[Congressional Bills 107th Congress]
[From the U.S. Government Publishing Office]
[H.R. 4963 Introduced in House (IH)]







107th CONGRESS
  2d Session
                                H. R. 4963

  To provide for the expansion and coordination of activities of the 
 National Institutes of Health and the Centers for Disease Control and 
      Prevention with respect to research and programs on cancer 
                 survivorship, and for other purposes.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                             June 19, 2002

   Mr. Hoyer (for himself, Mr. Wicker, Mr. Serrano, Mr. Dingell, Mr. 
 Hinchey, Ms. DeLauro, Mr. Hall of Ohio, Mr. Kennedy of Rhode Island, 
 Mr. Oxley, Mr. Cunningham, Mr. McNulty, Mr. Pickering, Mr. Horn, Mr. 
Doggett, and Mr. Barton of Texas) introduced the following bill; which 
          was referred to the Committee on Energy and Commerce

_______________________________________________________________________

                                 A BILL


 
  To provide for the expansion and coordination of activities of the 
 National Institutes of Health and the Centers for Disease Control and 
      Prevention with respect to research and programs on cancer 
                 survivorship, and for other purposes.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Cancer Survivorship Research and 
Quality of Life Act of 2002''.

SEC. 2. FINDINGS.

    The Congress finds as follows:
            (1) There are more than 9,000,000 individuals in the United 
        States today who are cancer survivors (living with, through, 
        and beyond cancer).
            (2) 60 percent of cancer survivors are 65 years of age and 
        older.
            (3) 62 percent of adults diagnosed with cancer today will 
        be alive 5 years from now.
            (4) In 1960, 4 percent of children with cancer survived 
        more than 5 years.
            (5) 77 percent of children (age 0 through 14) diagnosed 
        with cancer today will be living five years from now.
            (6) Three out of every four American families will have at 
        least one family member diagnosed with cancer.
            (7) 24 percent of adults with cancer are parents who have a 
        child 18 years or younger living in the home.
            (8) One of every four deaths in the United States is from 
        cancer. In 2002, 555,500 Americans will die of cancer--more 
        than 1,500 people a day.
            (9) The annual cost of cancer in the United States is 
        $180,000,000,000 in direct and indirect costs.
            (10) In fiscal year 2001 the National Institutes of Health 
        invested $38,000,000 in survivorship--less than $4.25 per 
        survivor.

SEC. 3. CANCER CONTROL PROGRAMS.

    Section 412 of the Public Health Service Act (42 U.S.C. 285a-1) is 
amended--
            (1) in the first sentence, by inserting ``, for 
        survivorship,'' after ``treatment of cancer'';
            (2) in paragraph (1)(B), by striking ``cancer patients'' 
        and all that follows and inserting the following: ``cancer 
        patients, families of cancer patients, and cancer survivors, 
        and''; and
            (3) in paragraph (3), by inserting ``and concerning cancer 
        survivorship programs,'' after ``control of cancer''.

SEC. 4. EXPANSION AND COORDINATION OF ACTIVITIES OF NATIONAL INSTITUTES 
              OF HEALTH WITH RESPECT TO CANCER SURVIVORSHIP RESEARCH.

    (a) In General.--Subpart 1 of part C of title IV of the Public 
Health Service Act (42 U.S.C. 285 et seq.) is amended by adding at the 
end following section:

``SEC. 417D. EXPANSION AND COORDINATION OF ACTIVITIES WITH RESPECT TO 
              CANCER SURVIVORSHIP RESEARCH.

    ``(a) In General.--
            ``(1) Expansion of activities.--The Director of NIH shall 
        expand and coordinate the activities of the National Institutes 
        of Health with respect to cancer survivorship research.
            ``(2) Administration of program; collaboration among 
        agencies.--The Director of NIH shall carry out this section 
        acting through the Director of the Institute and in 
        collaboration with any other agencies that the Director 
        determines appropriate.
    ``(b) Office on Survivorship.--
            ``(1) In general.--The Director of NIH shall establish an 
        Office on Survivorship within the Institute through which the 
        activities under subsection (a)(1) shall be implemented and 
        directed.
            ``(2) Associate director for survivorship; appointment; 
        function.--
                    ``(A) There shall be in the Institute an Associate 
                Director for Survivorship to coordinate and promote the 
                programs in the Institute concerning cancer 
                survivorship research. The Associate Director shall be 
                appointed by the Director of the Institute from among 
                individuals who, because of their professional training 
                or experience, are equipped to address the breadth of 
                needs associated with cancer survivorship.
                    ``(B) Not later than February 1, 2003, the 
                Associate Director for Survivorship shall prepare and 
                submit to the Congress report providing a description 
                of the survivorship activities of the Office and 
                strategies for future activities.''.
    (b) Funding.--Section 417B(d)(2) of the Public Health Service Act 
(42 U.S.C. 285a-8(d)(2)) is amended--
            (1) in subparagraph (B), by striking ``and'' after the 
        semicolon;
            (2) in subparagraph (C), by striking ``each'' and all that 
        follows and inserting ``each fiscal year through 2002; and''; 
        and
            (3) by adding at the end the following:
                    ``(D) 13 percent, in the case of fiscal year 2003 
                and each subsequent fiscal year, of which not less than 
                3 percent shall be for the Office on Survivorship under 
                section 417D.''.

SEC. 5. EXPANSION OF CDC COMPREHENSIVE CANCER PROGRAMS; PROGRAMS TO 
              IMPROVE CANCER SURVIVORSHIP.

    (a) In General.--The Secretary of Health and Human Services 
(referred to in this Act as the ``Secretary''), acting through the 
Director of the Centers for Disease Control and Prevention, shall study 
the unique health challenges associated with cancer survivorship and 
carry out projects and interventions to improve the long-term health 
status of cancer survivors. Such projects shall be carried out directly 
and through the awards of grants or contracts.
    (b) Certain Activities.--Activities under subsection (a) include--
            (1) the expansion of current cancer surveillance systems to 
        track the health status of cancer survivors and determine 
        whether cancer survivors are at-risk for other chronic and 
        disabling conditions;
            (2) assess the unique challenges associated with cancer 
        survivorship;
            (3) the development of a national cancer survivorship 
        action plan, in partnership with health organizations focused 
        on cancer survivorship, to be carried out in coordination with 
        the state-based comprehensive cancer control program of the 
        Centers for Disease Control and Prevention to--
                    (A) develop unique and innovative post-treatment 
                programs, services and demonstrations designed to 
                support and advance cancer survivorship through--
                            (i) promotion of physical activity and 
                        healthy lifestyles;
                            (ii) educational outreach programs for 
                        health care providers;
                            (iii) support for innovative programs to 
                        improve the quality of life among cancer 
                        survivors;
                            (iv) home and community-based 
                        interventions;
                            (v) peer support and mentor programs;
                            (vi) public awareness and outreach 
                        campaigns; and
                            (vii) information dissemination to inform 
                        health care providers and cancer survivors of 
                        their health care options and available 
                        survivorship programs; and
                    (B) develop unique cancer survivorship 
                demonstration programs designed to address the needs of 
                underserved populations, including minorities, 
                children, and persons residing in rural areas.
    (c) Coordination of Activities.--The Secretary shall assure that 
activities under this section are coordinated as appropriate with other 
agencies of the Public Health Service.
    (d) Report to Congress.--Not later than October 1, 2003, the 
Secretary shall submit to the Congress a report describing the results 
of the evaluation under subsection (a), and as applicable, the 
strategies developed under such subsection.
    (e) Authorization of Appropriations.--For the purpose of carrying 
out this section, there are authorized to be appropriated $75,000,000 
for fiscal year 2003, and such sums as may be necessary for each of the 
fiscal years 2004 through 2006.

SEC. 6. MONITORING AND EVALUATING QUALITY CANCER CARE AND CANCER 
              SURVIVORSHIP.

    (a) In General.--Part M of title III of the Public Health Service 
Act (42 U.S.C. 280e et seq.) is amended by inserting after section 399E 
the following section:

``SEC. 399E-1. MONITORING AND EVALUATING QUALITY CANCER CARE AND CANCER 
              SURVIVORSHIP.

    ``(a) In General.--The Secretary, acting through the Director of 
the Centers for Disease Control and Prevention, and in consultation 
with the National Cancer Institute, shall make grants to eligible 
entities for the purpose of enabling such entities to monitor and 
evaluate quality cancer care, develop information concerning quality 
cancer care, and monitor cancer survivorship.
    ``(b) Eligible Entities.--For purposes of this section, an entity 
is an eligible entity for a fiscal year if the entity--
            ``(1) operates a statewide cancer registry with funds from 
        a grant made under section 399B for such fiscal year; and
            ``(2) is certified by the North American Association of 
        Central Cancer Registries or another similar certification 
        organization.
    ``(c) Contracting Authority.--In carrying out the purpose described 
in subsection (a), an eligible entity may expend a grant under such 
subsection to enter into contracts with academic institutions, cancer 
centers, and other entities, when determined appropriate by the 
Secretary.
    ``(d) Application for Grant.--A grant may be made under subsection 
(a) only if an application for the grant is submitted to the Secretary 
and the application is in such form, is made in such manner, and 
contains such agreements, assurances, and information as the Secretary 
determines to be necessary to carry out this section.
    ``(e) Authority of Secretary Regarding Use of Grant.--The Secretary 
shall determine the appropriate uses of grants under subsection (a) to 
achieve the purpose described in such subsection.
    ``(f) Authorization of Appropriations.--For the purpose of carrying 
out this section, there are authorized to be appropriated such sums as 
may be necessary for each of the fiscal years 2003 through 2007.''.
    (b) Conforming Amendment Regarding Authorization of 
Appropriations.--Section 399F(a) of the Public Health Service Act (42 
U.S.C. 280e-4(a)) is amended in the first sentence by striking ``this 
part,'' and inserting ``this part (other than section 399E-1),''.
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