[Congressional Bills 111th Congress]
[From the U.S. Government Publishing Office]
[S. 3036 Engrossed in Senate (ES)]

111th CONGRESS
  2d Session
                                S. 3036

_______________________________________________________________________

                                 AN ACT


 
             To establish the National Alzheimer's Project.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``National Alzheimer's Project Act''.

SEC. 2. THE NATIONAL ALZHEIMER'S PROJECT.

    (a) Definition of Alzheimer's.--In this Act, the term 
``Alzheimer's'' means Alzheimer's disease and related dementias.
    (b) Establishment.--There is established in the Office of the 
Secretary of Health and Human Services the National Alzheimer's Project 
(referred to in this Act as the ``Project'').
    (c) Purpose of the Project.--The Secretary of Health and Human 
Services, or the Secretary's designee, shall--
            (1) be responsible for the creation and maintenance of an 
        integrated national plan to overcome Alzheimer's;
            (2) provide information and coordination of Alzheimer's 
        research and services across all Federal agencies;
            (3) accelerate the development of treatments that would 
        prevent, halt, or reverse the course of Alzheimer's;
            (4) improve the--
                    (A) early diagnosis of Alzheimer's disease; and
                    (B) coordination of the care and treatment of 
                citizens with Alzheimer's;
            (5) ensure the inclusion of ethnic and racial populations 
        at higher risk for Alzheimer's or least likely to receive care, 
        in clinical, research, and service efforts with the purpose of 
        decreasing health disparities in Alzheimer's; and
            (6) coordinate with international bodies to integrate and 
        inform the fight against Alzheimer's globally.
    (d) Duties of the Secretary.--
            (1) In general.--The Secretary of Health and Human 
        Services, or the Secretary's designee, shall--
                    (A) oversee the creation and updating of the 
                national plan described in paragraph (2); and
                    (B) use discretionary authority to evaluate all 
                Federal programs around Alzheimer's, including budget 
                requests and approvals.
            (2) National plan.--The Secretary of Health and Human 
        Services, or the Secretary's designee, shall carry out an 
        annual assessment of the Nation's progress in preparing for the 
        escalating burden of Alzheimer's, including both implementation 
        steps and recommendations for priority actions based on the 
        assessment.
    (e) Advisory Council.--
            (1) In general.--There is established an Advisory Council 
        on Alzheimer's Research, Care, and Services (referred to in 
        this Act as the ``Advisory Council'').
            (2) Membership.--
                    (A) Federal members.--The Advisory Council shall be 
                comprised of the following experts:
                            (i) A designee of the Centers for Disease 
                        Control and Prevention.
                            (ii) A designee of the Administration on 
                        Aging.
                            (iii) A designee of the Centers for 
                        Medicare & Medicaid Services.
                            (iv) A designee of the Indian Health 
                        Service.
                            (v) A designee of the Office of the 
                        Director of the National Institutes of Health.
                            (vi) The Surgeon General.
                            (vii) A designee of the National Science 
                        Foundation.
                            (viii) A designee of the Department of 
                        Veterans Affairs.
                            (ix) A designee of the Food and Drug 
                        Administration.
                            (x) A designee of the Agency for Healthcare 
                        Research and Quality.
                    (B) Non-federal members.--In addition to the 
                members outlined in subparagraph (A), the Advisory 
                Council shall include 12 expert members from outside 
                the Federal Government, which shall include--
                            (i) 2 Alzheimer's patient advocates;
                            (ii) 2 Alzheimer's caregivers;
                            (iii) 2 health care providers;
                            (iv) 2 representatives of State health 
                        departments;
                            (v) 2 researchers with Alzheimer's-related 
                        expertise in basic, translational, clinical, or 
                        drug development science; and
                            (vi) 2 voluntary health association 
                        representatives, including a national 
                        Alzheimer's disease organization that has 
                        demonstrated experience in research, care, and 
                        patient services, and a State-based advocacy 
                        organization that provides services to families 
                        and professionals, including information and 
                        referral, support groups, care consultation, 
                        education, and safety services.
            (3) Meetings.--The Advisory Council shall meet quarterly 
        and such meetings shall be open to the public.
            (4) Advice.--The Advisory Council shall advise the 
        Secretary of Health and Human Services, or the Secretary's 
        designee.
            (5) Annual report.--The Advisory Council shall provide to 
        the Secretary of Health and Human Services, or the Secretary's 
        designee and Congress--
                    (A) an initial evaluation of all federally funded 
                efforts in Alzheimer's research, clinical care, and 
                institutional-, home-, and community-based programs and 
                their outcomes;
                    (B) initial recommendations for priority actions to 
                expand, eliminate, coordinate, or condense programs 
                based on the program's performance, mission, and 
                purpose;
                    (C) initial recommendations to--
                            (i) reduce the financial impact of 
                        Alzheimer's on--
                                    (I) Medicare and other federally 
                                funded programs; and
                                    (II) families living with 
                                Alzheimer's disease; and
                            (ii) improve health outcomes; and
                    (D) annually thereafter, an evaluation of the 
                implementation, including outcomes, of the 
                recommendations, including priorities if necessary, 
                through an updated national plan under subsection 
                (d)(2).
            (6) Termination.--The Advisory Council shall terminate on 
        December 31, 2025.
    (f) Data Sharing.--Agencies both within the Department of Health 
and Human Services and outside of the Department that have data 
relating to Alzheimer's shall share such data with the Secretary of 
Health and Human Services, or the Secretary's designee, to enable the 
Secretary, or the Secretary's designee, to complete the report 
described in subsection (g).
    (g) Annual Report.--The Secretary of Health and Human Services, or 
the Secretary's designee, shall submit to Congress--
            (1) an annual report that includes an evaluation of all 
        federally funded efforts in Alzheimer's research, clinical 
        care, and institutional-, home-, and community-based programs 
        and their outcomes;
            (2) an evaluation of all federally funded programs based on 
        program performance, mission, and purpose related to 
        Alzheimer's disease;
            (3) recommendations for--
                    (A) priority actions based on the evaluation 
                conducted by the Secretary and the Advisory Council 
                to--
                            (i) reduce the financial impact of 
                        Alzheimer's on--
                                    (I) Medicare and other federally 
                                funded programs; and
                                    (II) families living with 
                                Alzheimer's disease; and
                            (ii) improve health outcomes;
                    (B) implementation steps; and
                    (C) priority actions to improve the prevention, 
                diagnosis, treatment, care, institutional-, home-, and 
                community-based programs of Alzheimer's disease for 
                individuals with Alzheimer's disease and their 
                caregivers; and
            (4) an annually updated national plan.
    (h) Sunset.--The Project shall expire on December 31, 2025.

            Passed the Senate December 8, 2010.

            Attest:

                                                             Secretary.
111th CONGRESS

  2d Session

                                S. 3036

_______________________________________________________________________

                                 AN ACT

             To establish the National Alzheimer's Project.