[Congressional Bills 107th Congress]
[From the U.S. Government Publishing Office]
[S. 2980 Reported in Senate (RS)]

                                                       Calendar No. 626
107th CONGRESS
  2d Session
                                S. 2980

     To revise and extend the Birth Defects Prevention Act of 1998.


_______________________________________________________________________


                   IN THE SENATE OF THE UNITED STATES

                           September 19, 2002

     Mr. Bond (for himself, Mr. Dodd, Mr. Frist, Mr. Kennedy, Mr. 
  Hutchinson) introduced the following bill; which was read twice and 
  referred to the Committee on Health, Education, Labor, and Pensions

                            October 1, 2002

               Reported by Mr. Kennedy, with an amendment
 [Strike out all after the enacting clause and insert the part printed 
                               in italic]

_______________________________________________________________________

                                 A BILL


 
     To revise and extend the Birth Defects Prevention Act of 1998.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

<DELETED>SECTION 1. SHORT TITLE.</DELETED>

<DELETED>    This Act may be cited as the ``Birth Defects and 
Developmental Disabilities Prevention Act of 2002''.</DELETED>

<DELETED>SEC. 2. NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL 
              DISABILITIES.</DELETED>

<DELETED>    Section 317C of the Public Health Service Act (42 U.S.C. 
247b-4) is amended--</DELETED>
        <DELETED>    (1) in subsection (a)(2)--</DELETED>
                <DELETED>    (A) in subparagraph (A)--</DELETED>
                        <DELETED>    (i) by striking ``and 
                        developmental disabilities'' and inserting ``, 
                        developmental disabilities, and disabilities 
                        and health''; and</DELETED>
                        <DELETED>    (ii) by striking ``subsection 
                        (d)(2)'' and inserting ``subsection 
                        (c)(2)'';</DELETED>
                <DELETED>    (B) in subparagraph (B), by striking 
                ``and'' at the end;</DELETED>
                <DELETED>    (C) in subparagraph (C), by striking the 
                period; and</DELETED>
                <DELETED>    (D) by adding at the end the 
                following:</DELETED>
                <DELETED>    ``(D) to conduct research on and to 
                promote the prevention (including the prevention of 
                secondary conditions) of such birth defects and 
                disabilities; and</DELETED>
                <DELETED>    ``(E) to support a National Spina Bifida 
                Program to prevent and reduce suffering from the 
                nation's most common permanently disabling birth 
                defect.'';</DELETED>
        <DELETED>    (2) by striking subsection (b);</DELETED>
        <DELETED>    (3) in subsection (d)--</DELETED>
                <DELETED>    (A) in the matter preceding paragraph (1), 
                by striking ``1999'' and inserting ``2004'';</DELETED>
                <DELETED>    (B) in paragraph (1)--</DELETED>
                        <DELETED>    (i) by inserting ``and 
                        developmental disabilities'' after ``defects'' 
                        each place that such appears; and</DELETED>
                        <DELETED>    (ii) by inserting ``and affected 
                        quality of life'' before the 
                        semicolon;</DELETED>
                <DELETED>    (C) in paragraph (3), by inserting ``and 
                developmental disabilities'' after 
                ``defects'';</DELETED>
                <DELETED>    (D) in paragraph (4), by striking ``and'' 
                at the end;</DELETED>
                <DELETED>    (E) by redesignating paragraph (5) as 
                paragraph (7); and</DELETED>
                <DELETED>    (F) by inserting after paragraph (4), the 
                following:</DELETED>
        <DELETED>    ``(5) contains information on the incidence and 
        prevalence of individuals living with birth defects and 
        disabilities, any health disparities experienced by such 
        individuals, and recommendations for improving the health and 
        wellness and quality of life of such individuals;</DELETED>
        <DELETED>    ``(6) contains a summary of recommendations from 
        all birth defects research conferences sponsored by the agency 
        including conferences related to spina bifida; and'';</DELETED>
        <DELETED>    (4) in subsection (e)--</DELETED>
                <DELETED>    (A) by inserting ``, including section 444 
                of the General Education Provisions Act,'' after 
                ``privacy of information''; and</DELETED>
                <DELETED>    (B) by inserting before the period the 
                following: ``, except that the Centers for Disease 
                Control and Prevention shall have access to information 
                under section 444(b)(1)(F) of such Act solely for 
                purposes of carrying out subsection (a)(1) of this 
                section and shall otherwise comply with all other 
                requirements of such section 444'';</DELETED>
        <DELETED>    (5) by redesignating subsections (c), (d), and (e) 
        as subsections (b), (c), and (d), respectively;</DELETED>
        <DELETED>    (6) by inserting after subsection (d) (as so 
        redesignated), the following:</DELETED>
<DELETED>    ``(e) Advisory Committee.--Notwithstanding any other 
provision of law, the members of the advisory committee appointed by 
the Director of the National Center for Environmental Health that have 
expertise in birth defects, developmental disabilities, and 
disabilities and health shall be transferred to the National Center on 
Birth Defects on the date of enactment of the Birth Defects and 
Developmental Disabilities Prevention Act of 2002.''; and</DELETED>
        <DELETED>    (7) in subsection (f), by striking ``$30,000,000'' 
        and all that follows and inserting ``such sums as may be 
        necessary for each of fiscal yeas 2003 through 
        2007.''.</DELETED>

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Birth Defects and Developmental 
Disabilities Prevention Act of 2002''.

SEC. 2. NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL 
              DISABILITIES.

    Section 317C of the Public Health Service Act (42 U.S.C. 247b-4) is 
amended--
            (1) in subsection (a)(2)--
                    (A) in subparagraph (A)--
                            (i) by striking ``and developmental 
                        disabilities'' and inserting ``, developmental 
                        disabilities, and disabilities and health''; 
                        and
                            (ii) by striking ``subsection (d)(2)'' and 
                        inserting ``subsection (c)(2)'';
                    (B) in subparagraph (B), by striking ``and'' at the 
                end;
                    (C) in subparagraph (C), by striking the period; 
                and
                    (D) by adding at the end the following:
                    ``(D) to conduct research on and to promote the 
                prevention of such birth defects, disabilities, and the 
                prevention of secondary health conditions among 
                individuals with disabilities; and
                    ``(E) to support a National Spina Bifida Program to 
                prevent and reduce suffering from the nation's most 
                common permanently disabling birth defect.'';
            (2) by striking subsection (b);
            (3) in subsection (d)--
                    (A) in the matter preceding paragraph (1), by 
                striking ``1999'' and inserting ``2004'';
                    (B) by striking paragraph (1) and inserting the 
                following:
            ``(1) contains information regarding the incidence and 
        prevalence of birth defects, developmental disabilities, and 
        the health status of individuals with disabilities and the 
        extent to which these conditions have contributed to the 
        incidence and prevalence of infant mortality and affected 
        quality of life;'';
                    (C) in paragraph (3), by inserting ``, 
                developmental disabilities, and secondary health 
                conditions among individuals with disabilities'' after 
                ``defects'';
                    (D) in paragraph (4), by striking ``and'' at the 
                end;
                    (E) by redesignating paragraph (5) as paragraph 
                (7); and
                    (F) by inserting after paragraph (4), the 
                following:
            ``(5) contains information on the incidence and prevalence 
        of individuals living with birth defects and disabilities, 
        developmental disabilities, and the health status of 
        individuals with disabilities, any health disparities 
        experienced by such individuals, and recommendations for 
        improving the health and wellness and quality of life of such 
        individuals;
            ``(6) contains a summary of recommendations from all birth 
        defects research conferences sponsored by the agency including 
        conferences related to spina bifida; and'';
            (4) in subsection (e)--
                    (A) by inserting ``, including section 444 of the 
                General Education Provisions Act,'' after ``privacy of 
                information''; and
                    (B) by inserting before the period the following: 
                ``, except that the Centers for Disease Control and 
                Prevention shall have access to information under 
                section 444(b)(1)(F) of such Act solely for purposes of 
                carrying out subsection (a)(2) of this section and 
                shall otherwise comply with all other requirements of 
                such section 444'';
            (5) by redesignating subsections (c), (d), and (e) as 
        subsections (b), (c), and (d), respectively;
            (6) by inserting after subsection (d) (as so redesignated), 
        the following:
    ``(e) Advisory Committee.--Notwithstanding any other provision of 
law, the members of the advisory committee appointed by the Director of 
the National Center for Environmental Health that have expertise in 
birth defects, developmental disabilities, and disabilities and health 
shall be transferred to and shall advise the National Center on Birth 
Defects and Developmental Disabilities on the date of enactment of the 
Birth Defects and Developmental Disabilities Prevention Act of 2002.''; 
and
            (7) in subsection (f), by striking ``$30,000,000'' and all 
        that follows and inserting ``such sums as may be necessary for 
        each of fiscal yeas 2003 through 2007.''.

SEC. 3. TECHNICAL CORRECTIONS FOR STATE COUNCILS ON DEVELOPMENTAL 
              DISABILITIES.

    Section 122(a) of the Developmental Disabilities Assistance and 
Bill of Rights Act of 2000 (42 3 U.S.C. 15022(a)) is amended--
            (1) in paragraph (3)(A)(ii), by inserting before the period 
        the following: ``, the amount received by the State for the 
        previous year, or the amount of Federal appropriations received 
        in fiscal years 2000, 2001, or 2002, whichever is greater''; 
        and
            (2) in paragraph (4)(A)(ii), by inserting before the period 
        the following: ``, the amount received by the State for the 
        previous year, or the amount of Federal appropriations received 
        in fiscal years 2000, 2001, or 2002, whichever is greater''.




                                                       Calendar No. 626

107th CONGRESS

  2d Session

                                S. 2980

_______________________________________________________________________

                                 A BILL

     To revise and extend the Birth Defects Prevention Act of 1998.

_______________________________________________________________________

                            October 1, 2002

                       Reported with an amendment