[Congressional Bills 111th Congress]
[From the U.S. Government Publishing Office]
[S. 3036 Enrolled Bill (ENR)]
S.3036
One Hundred Eleventh Congress
of the
United States of America
AT THE SECOND SESSION
Begun and held at the City of Washington on Tuesday,
the fifth day of January, two thousand and ten
An Act
To establish the National Alzheimer's Project.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``National Alzheimer's Project Act''.
SEC. 2. THE NATIONAL ALZHEIMER'S PROJECT.
(a) Definition of Alzheimer's.--In this Act, the term
``Alzheimer's'' means Alzheimer's disease and related dementias.
(b) Establishment.--There is established in the Office of the
Secretary of Health and Human Services the National Alzheimer's Project
(referred to in this Act as the ``Project'').
(c) Purpose of the Project.--The Secretary of Health and Human
Services, or the Secretary's designee, shall--
(1) be responsible for the creation and maintenance of an
integrated national plan to overcome Alzheimer's;
(2) provide information and coordination of Alzheimer's
research and services across all Federal agencies;
(3) accelerate the development of treatments that would
prevent, halt, or reverse the course of Alzheimer's;
(4) improve the--
(A) early diagnosis of Alzheimer's disease; and
(B) coordination of the care and treatment of citizens with
Alzheimer's;
(5) ensure the inclusion of ethnic and racial populations at
higher risk for Alzheimer's or least likely to receive care, in
clinical, research, and service efforts with the purpose of
decreasing health disparities in Alzheimer's; and
(6) coordinate with international bodies to integrate and
inform the fight against Alzheimer's globally.
(d) Duties of the Secretary.--
(1) In general.--The Secretary of Health and Human Services, or
the Secretary's designee, shall--
(A) oversee the creation and updating of the national plan
described in paragraph (2); and
(B) use discretionary authority to evaluate all Federal
programs around Alzheimer's, including budget requests and
approvals.
(2) National plan.--The Secretary of Health and Human Services,
or the Secretary's designee, shall carry out an annual assessment
of the Nation's progress in preparing for the escalating burden of
Alzheimer's, including both implementation steps and
recommendations for priority actions based on the assessment.
(e) Advisory Council.--
(1) In general.--There is established an Advisory Council on
Alzheimer's Research, Care, and Services (referred to in this Act
as the ``Advisory Council'').
(2) Membership.--
(A) Federal members.--The Advisory Council shall be
comprised of the following experts:
(i) A designee of the Centers for Disease Control and
Prevention.
(ii) A designee of the Administration on Aging.
(iii) A designee of the Centers for Medicare & Medicaid
Services.
(iv) A designee of the Indian Health Service.
(v) A designee of the Office of the Director of the
National Institutes of Health.
(vi) The Surgeon General.
(vii) A designee of the National Science Foundation.
(viii) A designee of the Department of Veterans
Affairs.
(ix) A designee of the Food and Drug Administration.
(x) A designee of the Agency for Healthcare Research
and Quality.
(B) Non-federal members.--In addition to the members
outlined in subparagraph (A), the Advisory Council shall
include 12 expert members from outside the Federal Government,
which shall include--
(i) 2 Alzheimer's patient advocates;
(ii) 2 Alzheimer's caregivers;
(iii) 2 health care providers;
(iv) 2 representatives of State health departments;
(v) 2 researchers with Alzheimer's-related expertise in
basic, translational, clinical, or drug development
science; and
(vi) 2 voluntary health association representatives,
including a national Alzheimer's disease organization that
has demonstrated experience in research, care, and patient
services, and a State-based advocacy organization that
provides services to families and professionals, including
information and referral, support groups, care
consultation, education, and safety services.
(3) Meetings.--The Advisory Council shall meet quarterly and
such meetings shall be open to the public.
(4) Advice.--The Advisory Council shall advise the Secretary of
Health and Human Services, or the Secretary's designee.
(5) Annual report.--The Advisory Council shall provide to the
Secretary of Health and Human Services, or the Secretary's designee
and Congress--
(A) an initial evaluation of all federally funded
efforts in Alzheimer's research, clinical care, and
institutional-, home-, and community-based programs and their
outcomes;
(B) initial recommendations for priority actions to expand,
eliminate, coordinate, or condense programs based on the
program's performance, mission, and purpose;
(C) initial recommendations to--
(i) reduce the financial impact of Alzheimer's on--
(I) Medicare and other federally funded programs;
and
(II) families living with Alzheimer's disease; and
(ii) improve health outcomes; and
(D) annually thereafter, an evaluation of the
implementation, including outcomes, of the recommendations,
including priorities if necessary, through an updated national
plan under subsection (d)(2).
(6) Termination.--The Advisory Council shall terminate on
December 31, 2025.
(f) Data Sharing.--Agencies both within the Department of Health
and Human Services and outside of the Department that have data
relating to Alzheimer's shall share such data with the Secretary of
Health and Human Services, or the Secretary's designee, to enable the
Secretary, or the Secretary's designee, to complete the report
described in subsection (g).
(g) Annual Report.--The Secretary of Health and Human Services, or
the Secretary's designee, shall submit to Congress--
(1) an annual report that includes an evaluation of all
federally funded efforts in Alzheimer's research, clinical care,
and institutional-, home-, and community-based programs and their
outcomes;
(2) an evaluation of all federally funded programs based on
program performance, mission, and purpose related to Alzheimer's
disease;
(3) recommendations for--
(A) priority actions based on the evaluation conducted by
the Secretary and the Advisory Council to--
(i) reduce the financial impact of Alzheimer's on--
(I) Medicare and other federally funded programs;
and
(II) families living with Alzheimer's disease; and
(ii) improve health outcomes;
(B) implementation steps; and
(C) priority actions to improve the prevention, diagnosis,
treatment, care, institutional-, home-, and community-based
programs of Alzheimer's disease for individuals with
Alzheimer's disease and their caregivers; and
(4) an annually updated national plan.
(h) Sunset.--The Project shall expire on December 31, 2025.
Speaker of the House of Representatives.
Vice President of the United States and
President of the Senate.