III 109th CONGRESS 1st Session S. RES. 115 IN THE SENATE OF THE UNITED STATES April 20, 2005 Mr. Salazar (for himself, Mrs. Murray, Mr. Coleman, Mr. Wyden, Mrs. Dole, Mr. Durbin, Mr. Bunning, Mr. Kennedy, and Mrs. Feinstein) submitted the following resolution; which was referred to the Committee on the Judiciary RESOLUTION Designating May 2005 as National Cystic Fibrosis Awareness Month.

Whereas cystic fibrosis, characterized by chronic lung infections and digestive disorders, is a fatal lung disease; Whereas cystic fibrosis is 1 of the most common genetic diseases in the United States and 1 for which there is no known cure; Whereas more than 10,000,000 Americans are unknowing carriers of the cystic fibrosis gene and individuals must have 2 copies to have the disease; Whereas 1 of every 3,500 babies born in the United States is born with cystic fibrosis; Whereas newborn screening for cystic fibrosis has been implemented by 12 States and facilitates early diagnosis and treatment which improves health and longevity; Whereas the Centers for Disease Control and Prevention and the Cystic Fibrosis Foundation recommend that all States consider newborn screening for cystic fibrosis; Whereas approximately 30,000 people in the United States have cystic fibrosis, many of them children; Whereas the average life expectancy of an individual with cystic fibrosis is in the mid-thirties, an improvement from a life expectancy of 10 years in the 1960s, but still unacceptably short; Whereas prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease; Whereas recent advances in cystic fibrosis research have produced promising leads in gene, protein, and drug therapies beneficial to people who have the disease; Whereas this innovative research is progressing faster and is being conducted more aggressively than ever before, due in part to the establishment of a model clinical trials network by the Cystic Fibrosis Foundation; Whereas the Cystic Fibrosis Foundation marks its 50th year in 2005, continues to fund a research pipeline for more than 2 dozen potential therapies, and funds a nationwide network of care centers that extend the length and the quality of life for people with cystic fibrosis, but lives continue to be lost to this disease every day; and Whereas education of the public on cystic fibrosis, including the symptoms of the disease, increases knowledge and understanding of cystic fibrosis and promotes early diagnosis: Now, therefore, be it

That the Senate— (1)designates May 2005 as National Cystic Fibrosis Awareness Month; (2)calls on the people of the United States to promote awareness of cystic fibrosis and actively participate in support of research to control or cure cystic fibrosis, by observing the month with appropriate ceremonies and activities; and (3)supports the goals of— (A)increasing the quality of life for individuals with cystic fibrosis by promoting public knowledge and understanding in a manner that will result in earlier diagnoses; (B)encouraging increased resources for research; and (C)increasing levels of support for people who have cystic fibrosis and their families.