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    <number>721</number>
    <updateDate>2025-12-05T22:07:27Z</updateDate>
    <updateDateIncludingText>2025-12-05T22:07:27Z</updateDateIncludingText>
    <originChamber>Senate</originChamber>
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    <introducedDate>2025-02-25</introducedDate>
    <congress>119</congress>
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        <name>Finance Committee</name>
        <chamber>Senate</chamber>
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            <name>Referred To</name>
            <date>2025-02-25T19:42:02Z</date>
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    <relatedBills>
      <item>
        <title>Sickle Cell Disease Comprehensive Care Act</title>
        <congress>119</congress>
        <number>5178</number>
        <type>HR</type>
        <latestAction>
          <actionDate>2025-09-08</actionDate>
          <text>Referred to the House Committee on Energy and Commerce.</text>
        </latestAction>
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            <type>Related bill</type>
            <identifiedBy>CRS</identifiedBy>
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        <actionDate>2025-02-25</actionDate>
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            <systemCode>ssfi00</systemCode>
            <name>Finance Committee</name>
          </item>
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        <sourceSystem>
          <name>Senate</name>
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        <text>Read twice and referred to the Committee on Finance.</text>
        <type>IntroReferral</type>
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      <item>
        <actionDate>2025-02-25</actionDate>
        <text>Introduced in Senate</text>
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        <actionCode>10000</actionCode>
        <sourceSystem>
          <code>9</code>
          <name>Library of Congress</name>
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    <sponsors>
      <item>
        <bioguideId>B001288</bioguideId>
        <fullName>Sen. Booker, Cory A. [D-NJ]</fullName>
        <firstName>Cory</firstName>
        <lastName>Booker</lastName>
        <party>D</party>
        <state>NJ</state>
        <isByRequest>N</isByRequest>
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    </sponsors>
    <cosponsors>
      <item>
        <bioguideId>S001184</bioguideId>
        <fullName>Sen. Scott, Tim [R-SC]</fullName>
        <firstName>Tim</firstName>
        <lastName>Scott</lastName>
        <party>R</party>
        <state>SC</state>
        <sponsorshipDate>2025-02-25</sponsorshipDate>
        <isOriginalCosponsor>True</isOriginalCosponsor>
      </item>
      <item>
        <bioguideId>C001075</bioguideId>
        <fullName>Sen. Cassidy, Bill [R-LA]</fullName>
        <firstName>Bill</firstName>
        <lastName>Cassidy</lastName>
        <party>R</party>
        <state>LA</state>
        <sponsorshipDate>2025-05-06</sponsorshipDate>
        <isOriginalCosponsor>False</isOriginalCosponsor>
      </item>
      <item>
        <bioguideId>C001088</bioguideId>
        <fullName>Sen. Coons, Christopher A. [D-DE]</fullName>
        <firstName>Christopher</firstName>
        <lastName>Coons</lastName>
        <party>D</party>
        <state>DE</state>
        <middleName>A.</middleName>
        <sponsorshipDate>2025-05-06</sponsorshipDate>
        <isOriginalCosponsor>False</isOriginalCosponsor>
      </item>
    </cosponsors>
    <policyArea>
      <name>Health</name>
    </policyArea>
    <subjects>
      <legislativeSubjects>
        <item>
          <name>Blood and blood diseases</name>
          <updateDate>2025-07-24T14:26:13Z</updateDate>
        </item>
        <item>
          <name>Government information and archives</name>
          <updateDate>2025-07-24T14:26:38Z</updateDate>
        </item>
        <item>
          <name>Health care coverage and access</name>
          <updateDate>2025-07-24T14:26:32Z</updateDate>
        </item>
        <item>
          <name>Hearing, speech, and vision care</name>
          <updateDate>2025-07-24T14:26:26Z</updateDate>
        </item>
        <item>
          <name>Home and outpatient care</name>
          <updateDate>2025-07-24T14:26:09Z</updateDate>
        </item>
        <item>
          <name>Internet, web applications, social media</name>
          <updateDate>2025-07-24T14:26:43Z</updateDate>
        </item>
        <item>
          <name>Medicaid</name>
          <updateDate>2025-07-24T14:26:16Z</updateDate>
        </item>
        <item>
          <name>State and local government operations</name>
          <updateDate>2025-07-24T14:26:20Z</updateDate>
        </item>
      </legislativeSubjects>
      <policyArea>
        <name>Health</name>
        <updateDate>2025-03-21T17:42:03Z</updateDate>
      </policyArea>
    </subjects>
    <summaries>
      <summary>
        <versionCode>00</versionCode>
        <actionDate>2025-02-25</actionDate>
        <actionDesc>Introduced in Senate</actionDesc>
        <updateDate>2025-08-18T21:17:08Z</updateDate>
        <cdata>
          <text>&lt;p&gt;&lt;strong&gt;Sickle Cell Disease Comprehensive Care Act&lt;/strong&gt;&lt;/p&gt;&lt;p&gt;This bill allows state Medicaid programs to establish health homes to provide coordinated care for individuals with sickle-cell disease. (Under current law, state Medicaid programs may establish health homes to provide coordinated care for individuals with specified chronic conditions.) States must ensure that such care includes dental and vision services.&lt;/p&gt;&lt;p&gt;The Centers for Medicare &amp;amp; Medicaid Services must issue best practices for states on how to design and implement such health homes.&lt;/p&gt;</text>
        </cdata>
      </summary>
    </summaries>
    <title>Sickle Cell Disease Comprehensive Care Act</title>
    <titles>
      <item>
        <titleType>Display Title</titleType>
        <titleTypeCode>45</titleTypeCode>
        <title>Sickle Cell Disease Comprehensive Care Act</title>
        <updateDate>2025-05-07T11:03:17Z</updateDate>
      </item>
      <item>
        <titleType>Short Title(s) as Introduced</titleType>
        <titleTypeCode>101</titleTypeCode>
        <title>Sickle Cell Disease Comprehensive Care Act</title>
        <updateDate>2025-03-21T04:38:22Z</updateDate>
        <billTextVersionName>Introduced in Senate</billTextVersionName>
        <billTextVersionCode>IS</billTextVersionCode>
      </item>
      <item>
        <titleType>Official Title as Introduced</titleType>
        <titleTypeCode>6</titleTypeCode>
        <title>A bill to amend title XIX of the Social Security Act to establish a demonstration project to improve outpatient clinical care for individuals with sickle cell disease.</title>
        <updateDate>2025-03-21T04:34:04Z</updateDate>
        <billTextVersionName>Introduced in Senate</billTextVersionName>
        <billTextVersionCode>IS</billTextVersionCode>
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    </titles>
    <textVersions>
      <item>
        <type>Introduced in Senate</type>
        <date>2025-02-25T05:00:00Z</date>
        <formats>
          <item>
            <url>https://www.govinfo.gov/content/pkg/BILLS-119s721is/xml/BILLS-119s721is.xml</url>
          </item>
        </formats>
      </item>
    </textVersions>
    <latestAction>
      <actionDate>2025-02-25</actionDate>
      <text>Read twice and referred to the Committee on Finance.</text>
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    <dc:language>EN</dc:language>
    <dc:rights>Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain.</dc:rights>
    <dc:contributor>Congressional Research Service, Library of Congress</dc:contributor>
    <dc:description>This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.</dc:description>
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