2)otherwise help
achieve the goals of the National Arthritis Action Plan or a subsequent
strategic plan designated by the Secretary.
(d)In
awarding grants under this section, the Secretary shall give priority to
eligible entities submitting applications proposing to carry out programs for
controlling and preventing arthritis in at-risk populations or reducing
disparities in underserved populations.
(e)An eligible entity shall use amounts received under a grant
awarded under subsection (a) for 1 or more of the following purposes:
(1)To expand the
availability of physical activity programs designed specifically for people
with arthritis.
(2)To provide
awareness education to patients, family members, and health care providers, to
help such individuals recognize the signs and symptoms of arthritis, and to
address the control and prevention of arthritis.
(3)To decrease
long-term consequences of arthritis by making information available to
individuals with regard to the self-management of arthritis.
(4)To provide
information on nutrition education programs with regard to preventing or
mitigating the impact of arthritis.
(f)An
eligible entity that receives a grant under this section shall submit to the
Secretary an evaluation of the operations and activities carried out under such
grant that includes an analysis of increased utilization and benefit of public
health programs relevant to the activities described in the appropriate
provisions of subsection (e).
(g)Authorization
of AppropriationsThere are authorized to be appropriated to
carry out this section—
(1)$2,000,000 for
fiscal year 2010;
(2)$2,500,000 for
fiscal year 2011;
(3)$3,000,000 for
fiscal year 2012;
(4)$3,500,000 for
fiscal year 2013; and
(5)$4,000,000 for
fiscal year 2014.
315D.National
arthritis education and outreach
(a)The Secretary shall coordinate a national education and
outreach program to support, develop, and implement education initiatives and
outreach strategies appropriate for arthritis and other rheumatic
diseases.
(b)Initiatives and
StrategiesInitiatives and strategies implemented under the
program described in paragraph (1) may include public awareness campaigns,
public service announcements, and community partnership workshops, as well as
programs targeted at businesses and employers, managed care organizations, and
health care providers.
(c)In
carrying out subsection (a), the Secretary—
(1)may emphasize
prevention, early diagnosis, and appropriate management of arthritis, and
opportunities for effective patient self-management; and
(2)shall give
priority to reaching high-risk or underserved populations.
(d)In
carrying out this section, the Secretary shall consult and collaborate with
stake-holders from the public, private, and nonprofit sectors with expertise
relating to arthritis control, prevention, and treatment.
(e)Authorization
of AppropriationsThere are authorized to be appropriated to
carry out this section—
(1)$10,000,000 for
fiscal year 2010;
(2)$15,000,000 for
fiscal year 2011;
(3)$20,000,000 for
fiscal year 2012;
(4)$20,000,000 for
fiscal year 2013; and
(5)$20,000,000 for
fiscal year
2014.
.
3.Expansion and
coordination of activities of the National Institutes of Health with respect to
research on arthritisTitle IV
of the Public Health Service Act (42
U.S.C. 281 et seq.) is amended by inserting after section 439 the
following:
439A.Arthritis and
Rheumatic Diseases Interagency Coordinating Committee
(a)
(1)The
Secretary shall establish an Arthritis and Rheumatic Diseases Interagency
Coordinating Committee (referred to in this section as the Coordinating
Committee).
(2)The
coordinating committee established under paragraph (1) shall—
(A)provide for the
improved coordination of the research activities of all the national research
institutes relating to arthritis and rheumatic diseases; and
(B)provide for full
and regular communication and exchange of information necessary to maintain
adequate coordination across all Federal health programs and activities related
to arthritis and rheumatic diseases.
(b)Arthritis and
Rheumatic Diseases Interagency Coordinating Committee
(1)The
Coordinating Committee shall consist of members, appointed by the Secretary, of
which—
(A)2/3
of such members shall represent governmental agencies, including—
(i)the directors of
each of the national research institutes and divisions involved in research
regarding arthritis and rheumatic diseases (or the directors’ respective
designees); and
(ii)representatives
of other Federal departments and agencies (as determined appropriate by the
Secretary) whose programs involve health functions or responsibilities relevant
to arthritis and rheumatic diseases, including the Centers for Disease Control
and Prevention, the Health Resources and Services Administration, and the Food
and Drug Administration; and
(B)1/3
of such members shall be public members, including a broad cross section of
persons affected by arthritis, researchers, clinicians, and representatives of
voluntary health agencies, who—
(i)shall serve for a
term of 3 years; and
(ii)may serve for an
unlimited number of terms if reappointed.
(2)
(A)The
Chairperson of the Coordinating Committee (referred to in this subsection as
the Chairperson) shall be appointed by and be directly responsible
to the Secretary.
(B)The
Chairperson shall—
(i)serve as the
principal advisor to the Secretary, the Assistant Secretary for Health, and the
Director of NIH on matters relating to arthritis and rheumatic diseases;
and
(ii)provide advice
to the Director of the Centers for Disease Control and Prevention, the
Commissioner of Food and Drugs, and the heads of other relevant Federal
agencies, on matters relating to arthritis and rheumatic diseases.
(3)Administrative
support; meetings
(A)The Secretary shall provide necessary and appropriate
administrative support to the Coordinating Committee.
(B)The
Coordinating Committee shall meet on a regular basis as determined by the
Secretary, in consultation with the Chairperson.
(c)Arthritis and
Rheumatic Diseases Summit
(1)Not later than 1 year after the date of enactment of the
Arthritis Prevention, Control, and Cure Act of 2009, the Coordinating Committee
shall convene a summit of researchers, public health professionals,
representatives of voluntary health agencies, representatives of academic
institutions, and Federal and State policymakers, to provide a detailed
overview of current research activities at the National Institutes of Health,
as well as to discuss and solicit input related to potential areas of
collaboration between the National Institutes of Health and other Federal
health agencies, including the Centers for Disease Control and Prevention, the
Agency for Healthcare Research and Quality, and the Health Resources and
Services Administration, related to research, prevention, and treatment of
arthritis and rheumatic diseases.
(2)The summit developed under paragraph (1) shall focus
on—
(A)a broad range of
research activities relating to biomedical, epidemiological, psychosocial, and
rehabilitative issues, including studies of the impact of the diseases
described in paragraph (1) in rural and underserved communities;
(B)clinical research
for the development and evaluation of new treatments, including new biological
agents;
(C)translational
research on evidence-based and cost-effective best practices in the treatment,
prevention, and management of the disease;
(D)information and
education programs for health care professionals and the public;
(E)priorities among
the programs and activities of the various Federal agencies regarding such
diseases; and
(F)challenges and
opportunities for scientists, clinicians, patients, and voluntary
organizations.
(d)Not later than 180 days after the convening of the
Arthritis and Rheumatic Diseases Summit under subsection (c)(1), the Director
of NIH shall prepare and submit a report to Congress that includes proceedings
from the summit and a description of arthritis research, education, and other
activities that are conducted or supported through the national research
institutes.
(e)The Coordinating Committee shall make readily
available to the public information about the research, education, and other
activities relating to arthritis and other rheumatic diseases, conducted or
supported by the National Institutes of Health.
(f)Authorization
of AppropriationsThere are authorized to be appropriated to
carry out this section $1,000,000 for each of fiscal years 2010 through
2014.
.
4.Expansion,
intensification, and innovation of research and public Health activities
related to juvenile arthritis
(a)Juvenile
Arthritis Initiative Through the Director of the National Institutes of
HealthPart A of title IV of the Public Health Service Act (42 U.S.C. 281 et
seq.) is amended by adding at the end the following:
404I.Juvenile
arthritis initiative through the director of the National Institutes of
Health
(a)Expansion and
Intensification of Activities
(1)The Director of NIH, in coordination with the Director of
the National Institute of Arthritis and Musculoskeletal and Skin Diseases, and
the directors of the other national research institutes, as appropriate, shall
expand and intensify programs of the National Institutes of Health with respect
to research and related activities concerning various forms of juvenile
arthritis.
(2)The
directors referred to in paragraph (1) shall jointly coordinate the programs
referred to in such paragraph and consult with additional Federal officials,
voluntary health associations, medical professional societies, and private
entities as appropriate.
(b)Planning Grants
and Contracts for Innovative Research in Juvenile Arthritis
(1)In carrying out subsection (a)(1) the Director of NIH
shall award planning grants or contracts for the establishment of new research
programs, or enhancement of existing research programs, that focus on juvenile
arthritis.
(2)
(A)In carrying out this subsection, the Secretary shall
encourage research that focus on genetics, on the development of biomarkers,
and on pharmacological and other therapies.
(B)In
awarding planning grants or contracts under paragraph (1), the Director of NIH
may give priority to collaborative partnerships, which may include academic
health centers, private sector entities, and nonprofit organizations.
(c)Authorization
of Appropriations
(1)There are authorized to be appropriated to carry out this
section—
(A)$12,000,000 for
fiscal year 2010;
(B)$14,000,000 for
fiscal year 2011;
(C)$16,000,000 for
fiscal year 2012;
(D)$18,000,000 for
fiscal year 2013; and
(E)$20,000,000 for
fiscal year 2014.
(2)Such authorization shall be in addition to any
authorization of appropriations under any other provision of law to carry out
juvenile arthritis activities or other arthritis-related
research.
.
(b)Public Health
and Surveillance Activities Related to Juvenile Arthritis at the Centers for
Disease Control and PreventionPart B of title III of the
Public Health Service Act (42 U.S.C.
243 et seq.) is amended by inserting after section 320A the following:
320B.Surveillance
and research regarding juvenile arthritis
(a)The Secretary, acting through the Director of the Centers
for Disease Control and Prevention, may award grants to and enter into
cooperative agreements with public or nonprofit private entities for the
collection, analysis, and reporting of data on juvenile arthritis.
(b)In awarding grants and entering into agreements under
subsection (a), the Secretary may provide direct technical assistance in lieu
of cash.
(c)The Secretary shall ensure that epidemiological and
other types of information obtained under subsection (a) is made available to
the National Institutes of Health.
(d)Creation of a
National Juvenile Arthritis Patient RegistryThe Secretary,
acting through the Director of the Centers for Disease Control and Prevention
and in collaboration with a national voluntary health organization with
experience serving the juvenile arthritis population as well as the full
spectrum of arthritis-related conditions, shall support the development of a
National Juvenile Arthritis Patient Registry to collect specific data for
follow-up studies regarding the prevalence and incidence of juvenile arthritis,
as well as capturing information on evidence-based health outcomes related to
specific therapies and interventions.
(e)Authorization
of AppropriationsThere are authorized to be appropriated to
carry out this section $40,000,000 for each of fiscal years 2010 through
2014.
.
5.Investment in
tomorrow’s pediatric rheumatologists
(a)Part Q of title III of the Public Health Service Act (42 U.S.C. 280h et
seq.) is amended by adding at the end the following:
399Z–1.Investment
in tomorrow’s pediatric rheumatologists
(a)In order to ensure an adequate future supply of pediatric
rheumatologists, the Secretary, in consultation with the Administrator of the
Health Resources and Services Administration, shall support activities that
provide for—
(1)an increase in
the number and size of institutional training grants awarded to institutions to
support pediatric rheumatology training; and
(2)an expansion of
public-private partnerships to encourage academic institutions, private sector
entities, and health agencies to promote educational training and fellowship
opportunities for pediatric rheumatologists.
(b)There
are authorized to be appropriated to carry out this section $4,000,000 for each
of fiscal years 2010 through
2014.
.
(b)Pediatric Loan
Repayment ProgramPart Q of title III of the
Public Health Service Act (42 U.S.C.
280h et seq.), as amended by subsection (a), is further amended by adding at
the end the following:
399Z–2.Pediatric
rheumatology loan repayment program
(a)The Secretary, in consultation with the Administrator of
the Health Resources and Services Administration, may establish a pediatric
rheumatology loan repayment program.
(b)Through the program established under subsection
(a), the Secretary shall—
(1)enter into
contracts with qualified health professionals who are pediatric rheumatologists
under which—
(A)such
professionals agree to provide health care in an area with a shortage of
pediatric rheumatologists; and
(B)the Federal
Government agrees to repay, for each year of such service, not more than
$25,000 of the principal and interest of the educational loans of such
professionals; and
(2)in addition to
making payments under paragraph (1) on behalf of an individual, make payments
to the individual for the purpose of providing reimbursement for tax liability
resulting from the payments made under paragraph (1), in an amount equal to 39
percent of the total amount of the payments made for the taxable year
involved.
(c)Authorization
of AppropriationsThere are authorized to be appropriated to
carry out this section—
(1)$3,500,000 for
fiscal year 2010;
(2)$4,000,000 for
fiscal year 2011;
(3)$4,500,000 for
fiscal year 2012;
(4)$5,000,000 for
fiscal year 2013; and
(5)$5,500,000 for
fiscal year
2014.
.
6.Career
development awards in pediatric rheumatologyPart G of title IV of the
Public Health Service Act (42 U.S.C.
288 et seq.) is amended—
(1)by redesignating
section 487F (as added by Public Law 106–310) as section 487G;
(2)by inserting
after section 487G (as so redesignated) the following:
487H.Career
development awards in pediatric rheumatology
(a)The Secretary, in consultation with the Director of NIH,
may establish a program to increase the number of career development awards for
health professionals who intend to build careers in clinical and translational
research relating to pediatric rheumatology.
(b)Authorization
of AppropriationsThere are authorized to be appropriated to
carry out this section—
(1)$900,000 for
fiscal year 2010;
(2)$1,400,000 for
fiscal year 2011;
(3)$1,900,000 for
fiscal year 2012;
(4)$2,400,000 for
fiscal year 2013; and
(5)$2,900,000 for
fiscal year
2014.
.
7.General
accounting office study of arthritis and the workplace
(a)Not later than 3 years after the date of enactment of this
Act, the Comptroller General of the United States shall conduct a study on the
economic impact of arthritis in the workplace, and submit a report to the
appropriate committees of Congress containing the results of the study.
(b)Authorization
of AppropriationsThere are authorized to be appropriated such
sums as may be necessary to carry out this section.