109 HCON 357 EH: Supporting the goals and ideals of National Cystic Fibrosis Awareness Month. U.S. House of Representatives 0 text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain.

IV 109th CONGRESS 2d Session H. CON. RES. 357 IN THE HOUSE OF REPRESENTATIVES CONCURRENT RESOLUTION Supporting the goals and ideals of National Cystic Fibrosis Awareness Month.

Whereas cystic fibrosis is one of the most common life-threatening genetic diseases in the United States and one for which there is no known cure; Whereas the average life expectancy of an individual with cystic fibrosis is 35 years, an improvement from a life expectancy of 10 years in the 1960s, but still unacceptably short; Whereas approximately 30,000 people in the United States have cystic fibrosis, more than half of them children; Whereas one of every 3,500 babies born in the United States is born with cystic fibrosis; Whereas more than 10,000,000 Americans are unknowing, symptom-free carriers of the cystic fibrosis gene; Whereas the Centers for Disease Control and Prevention recommends that all States consider newborn screening for cystic fibrosis; Whereas the Cystic Fibrosis Foundation urges all States to implement newborn screening for cystic fibrosis to facilitate early diagnosis and treatment which improves health and longevity; Whereas prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease; Whereas recent advances in cystic fibrosis research have produced promising leads in gene, protein, and drug therapies beneficial to people who have the disease; Whereas innovative research is progressing faster and is being conducted more aggressively than ever before, due, in part, to the Cystic Fibrosis Foundation’s establishment of a model clinical trials network; Whereas although the Cystic Fibrosis Foundation continues to fund a research pipeline for more than two dozen potential therapies and funds a nationwide network of care centers that extend the length and quality of life for people with cystic fibrosis, lives continue to be lost to this disease every day; Whereas education of the public about cystic fibrosis, including the symptoms of the disease, increases knowledge and understanding of cystic fibrosis and promotes early diagnosis; and Whereas the Cystic Fibrosis Foundation will conduct activities to honor National Cystic Fibrosis Awareness Month in May, 2006: Now, therefore, be it

That the Congress— (1)honors the goals and ideals of National Cystic Fibrosis Awareness Month; (2)promotes further public awareness and understanding of cystic fibrosis; (3)advocates for increased support for people who have cystic fibrosis and their families; (4)encourages early diagnosis and access to quality care for people with cystic fibrosis to improve the quality of their lives; and (5)supports research to find a cure for cystic fibrosis by fostering an enhanced research program through a strong Federal commitment and expanded public-private partnerships.

Passed the House of Representatives April 27, 2006.Karen L. HaasClerk.