1.This Act may be cited as the
National Alzheimer's Project
Act
.
2.Office of the
National Alzheimer's Project
(a)There is established
in the Office of the Secretary of Health and Human Services the Office of the
National Alzheimer's Project (referred to in this Act as the
Office
).
(b)The Office
shall—
(1)accelerate the
development of treatments that would prevent, halt, or reverse the course of
Alzheimer's;
(2)be responsible for
the creation and maintenance of an integrated national plan to overcome
Alzheimer's;
(3)help to coordinate the health care and
treatment of citizens with Alzheimer’s;
(4)ensure the
inclusion of ethnic and racial populations at higher risk for Alzheimer's or
least likely to receive care, in clinical, research, and service efforts with
the purpose of decreasing health disparities in Alzheimer's;
(5)coordinate with
international bodies to integrate and inform the fight against Alzheimer’s
globally; and
(6)provide
information and coordination of Alzheimer’s research and services across all
Federal agencies.
(c)
(1)The
President shall appoint a Director of the Office.
(2)
(A)The Director of the Office shall—
(i)oversee the
creation and updating of the national plan described in subparagraph
(B);
(ii)use discretionary
authority to evaluate all Federal programs around Alzheimer's, including budget
requests and approvals; and
(iii)prepare and
submit to the President the annual budget estimate for the Office.
(B)The Director of the Office shall carry out an annual
assessment of the Nation’s progress in preparing for the escalating burden of
Alzheimer's, including both implementation steps and recommendations for
priority actions based on the assessment.
(3)The Director of the Office shall serve on the advisory
board of the Office of Science and Technology to promote research efforts into
mechanisms to slow and stop the development of Alzheimer’s for those at risk of
developing the disease.
(d)
(1)There is established in the Office an Advisory Council on
Alzheimer's Research and Treatment (referred to in this Act as the
Advisory Council
).
(2)
(A)The Advisory Council shall be comprised of the following
experts:
(i)A designee of the
Centers for Disease Control and Prevention.
(ii)A designee of the
Administration on Aging.
(iii)A designee of
the Centers for Medicare & Medicaid Services.
(iv)A designee of the
Indian Health Service.
(v)A designee of the
Office of the Director of the National Institutes of Health.
(vi)The Surgeon
General.
(vii)A designee of
the National Science Foundation.
(viii)A designee of
the Department of Veterans Affairs.
(B)In addition to the members outlined in subparagraph (A),
the Advisory Council shall include 12 expert members from outside the Federal
Government, which shall include—
(i)2 Alzheimer
patient advocates;
(ii)2 Alzheimer
caregivers;
(iii)2 health care
providers;
(iv)2 representatives
of State health departments;
(v)2 researchers with
Alzheimer-related expertise in basic, translational, clinical, or drug
development science; and
(vi)2 voluntary
health association representatives, including a national Alzheimer’s disease
organization that funds research and has demonstrated experience in care and
patient services, and a State-based advocacy organization that provides
services to families and professionals, including information and referral,
support groups, care consultation, education, and safety services.
(3)The
Advisory Council shall meet quarterly and such meetings shall be open to the
public.
(4)The
Advisory Council shall advise the Director of the Office.
(5)The Advisory Council shall provide to the Director of the
Office—
(A)recommendations
for information to be included in the annual report to Congress by the Office;
and
(B)an annually
updated national plan.
(e)The Director of the Office shall submit to
Congress—
(1)an annual report
that includes an evaluation of all nationally and federally funded efforts in
Alzheimer's research, clinical care, institutional, and home- and
community-based programs and their outcomes; and
(2)an annually
updated national plan.
(f)The
Office shall expire on December 31, 2025.
1.This Act may be cited as the
National Alzheimer's Project
Act
.
2.The National Alzheimer's
Project
(a)Definition of
Alzheimer'sIn this Act, the term Alzheimer's
means Alzheimer's disease and related dementias.
(b)There is established in the Office of the
Secretary of Health and Human Services the National Alzheimer's Project
(referred to in this Act as the Project
).
(c)The Secretary of
Health and Human Services, or the Secretary's designee, shall—
(1)be responsible for the
creation and maintenance of an integrated national plan to overcome
Alzheimer's;
(2)provide information and
coordination of Alzheimer’s research and services across all Federal
agencies;
(3)accelerate the
development of treatments that would prevent, halt, or reverse the course of
Alzheimer's;
(4)improve the—
(A)early diagnosis of Alzheimer's disease;
and
(B)coordination of the care and treatment of
citizens with Alzheimer’s;
(5)ensure the inclusion of
ethnic and racial populations at higher risk for Alzheimer's or least likely to
receive care, in clinical, research, and service efforts with the purpose of
decreasing health disparities in Alzheimer's; and
(6)coordinate with
international bodies to integrate and inform the fight against Alzheimer’s
globally.
(d)
(1)The Secretary of Health and Human Services, or the
Secretary's designee, shall—
(A)oversee the creation and
updating of the national plan described in paragraph (2); and
(B)use discretionary
authority to evaluate all Federal programs around Alzheimer's, including budget
requests and approvals.
(2)The Secretary of Health and Human Services, or the
Secretary's designee, shall carry out an annual assessment of the Nation’s
progress in preparing for the escalating burden of Alzheimer's, including both
implementation steps and recommendations for priority actions based on the
assessment.
(e)
(1)There is established an Advisory Council on Alzheimer's
Research, Care, and Services (referred to in this Act as the Advisory
Council
).
(2)
(A)The Advisory Council shall be comprised of the following
experts:
(i)A designee of the Centers
for Disease Control and Prevention.
(ii)A designee of the
Administration on Aging.
(iii)A designee of the
Centers for Medicare & Medicaid Services.
(iv)A designee of the Indian
Health Service.
(v)A designee of the Office
of the Director of the National Institutes of Health.
(vi)The Surgeon
General.
(vii)A designee of the
National Science Foundation.
(viii)A designee of the
Department of Veterans Affairs.
(ix)A designee of the Food
and Drug Administration.
(x)A designee of the Agency
for Healthcare Research and Quality.
(B)In addition to the members outlined in subparagraph (A),
the Advisory Council shall include 12 expert members from outside the Federal
Government, which shall include—
(i)2 Alzheimer's patient
advocates;
(ii)2 Alzheimer's
caregivers;
(iii)2 health care
providers;
(iv)2 representatives of
State health departments;
(v)2 researchers with
Alzheimer's-related expertise in basic, translational, clinical, or drug
development science; and
(vi)2 voluntary health
association representatives, including a national Alzheimer’s disease
organization that has demonstrated experience in research, care, and patient
services, and a State-based advocacy organization that provides services to
families and professionals, including information and referral, support groups,
care consultation, education, and safety services.
(3)The
Advisory Council shall meet quarterly and such meetings shall be open to the
public.
(4)The
Advisory Council shall advise the Secretary of Health and Human Services, or
the Secretary's designee.
(5)The Advisory Council shall provide to the Secretary of
Health and Human Services, or the Secretary's designee and Congress—
(A)an initial evaluation of
all federally funded efforts in Alzheimer's research, clinical care, and
institutional-, home-, and community-based programs and their outcomes;
(B)initial recommendations
for priority actions to expand, eliminate, coordinate, or condense programs
based on the program's performance, mission, and purpose;
(C)initial recommendations
to—
(i)reduce the financial
impact of Alzheimer's on—
(I)Medicare and other
federally funded programs; and
(II)families living with
Alzheimer's disease; and
(ii)improve health outcomes;
and
(D)annually thereafter, an
evaluation of the implementation, including outcomes, of the recommendations,
including priorities if necessary, through an updated national plan under
subsection (d)(2).
(6)The
Advisory Council shall terminate on December 31, 2025.
(f)Agencies both within the Department of Health and Human
Services and outside of the Department that have data relating to Alzheimer’s
shall share such data with the Secretary of Health and Human Services, or the
Secretary's designee, to enable the Secretary, or the Secretary's designee, to
complete the report described in subsection (g).
(g)The Secretary of Health and Human Services, or the
Secretary's designee, shall submit to Congress—
(1)an annual report that
includes an evaluation of all federally funded efforts in Alzheimer's research,
clinical care, and institutional-, home-, and community-based programs and
their outcomes;
(2)an evaluation of all
federally funded programs based on program performance, mission, and purpose
related to Alzheimer's disease;
(3)recommendations
for—
(A)priority actions based on
the evaluation conducted by the Secretary and the Advisory Council to—
(i)reduce the financial
impact of Alzheimer's on—
(I)Medicare and other
federally funded programs; and
(II)families living with
Alzheimer's disease; and
(ii)improve health
outcomes;
(B)implementation steps;
and
(C)priority actions to
improve the prevention, diagnosis, treatment, care, institutional-, home-, and
community-based programs of Alzheimer's disease for individuals with
Alzheimer's disease and their caregivers; and
(4)an annually updated
national plan.
(h)The
Project shall expire on December 31, 2025.
Amend the title so as to read:
A bill to establish the National Alzheimer's
Project.
.
December 6, 2010
Reported with an amendment and an amendment to the
title