[Congressional Bills 109th Congress]
[From the U.S. Government Publishing Office]
[H. Con. Res. 357 Enrolled Bill (ENR)]

        H.Con.Res.357
                                          Agreed to May 24, 2006        

                       One Hundred Ninth Congress

                                 of the

                        United States of America


                          AT THE SECOND SESSION

          Begun and held at the City of Washington on Tuesday,
             the third day of January, two thousand and six

 
                          Concurrent Resolution

Whereas cystic fibrosis is one of the most common life-threatening 
  genetic diseases in the United States and one for which there is no 
  known cure;

Whereas the average life expectancy of an individual with cystic 
  fibrosis is 35 years, an improvement from a life expectancy of 10 
  years in the 1960s, but still unacceptably short;

Whereas approximately 30,000 people in the United States have cystic 
  fibrosis, more than half of them children;

Whereas one of every 3,500 babies born in the United States is born 
  with cystic fibrosis;

Whereas more than 10,000,000 Americans are unknowing, symptom-free 
  carriers of the cystic fibrosis gene;

Whereas the Centers for Disease Control and Prevention recommends that 
  all States consider newborn screening for cystic fibrosis;

Whereas the Cystic Fibrosis Foundation urges all States to implement 
  newborn screening for cystic fibrosis to facilitate early diagnosis 
  and treatment which improves health and longevity;

Whereas prompt, aggressive treatment of the symptoms of cystic fibrosis 
  can extend the lives of people who have the disease;

Whereas recent advances in cystic fibrosis research have produced 
  promising leads in gene, protein, and drug therapies beneficial to 
  people who have the disease;

Whereas innovative research is progressing faster and is being 
  conducted more aggressively than ever before, due, in part, to the 
  Cystic Fibrosis Foundation's establishment of a model clinical trials 
  network;

Whereas although the Cystic Fibrosis Foundation continues to fund a 
  research pipeline for more than two dozen potential therapies and 
  funds a nationwide network of care centers that extend the length and 
  quality of life for people with cystic fibrosis, lives continue to be 
  lost to this disease every day;

Whereas education of the public about cystic fibrosis, including the 
  symptoms of the disease, increases knowledge and understanding of 
  cystic fibrosis and promotes early diagnosis; and

Whereas the Cystic Fibrosis Foundation will conduct activities to honor 
  National Cystic Fibrosis Awareness Month in May, 2006: Now, 
  therefore, be it

    Resolved by the House of Representatives (the Senate concurring), 
That the Congress--
        (1) honors the goals and ideals of National Cystic Fibrosis 
    Awareness Month;
        (2) promotes further public awareness and understanding of 
    cystic fibrosis;
        (3) advocates for increased support for people who have cystic 
    fibrosis and their families;
        (4) encourages early diagnosis and access to quality care for 
    people with cystic fibrosis to improve the quality of their lives; 
    and
        (5) supports research to find a cure for cystic fibrosis by 
    fostering an enhanced research program through a strong Federal 
    commitment and expanded public-private partnerships.
  Attest:

                                 Clerk of the House of Representatives.

  Attest:

                                               Secretary of the Senate.
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