<enum>XXIX</enum><header>Lifespan respite care</header> <section id="HE33D89CF526F4D9CA0A083BF91DE006E"><enum>2901.</enum><header>Definitions</header><text display-inline="no-display-inline">In this title:</text> <paragraph id="H7FF6EDE0618540298E1C00B431A877AF"><enum>(1)</enum><header>Adult with a special need</header><text>The term <term>adult with a special need</term> means a person 18 years of age or older who requires care or supervision to—</text> <subparagraph id="HAF22F2CF0D7448AEB0F6E75E52C4EFA3"><enum>(A)</enum><text>meet the person’s basic needs;</text></subparagraph> <subparagraph id="H9E25B439E6554F16ABC0BDB3DBA7CF3E"><enum>(B)</enum><text>prevent physical self-injury or injury to others; or</text></subparagraph> <subparagraph id="HD67D8C5B27654BFFB92D761D49BAA453"><enum>(C)</enum><text>avoid placement in an institutional facility.</text></subparagraph></paragraph> <paragraph id="H0A918B0C4D804F3492B02B6FDAFF7098"><enum>(2)</enum><header>Aging and disability resource center</header><text>The term <quote>aging and disability resource center</quote> means an entity administering a program established by the State, as part of the State’s system of long-term care, to provide a coordinated system for providing—</text> <subparagraph id="H08FD46C074A345BE9F1EC12939757378" display-inline="no-display-inline"><enum>(A)</enum><text>comprehensive information on available public and private long-term care programs, options, and resources;</text></subparagraph> <subparagraph id="H188819F8230D4C7E8B20FC74EE827CE0" display-inline="no-display-inline"><enum>(B)</enum><text>personal counseling to assist individuals in assessing their existing or anticipated long-term care needs, and developing and implementing a plan for long-term care designed to meet their specific needs and circumstances; and</text></subparagraph> <subparagraph id="HD03205E3D92D438800BA390056EAD4CD" display-inline="no-display-inline"><enum>(C)</enum><text>consumer access to the range of publicly supported long-term care programs for which consumers may be eligible, by serving as a convenient point of entry for such programs.</text></subparagraph></paragraph> <paragraph id="H584FE98DB8E248F8851DA327149393E"><enum>(3)</enum><header>Child with a special need</header><text>The term <quote>child with a special need</quote> means an individual less than 18 years of age who requires care or supervision beyond that required of children generally to—</text> <subparagraph id="H6DC668B950FE4862B334DC1795E897CF"><enum>(A)</enum><text>meet the child’s basic needs; or</text></subparagraph> <subparagraph id="H2EA2CF11B3D14F67AE83E487EAEC762B"><enum>(B)</enum><text>prevent physical injury, self-injury, or injury to others.</text></subparagraph></paragraph> <paragraph id="H9E0D9A2665F04AB38708C18E0891353C"><enum>(4)</enum><header>Eligible State agency</header><text>The term <quote>eligible State agency</quote> means a State agency that—</text> <subparagraph id="H6F6457FD8D3F400F93D7B16E39F246A6"><enum>(A)</enum><text>administers the State’s program under the Older Americans Act of 1965, administers the State’s program under title XIX of the Social Security Act, or is designated by the Governor of such State to administer the State’s programs under this title;</text></subparagraph> <subparagraph id="H892C16C14AE541D49B25C41F763DAC27"><enum>(B)</enum><text>is an aging and disability resource center;</text></subparagraph> <subparagraph id="H516613B76A554CAD8F56A9AF823D94A3"><enum>(C)</enum><text display-inline="yes-display-inline">works in collaboration with a public or private nonprofit statewide respite care coalition or organization; and</text></subparagraph> <subparagraph id="HA101CAB380584A89BB81DFC649D0AE24"><enum>(D)</enum><text> demonstrates—</text> <clause id="HF9EED4C2BE0B4059AC143BF2562851B6"><enum>(i)</enum><text>an ability to work with other State and community-based agencies;</text></clause> <clause id="H264EF171B74C44768301BC5C36CB3B07"><enum>(ii)</enum><text>an understanding of respite care and family caregiver issues across all age groups, disabilities, and chronic conditions; and</text></clause> <clause id="H27FB0BC6847240218552421D72B6BF7D"><enum>(iii)</enum><text>the capacity to ensure meaningful involvement of family members, family caregivers, and care recipients.</text></clause></subparagraph></paragraph> <paragraph id="H51A8ED02D1954E6F8C9B44F98EC10051"><enum>(5)</enum><header>Family caregiver</header><text>The term <quote>family caregiver</quote> means an unpaid family member, a foster parent, or another unpaid adult, who provides in-home monitoring, management, supervision, or treatment of a child or adult with a special need.</text></paragraph> <paragraph id="HC7032B0206D14ACC86A94D1E3B60EAF2"><enum>(6)</enum><header>Lifespan respite care</header><text>The term <quote>lifespan respite care</quote> means a coordinated system of accessible, community-based respite care services for family caregivers of children or adults with special needs.</text></paragraph> <paragraph id="HF5EAA51ABE494DD1B9862ED1FD8FEB06"><enum>(7)</enum><header>Respite care</header><text>The term <quote>respite care</quote> means planned or emergency care provided to a child or adult with a special need in order to provide temporary relief to the family caregiver of that child or adult.</text></paragraph> <paragraph id="H4EC83A0D81B046A29D89A573BACA1385"><enum>(8)</enum><header>State</header><text>The term <quote>State</quote> means any of the several States, the District of Columbia, the Virgin Islands of the United States, the Commonwealth of Puerto Rico, Guam, American Samoa, and the Commonwealth of the Northern Mariana Islands.</text></paragraph></section> <section id="H338D1DF76D61445E9027E47DF22255F8"><enum>2902.</enum><header>Lifespan respite care grants and cooperative agreements</header> <subsection id="H93995A9D6E4A4B67AA99496763989F7C"><enum>(a)</enum><header>Purposes</header><text>The purposes of this section are—</text> <paragraph id="H57CC9C2635274317A46F5400C5EACC92"><enum>(1)</enum><text>to expand and enhance respite care services to family caregivers;</text></paragraph> <paragraph id="H8074458B93BA4D12B9E6AD44CB9CC72D"><enum>(2)</enum><text>to improve the statewide dissemination and coordination of respite care; and</text></paragraph> <paragraph id="H6BA72B1E0C92467F872BB022C9353E08"><enum>(3)</enum><text>to provide, supplement, or improve access and quality of respite care services to family caregivers, thereby reducing family caregiver strain.</text></paragraph></subsection> <subsection id="H196032AC8E794749A32C5E50A8886DAB"><enum>(b)</enum><header>Authorization</header><text>Subject to subsection (e), the Secretary is authorized to award grants or cooperative agreements for the purposes described in subsection (a) to eligible State agencies for which an application is submitted pursuant to subsection (d).</text></subsection> <subsection id="HA49C6B06BF774AC1B7DCDF5510C0BCC1"><enum>(c)</enum><header>Federal lifespan approach</header><text>In carrying out this section, the Secretary shall work in cooperation with the National Family Caregiver Support Program of the Administration on Aging and other respite care programs within the Department of Health and Human Services to ensure coordination of respite care services for family caregivers of children and adults with special needs.</text></subsection> <subsection id="H55F0D0D77C1147CEBD00ABE06283537"><enum>(d)</enum><header>Application</header> <paragraph id="H76AA0D662F194669B96C4E22E7FFF1F2"><enum>(1)</enum><header>Submission</header><text>Each Governor desiring the eligible State agency of his or her State to receive a grant or cooperative agreement under this section shall submit an application on behalf of such agency to the Secretary at such time, in such manner, and containing such information as the Secretary shall require.</text></paragraph> <paragraph id="HEE3F61D6843D404C928E2497EC683B87"><enum>(2)</enum><header>Contents</header><text>Each application submitted under this section shall include—</text> <subparagraph id="HF3B08F4BEC6F43E088979C0051D6C5D2"><enum>(A)</enum><text>a description of the eligible State agency’s—</text> <clause id="H7F62C713E0F445F0B863F53F6ED2DF03" display-inline="no-display-inline"><enum>(i)</enum><text>ability to work with other State and community-based agencies;</text></clause> <clause id="HF1554E2A16454C13AAA21B768939FC6"><enum>(ii)</enum><text>understanding of respite care and family caregiver issues across all age groups, disabilities, and chronic conditions; and</text></clause> <clause id="H6399362428594F86A7AFEF1F98DC9550"><enum>(iii)</enum><text>capacity to ensure meaningful involvement of family members, family caregivers, and care recipients;</text></clause></subparagraph> <subparagraph id="H4126C98B7C924F419126F9414547E0BB"><enum>(B)</enum><text>with respect to the population of family caregivers to whom respite care information or services will be provided or for whom respite care workers and volunteers will be recruited and trained, a description of—</text> <clause id="H7738D9B67FAF479B81FDB69212D85FB3"><enum>(i)</enum><text>the population of family caregivers;</text></clause> <clause id="H0E96AF9431404D799B80B9189FC50089"><enum>(ii)</enum><text>the extent and nature of the respite care needs of that population;</text></clause> <clause id="H4893140FBD1C435D897260BD54636B92"><enum>(iii)</enum><text>existing respite care services for that population, including numbers of family caregivers being served and extent of unmet need;</text></clause> <clause id="H949B5A6BE2AB4BAF9F2F45939EEE15FC"><enum>(iv)</enum><text>existing methods or systems to coordinate respite care information and services to the population at the State and local level and extent of unmet need;</text></clause> <clause id="H1076D25DFA724E56B0B707AAE43092B5"><enum>(v)</enum><text>how respite care information dissemination and coordination, respite care services, respite care worker and volunteer recruitment and training programs, or training programs for family caregivers that assist such family caregivers in making informed decisions about respite care services will be provided using grant or cooperative agreement funds;</text></clause> <clause id="HF8B1447FDF6E42F1A1E49BE8DCD996F"><enum>(vi)</enum><text>a plan for administration, collaboration, and coordination of the proposed respite care activities with other related services or programs offered by public or private, nonprofit entities, including area agencies on aging;</text></clause> <clause id="H5FBC80DB49E14B199850DF83E91C6516"><enum>(vii)</enum><text>how the population, including family caregivers, care recipients, and relevant public or private agencies, will participate in the planning and implementation of the proposed respite care activities;</text></clause> <clause id="HAC4CD7117359413593ABC4CAD8C81FA"><enum>(viii)</enum><text>how the proposed respite care activities will make use, to the maximum extent feasible, of other Federal, State, and local funds, programs, contributions, other forms of reimbursements, personnel, and facilities;</text></clause> <clause id="H51E9F6CCCF1D4033AA83918DA23D4DFC"><enum>(ix)</enum><text>respite care services available to family caregivers in the eligible State agency’s State or locality, including unmet needs and how the eligible State agency’s plan for use of funds will improve the coordination and distribution of respite care services for family caregivers of children and adults with special needs;</text></clause> <clause id="H248EB873B12A45BABF7EDE31721E9B7F"><enum>(x)</enum><text>the criteria used to identify family caregivers eligible for respite care services;</text></clause> <clause id="HF38CB4092FA1427782C2603874250000"><enum>(xi)</enum><text>how the quality and safety of any respite care services provided will be monitored, including methods to ensure that respite care workers and volunteers are appropriately screened and possess the necessary skills to care for the needs of the care recipient in the absence of the family caregiver; and</text></clause> <clause id="H00387529C9284A0E9B8CA574C7CA96C1"><enum>(xii)</enum><text>the results expected from proposed respite care activities and the procedures to be used for evaluating those results;</text></clause></subparagraph> <subparagraph id="H9C9621CF6BA746E59D831F267544BB22"><enum>(C)</enum><text>assurances that, where appropriate, the eligible State agency will have a system for maintaining the confidentiality of care recipient and family caregiver records; and</text></subparagraph> <subparagraph id="H4FAC6DECBC9747B1BA439D90D7FBB3BE"><enum>(D)</enum><text>a memorandum of agreement regarding the joint responsibility for the eligible State agency’s lifespan respite program between—</text> <clause id="H5AD8854837FC4228B252473B90EFD1F1"><enum>(i)</enum><text>the eligible State agency; and</text></clause> <clause id="HABE2AB96DA5A4E1E88C2A5BF21ADC80"><enum>(ii)</enum><text>a public or private nonprofit statewide respite coalition or organization.</text></clause></subparagraph></paragraph></subsection> <subsection id="H9CF291A431A24EF3BC4FA3014B8CFEF6"><enum>(e)</enum><header>Priority; considerations</header><text>When awarding grants or cooperative agreements under this section, the Secretary shall—</text> <paragraph id="HB55E1EE8F53048B38166BF91019FF541"><enum>(1)</enum><text>give priority to eligible State agencies that the Secretary determines show the greatest likelihood of implementing or enhancing lifespan respite care statewide; and</text></paragraph> <paragraph id="H26C774C18BF14A6CA45911EF82C3A53F"><enum>(2)</enum><text>give consideration to eligible State agencies that are building or enhancing the capacity of their long-term care systems to respond to the comprehensive needs, including respite care needs, of their residents.</text></paragraph></subsection> <subsection id="H50803D33559D4922003705786448A256"><enum>(f)</enum><header>Use of grant or cooperative agreement funds</header> <paragraph id="H840DDF157C5F4A618DC7587D969FCEEC"><enum>(1)</enum><header>In general</header> <subparagraph id="HE5C85290B1B242B2A996A8FB53B3F91E"><enum>(A)</enum><header>Required uses of funds</header><text>Each eligible State agency awarded a grant or cooperative agreement under this section shall use all or part of the funds—</text> <clause id="H3A198C9205934D008F687DE7DD2D7770"><enum>(i)</enum><text>to develop or enhance lifespan respite care at the State and local levels;</text></clause> <clause id="HA619FE7DBF3A48B08715142FE33B3CA"><enum>(ii)</enum><text>to provide respite care services for family caregivers caring for children or adults;</text></clause> <clause id="H9E56750340CB488AAEFD8DC7B5F89FA6"><enum>(iii)</enum><text>to train and recruit respite care workers and volunteers;</text></clause> <clause id="H27977B256A6346CF9FEDBD7B18B6924B"><enum>(iv)</enum><text>to provide information to caregivers about available respite and support services; and</text></clause> <clause id="HA05725E79DC44FC6008E10E0B45861A5"><enum>(v)</enum><text>to assist caregivers in gaining access to such services.</text></clause></subparagraph> <subparagraph id="H4EA6112816854170B7B8278053A68470"><enum>(B)</enum><header>Optional uses of funds</header><text>Each eligible State agency awarded a grant or cooperative agreement under this section may use part of the funds for—</text> <clause id="HA857CDE7E1A349AE9B78DD06B79334B2"><enum>(i)</enum><text>training programs for family caregivers to assist such family caregivers in making informed decisions about respite care services;</text></clause> <clause id="HFCB40BB49EC94234B19626FB4B3C184C"><enum>(ii)</enum><text>other services essential to the provision of respite care as the Secretary may specify; or</text></clause> <clause id="H9DEA01B4EAF24A949709BBA600D8E76C"><enum>(iii)</enum><text>training and education for new caregivers.</text></clause></subparagraph></paragraph> <paragraph id="HBDD187F865B54D89B200CAB68781BEF6"><enum>(2)</enum><header>Subcontracts</header><text>Each eligible State agency awarded a grant or cooperative agreement under this section may carry out the activities described in paragraph (1) directly or by grant to, or contract with, public or private entities.</text></paragraph> <paragraph id="H8E53E96615C44302A173DEF5B7803166"><enum>(3)</enum><header>Matching funds</header> <subparagraph id="H53975FA086DE4D0B00EBB1F3741411FD"><enum>(A)</enum><header>In general</header><text>With respect to the costs of the activities to be carried out under paragraph (1), a condition for the receipt of a grant or cooperative agreement under this section is that the eligible State agency agrees to make available (directly or through donations from public or private entities) non-Federal contributions toward such costs in an amount that is not less than 25 percent of such costs.</text></subparagraph> <subparagraph id="H3F2A742A3A114289B954EB004F9D8E3D"><enum>(B)</enum><header>Determination of amount contributed</header><text>Non-Federal contributions required by subparagraph (A) may be in cash or in kind, fairly evaluated, including plant, equipment, or services. Amounts provided by the Federal Government, or services assisted or subsidized to any significant extent by the Federal Government, may not be included in determining the amount of such non-Federal contributions.</text></subparagraph></paragraph></subsection> <subsection id="H6597353B3C2B470F827DC396A858882E"><enum>(g)</enum><header>Term of grants or cooperative agreements</header> <paragraph id="H28A5A88E51D84DFDB8FB68E35B7066F5"><enum>(1)</enum><header>In general</header><text>The Secretary shall award grants or cooperative agreements under this section for terms that do not exceed 5 years.</text></paragraph> <paragraph id="H763FF0BB9DF64C8389BB7EB071F21A8"><enum>(2)</enum><header>Renewal</header><text>The Secretary may renew a grant or cooperative agreement under this section at the end of the term of the grant or cooperative agreement determined under paragraph (1).</text></paragraph></subsection> <subsection id="H85B1296F89EC43748C217C711D7B273B"><enum>(h)</enum><header>Maintenance of effort</header><text>Funds made available under this section shall be used to supplement and not supplant other Federal, State, and local funds available for respite care services.</text></subsection></section> <section id="H9F3CFD83B276419FB6D97C8DBC2DC285"><enum>2903.</enum><header>National Lifespan Respite Resource Center</header> <subsection id="H90C5457481FE4BB685207961232B05B2"><enum>(a)</enum><header>Establishment</header><text>The Secretary may award a grant or cooperative agreement to a public or private nonprofit entity to establish a National Resource Center on Lifespan Respite Care (referred to in this section as the <quote>center</quote>).</text></subsection> <subsection id="H07EB1EDDCA004E37A3B79548956FECD7"><enum>(b)</enum><header>Purposes of the center</header><text>The center shall—</text> <paragraph id="H0C8CA07F2B3544C9A7886D278FE0AD00"><enum>(1)</enum><text>maintain a national database on lifespan respite care;</text></paragraph> <paragraph id="H77504E99F5FA4AB4A02E884441F2B4C5"><enum>(2)</enum><text>provide training and technical assistance to State, community, and nonprofit respite care programs; and</text></paragraph> <paragraph id="H6A8CDDEFB89E41E48D978BAB00FF39F4"><enum>(3)</enum><text>provide information, referral, and educational programs to the public on lifespan respite care.</text></paragraph></subsection></section> <section id="H5F58BF542BCA49EA93F0A2CBAF873B00"><enum>2904.</enum><header>Report</header><text display-inline="no-display-inline">Not later than January 1, 2009, the Secretary shall report to the Congress on the activities undertaken under this title. Such report shall evaluate—</text> <paragraph id="HC277D95C30FD4C4DA9854E40ACD7B1CA"><enum>(1)</enum><text>the number of States that have lifespan respite care programs;</text></paragraph> <paragraph id="H8810D516A37E497CBF00F265A3AECB63"><enum>(2)</enum><text>the demographics of the caregivers receiving respite care services through grants or cooperative agreements under this title; and</text></paragraph> <paragraph id="H666F627D6C124AB88DF4264F69BD1DD0"><enum>(3)</enum><text>the effectiveness of entities receiving grants or cooperative agreements under this title.</text></paragraph></section> <section id="HA7B6AA1CF9ED40CEB089094958B389C2"><enum>2905.</enum><header>Authorization of appropriations</header><text display-inline="no-display-inline">There are authorized to be appropriated to carry out this title—</text> <paragraph id="H02A57B1A02AB4C77B7EAF767E082942E"><enum>(1)</enum><text display-inline="yes-display-inline">$30,000,000 for fiscal year 2007; </text></paragraph> <paragraph id="HBF5564FBC140472688ADE800F9F7F9E"><enum>(2)</enum><text>$40,000,000 for fiscal year 2008;</text></paragraph> <paragraph id="HF146246D7CEC4AE29C61BEE4F09DEC"><enum>(3)</enum><text>$53,330,000 for fiscal year 2009;</text></paragraph> <paragraph id="H3B9A38FB9A3441C099E3993496C0A384"><enum>(4)</enum><text>$71,110,000 for fiscal year 2010; and</text></paragraph> <paragraph id="H9E069EB9002144C1BC4955BF11101954"><enum>(5)</enum><text>$94,810,000 for fiscal year 2011.</text></paragraph></section>

Lifespan respite care

The Public Health Service Act (42 U.S.C. 201 et seq.) is amended by adding at the end the following: