[Congressional Bills 111th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 1477 Introduced in House (IH)]

111th CONGRESS
  2d Session
H. RES. 1477

Expressing support for the designation of May as Ehlers-Danlos Syndrome 
    Awareness Month to increase the knowledge of this little-known, 
                  potentially fatal, genetic disease.


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                    IN THE HOUSE OF REPRESENTATIVES

                             June 24, 2010

 Mr. Kildee submitted the following resolution; which was referred to 
                  the Committee on Energy and Commerce

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                               RESOLUTION


 
Expressing support for the designation of May as Ehlers-Danlos Syndrome 
    Awareness Month to increase the knowledge of this little-known, 
                  potentially fatal, genetic disease.

Whereas Ehlers-Danlos Syndrome represents multiple genetic disorders involving 
        mutations in connective tissue that are characterized by looseness, 
        instability, and dislocation of the joints and fragile skin that easily 
        bruises and scars;
Whereas there are 6 major types of Ehlers-Danlos Syndrome that are characterized 
        by distinctive features, with vascular Ehlers-Danlos Syndrome being the 
        most severe;
Whereas it is estimated that the prevalence of all types of the syndrome affect 
        up to 1 in 5,000 people worldwide;
Whereas a network of Ehlers-Danlos Syndrome support groups can help connect 
        those managing life with the disease as well as better inform the health 
        care community and the public;
Whereas early and accurate diagnosis can provide the opportunity to create 
        lifesaving medical plans and ensure the quality of life;
Whereas there is currently no treatment for Ehlers-Danlos Syndrome and no known 
        cure;
Whereas further medical research and awareness bring hope for treatment and a 
        cure; and
Whereas the month of May would be an appropriate month to designate as Ehlers-
        Danlos Syndrome Awareness Month: Now, therefore, be it
    Resolved, That the House of Representatives--
            (1) supports the designation of Ehlers-Danlos Syndrome 
        Awareness Month;
            (2) honors those bravely suffering from Ehlers-Danlos 
        Syndrome; and
            (3) encourages scientific research and funding to find a 
        cure for Ehlers-Danlos Syndrome.
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