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    <updateDate>2022-10-28T01:46:13Z</updateDate>
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    <introducedDate>2019-12-19</introducedDate>
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        <title>Ending the Diagnostic Odyssey Act of 2019</title>
        <congress>116</congress>
        <number>4144</number>
        <type>HR</type>
        <latestAction>
          <actionDate>2019-08-05</actionDate>
          <text>Referred to the Subcommittee on Health.</text>
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            <identifiedBy>CRS</identifiedBy>
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        <title>Advancing Access to Precision Medicine Act</title>
        <congress>116</congress>
        <number>4393</number>
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          <actionDate>2019-09-19</actionDate>
          <text>Referred to the Subcommittee on Health.</text>
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        <text>Read twice and referred to the Committee on Finance. (Sponsor introductory remarks on measure: CR S7211)</text>
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        <actionDate>2019-12-19</actionDate>
        <text>Introduced in Senate</text>
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        <fullName>Sen. Collins, Susan M. [R-ME]</fullName>
        <firstName>Susan</firstName>
        <lastName>Collins</lastName>
        <party>R</party>
        <state>ME</state>
        <middleName>M.</middleName>
        <isByRequest>N</isByRequest>
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        <bioguideId>J000300</bioguideId>
        <fullName>Sen. Jones, Doug [D-AL]</fullName>
        <firstName>Doug</firstName>
        <lastName>Jones</lastName>
        <party>D</party>
        <state>AL</state>
        <sponsorshipDate>2019-12-19</sponsorshipDate>
        <isOriginalCosponsor>True</isOriginalCosponsor>
      </item>
      <item>
        <bioguideId>M001197</bioguideId>
        <fullName>Sen. McSally, Martha [R-AZ]</fullName>
        <firstName>Martha</firstName>
        <lastName>McSally</lastName>
        <party>R</party>
        <state>AZ</state>
        <sponsorshipDate>2019-12-19</sponsorshipDate>
        <isOriginalCosponsor>True</isOriginalCosponsor>
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        <bioguideId>M000639</bioguideId>
        <fullName>Sen. Menendez, Robert [D-NJ]</fullName>
        <firstName>Robert</firstName>
        <lastName>Menendez</lastName>
        <party>D</party>
        <state>NJ</state>
        <sponsorshipDate>2019-12-19</sponsorshipDate>
        <isOriginalCosponsor>True</isOriginalCosponsor>
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        <bioguideId>S001203</bioguideId>
        <fullName>Sen. Smith, Tina [D-MN]</fullName>
        <firstName>Tina</firstName>
        <lastName>Smith</lastName>
        <party>D</party>
        <state>MN</state>
        <sponsorshipDate>2020-03-05</sponsorshipDate>
        <isOriginalCosponsor>False</isOriginalCosponsor>
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      <name>Health</name>
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    <subjects>
      <legislativeSubjects>
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          <name>Adoption and foster care</name>
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        <item>
          <name>Cell biology and embryology</name>
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        <item>
          <name>Child health</name>
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        <item>
          <name>Emergency medical services and trauma care</name>
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        <item>
          <name>Genetics</name>
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          <name>Health care costs and insurance</name>
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          <name>Health care coverage and access</name>
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          <name>Health care quality</name>
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          <name>Health programs administration and funding</name>
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          <name>Health technology, devices, supplies</name>
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        <item>
          <name>Hospital care</name>
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        <item>
          <name>Medicaid</name>
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          <name>Medical tests and diagnostic methods</name>
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          <name>State and local government operations</name>
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        <name>Health</name>
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        <actionDate>2019-12-19</actionDate>
        <actionDesc>Introduced in Senate</actionDesc>
        <updateDate>2020-02-10T22:37:03Z</updateDate>
        <text><![CDATA[ <p><b>Ending the Diagnostic Odyssey Act of 2019</b></p> <p>This bill allows state Medicaid programs to cover whole genome sequencing services for certain individuals. </p> <p>Specifically, states may cover such services for individuals under the age of 21 (or a lower age, if the state chooses) and for former foster youth under the age of 26 who (1) have been referred or admitted to an intensive care unit or seen by a medical specialist for a suspected genetic or undiagnosed disease, or (2) are suspected by a medical specialist to have a neonatal- or pediatric-onset genetic disease. </p> <p>The Centers for Medicare &amp; Medicaid Services may award grants to assist states in developing plans to cover such services. </p>]]></text>
      </summary>
    </summaries>
    <title>Ending the Diagnostic Odyssey Act of 2019</title>
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        <titleType>Display Title</titleType>
        <title>Ending the Diagnostic Odyssey Act of 2019</title>
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        <titleType>Short Title(s) as Introduced</titleType>
        <title>Ending the Diagnostic Odyssey Act of 2019</title>
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      <item>
        <titleType>Official Title as Introduced</titleType>
        <title>A bill to enable States to better provide access to whole genome sequencing clinical services for certain undiagnosed children under the Medicaid program, and for other purposes.</title>
        <billTextVersionName>Introduced in Senate</billTextVersionName>
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        <type>Introduced in Senate</type>
        <date>2019-12-19T05:00:00Z</date>
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            <url>https://www.govinfo.gov/content/pkg/BILLS-116s3116is/xml/BILLS-116s3116is.xml</url>
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    <latestAction>
      <actionDate>2019-12-19</actionDate>
      <text>Read twice and referred to the Committee on Finance. (Sponsor introductory remarks on measure: CR S7211)</text>
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    <dc:language>EN</dc:language>
    <dc:rights>Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain.</dc:rights>
    <dc:contributor>Congressional Research Service, Library of Congress</dc:contributor>
    <dc:description>This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.</dc:description>
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