[Congressional Bills 108th Congress]
[From the U.S. Government Publishing Office]
[S. Res. 298 Introduced in Senate (IS)]







108th CONGRESS
  2d Session
S. RES. 298

 Designating May 2004 as ``National Cystic Fibrosis Awareness Month''.


_______________________________________________________________________


                   IN THE SENATE OF THE UNITED STATES

                           February 11, 2004

 Mr. Campbell (for himself, Ms. Murkowski, Mrs. Lincoln, Mrs. Murray, 
Ms. Landrieu, Mr. Biden, Mr. Bunning, Mr. Dorgan, Mr. Johnson, and Mr. 
 Fitzgerald) submitted the following resolution; which was referred to 
                     the Committee on the Judiciary

_______________________________________________________________________

                               RESOLUTION


 
 Designating May 2004 as ``National Cystic Fibrosis Awareness Month''.

Whereas cystic fibrosis, characterized by chronic lung infections and digestive 
        disorders, is a fatal lung disease;
Whereas cystic fibrosis is 1 of the most common genetic diseases in the United 
        States and 1 for which there is no known cure;
Whereas more than 10,000,000 Americans are unknowing carriers of the cystic 
        fibrosis gene;
Whereas 1 of every 3,500 babies born in the United States is born with cystic 
        fibrosis;
Whereas newborn screening for cystic fibrosis has been implemented by 11 States 
        and facilitates early diagnosis and treatment which improves health and 
        longevity;
Whereas approximately 30,000 people in the United States have cystic fibrosis, 
        many of them children;
Whereas the average life expectancy of an individual with cystic fibrosis is in 
        the early thirties, an improvement from a life expectancy of 10 years in 
        the 1960s, but still unacceptably short;
Whereas prompt, aggressive treatment of the symptoms of cystic fibrosis can 
        extend the lives of people who have the disease;
Whereas recent advances in cystic fibrosis research have produced promising 
        leads in gene, protein, and drug therapies beneficial to people who have 
        the disease;
Whereas this innovative research is progressing faster and is being conducted 
        more aggressively than ever before, due in part to the establishment of 
        a model clinical trials network by the Cystic Fibrosis Foundation; and
Whereas education of the public on cystic fibrosis, including the symptoms of 
        the disease, increases knowledge and understanding of cystic fibrosis 
        and promotes early diagnosis: Now, therefore, be it
    Resolved, That the Senate--
            (1) designates May 2004 as ``National Cystic Fibrosis 
        Awareness Month'';
            (2) requests that the President issue a proclamation--
                    (A) designating the month of May 2004 as ``National 
                Cystic Fibrosis Awareness Month''; and
                    (B) calling on the people of the United States to 
                promote awareness of cystic fibrosis and actively 
                participate in support of research to control or cure 
                cystic fibrosis, by observing the month with 
                appropriate ceremonies and activities; and
            (3) supports the goals of--
                    (A) increasing the quality of life for individuals 
                with cystic fibrosis by promoting public knowledge and 
                understanding in a manner that will result in earlier 
                diagnoses;
                    (B) encouraging increased resources for research; 
                and
                    (C) increasing levels of support for people who 
                have cystic fibrosis and their families.
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