[Congressional Bills 104th Congress]
[From the U.S. Government Publishing Office]
[S. 1655 Introduced in Senate (IS)]

  2d Session
                                S. 1655

  To amend the Public Health Service Act to provide, with respect to 
 research on breast cancer, for the increased involvement of advocates 
          in decisionmaking at the National Cancer Institute.


_______________________________________________________________________


                   IN THE SENATE OF THE UNITED STATES

                             March 29, 1996

 Ms. Snowe (for herself and Mr. Leahy) introduced the following bill; 
 which was read twice and referred to the Committee on Labor and Human 
                               Resources

_______________________________________________________________________

                                 A BILL


 
  To amend the Public Health Service Act to provide, with respect to 
 research on breast cancer, for the increased involvement of advocates 
          in decisionmaking at the National Cancer Institute.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Consumer Involvement in Breast 
Cancer Research Act''.

SEC. 2. INCREASED INVOLVEMENT OF ADVOCATES IN DECISIONMAKING REGARDING 
              RESEARCH ON BREAST CANCER.

    Section 417(c) of the Public Health Service Act (42 U.S.C. 285a-
6(c)) is amended by adding at the end the following paragraph:
            ``(3) Involvement of advocates in decisionmaking.--
                    ``(A) The Director of the Institute shall, to the 
                extent practicable, provide for the increased 
                involvement (relative to fiscal year 1996) of advocates 
                in decisionmaking at the Institute regarding research 
                on breast cancer.
                    ``(B) For purposes of this paragraph, the term 
                `advocate' means an individual who is accountable to, 
                represents, and reports back to organizations that 
                represent those affected by breast cancer.
                    ``(C) The Director of the Institute shall prepare a 
                report on the manner in which subparagraph (A) has been 
                carried out. The report shall be included in the first 
                report under section 407 that the Director submits 
                after the expiration of the one-year period beginning 
                on the date of the enactment of the Consumer 
                Involvement in Breast Cancer Research Act.''.
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