3.0.0 534 2022-11-01T14:02:54Z 2022-11-01T14:02:54Z House HR 2019-01-14 116 [Congressional Record Volume 165, Number 7 (Monday, January 14, 2019)][House]From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]By Ms. CLARKE of New York:H.R. 534.Congress has the power to enact this legislation pursuantto the following:the power granted to Congress under Article I of the UnitedStates Constitution and it subsequent amendments, and furtherclarified and interpreted by the Supreme Court of the UnitedStates.[Page H544]]]> hsif00 Energy and Commerce Committee House Standing hsif14 Health Subcommittee Referred to 2019-01-25T16:19:04Z Referred to 2019-01-14T17:00:30Z 2019-01-25 hsif14 Health Subcommittee 1 House committee actions Referred to the Subcommittee on Health. Committee 2019-01-14 Referred to the House Committee on Energy and Commerce. IntroReferral H11100 2 House floor actions hsif00 Energy and Commerce Committee 2019-01-14 Introduced in House IntroReferral Intro-H 9 Library of Congress 2019-01-14 Introduced in House IntroReferral 1000 9 Library of Congress C001067 Rep. Clarke, Yvette D. [D-NY-9] Yvette Clarke D NY D. 9 N Z000017 Rep. Zeldin, Lee M. [R-NY-1] Lee Zeldin R NY M. 1 2019-01-14 True R000515 Rep. Rush, Bobby L. [D-IL-1] BOBBY RUSH D IL L. 1 2019-04-04 False L000397 Rep. Lofgren, Zoe [D-CA-19] ZOE LOFGREN D CA 19 2019-04-12 False E000296 Rep. Evans, Dwight [D-PA-3] Dwight Evans D PA 3 2019-04-12 False L000480 Rep. Lowey, Nita M. [D-NY-17] NITA LOWEY D NY M. 17 2019-12-04 False Health Advisory bodies Child health Health promotion and preventive care Hereditary and development disorders Medical tests and diagnostic methods Neurological disorders Health 00 2019-01-14 Introduced in House 2019-08-28T14:12:03Z Aidan's Law

This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children.

The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.

]]> Aidan’s Law Display Title Aidan’s Law Official Title as Introduced To amend the Public Health Service Act, in relation to requiring adrenoleukodystrophy screening of newborns. Introduced in House IH Short Title(s) as Introduced Aidan’s Law Introduced in House IH Introduced in House 2019-01-14T05:00:00Z https://www.govinfo.gov/content/pkg/BILLS-116hr534ih/xml/BILLS-116hr534ih.xml 2019-01-25 Referred to the Subcommittee on Health. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.