[Congressional Bills 109th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 85 Introduced in House (IH)]






109th CONGRESS
  1st Session
H. RES. 85

        Supporting the goals and ideals of ``National MPS Day''.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                           February 10, 2005

 Mr. Kind (for himself, Mr. Kingston, Mr. McNulty, Mr. Foley, and Mr. 
  Dent) submitted the following resolution; which was referred to the 
                     Committee on Government Reform

_______________________________________________________________________

                               RESOLUTION


 
        Supporting the goals and ideals of ``National MPS Day''.

Whereas mucopolysaccharidoses and mucolipidoses (commonly known as ``MPS 
        disorders'') are genetically determined lysosomal storage disorders that 
        result in the inability of the body to produce certain enzymes needed to 
        break down complex carbohydrates;
Whereas in individuals with MPS disorders, complex carbohydrates are stored in 
        virtually every cell in the body and progressively cause damage to the 
        cells, affecting multiple systems, including the bones, heart and other 
        internal organs, respiratory system, and central nervous system;
Whereas the cellular damage caused by MPS disorders results in mental 
        retardation, short stature, corneal damage, joint stiffness, loss of 
        mobility, speech and hearing impairment, heart disease, hyperactivity, 
        chronic respiratory problems, and, most importantly, drastically 
        shortened life span;
Whereas the nature of MPS disorders is usually not apparent at birth, and, 
        without treatment, life expectancy is usually very short;
Whereas the multisystemic damage that is caused by MPS disorders makes the 
        disorders ideal models for many other degenerative genetic disorders;
Whereas recent research developments have resulted in limited treatments for 
        some MPS disorders, and promising advancements are underway in pursuit 
        of treatments for additional MPS disorders;
Whereas treatments and research advancements for MPS disorders are limited by 
        lack of awareness about the disorders, even within the medical 
        community;
Whereas the development of early detection and intervention techniques, 
        effective treatments, and a potential cure for MPS disorders can be 
        accomplished by research, data collection, and information distribution;
Whereas increased public and professional awareness and continued public funding 
        will assist in the development of new techniques, treatments, and cures 
        for MPS disorders, which will greatly enhance the quality of life for 
        individuals with MPS disorders;
Whereas the National MPS Society, Inc., a group ultimately dedicated to finding 
        a cure for MPS disorders, has designated February 25 of each year as 
        ``National MPS Day''; and
Whereas the designation of ``National MPS Day'' provides an opportunity to 
        increase public and professional awareness about mucopolysaccharidoses 
        and mucolipidoses, and to encourage research for early diagnosis, 
        effective treatments, and a potential cure for MPS disorders: Now, 
        therefore, be it
    Resolved, That the House of Representatives supports the goals and 
ideals of ``National MPS Day''.
                                 <all>