3.0.0 5115 2023-01-11T13:40:29Z 2023-01-11T13:40:29Z House HR 2018-02-27 115 [Congressional Record Volume 164, Number 35 (Tuesday, February 27, 2018)]From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]By Mr. CARSON of Indiana:H.R. 5115.Congress has the power to enact this legislation pursuantto the following:Clause 1 of section 8 of Article I of the Constitution.[Page H1335]]]> hsif00 Energy and Commerce Committee House Standing hsif14 Health Subcommittee Referred to 2018-03-02T21:17:30Z Referred to 2018-02-27T15:03:30Z 2018-03-02 hsif14 Health Subcommittee 1 House committee actions Referred to the Subcommittee on Health. Committee 2018-02-27 Referred to the House Committee on Energy and Commerce. IntroReferral H11100 2 House floor actions hsif00 Energy and Commerce Committee 2018-02-27 Introduced in House IntroReferral Intro-H 9 Library of Congress 2018-02-27 Introduced in House IntroReferral 1000 9 Library of Congress C001072 Rep. Carson, Andre [D-IN-7] Andre Carson D IN 7 N C001106 Rep. Costello, Ryan A. [R-PA-6] Ryan Costello R PA A. 6 2018-02-27 True N000147 Del. Norton, Eleanor Holmes [D-DC-At Large] ELEANOR NORTON D DC HOLMES 0 2018-03-23 False P000607 Rep. Pocan, Mark [D-WI-2] Mark Pocan D WI 2 2018-04-13 False V000108 Rep. Visclosky, Peter J. [D-IN-1] PETER VISCLOSKY D IN J. 1 2018-05-07 False M001202 Rep. Murphy, Stephanie N. [D-FL-7] Stephanie Murphy D FL N. 7 2018-06-14 False M001163 Rep. Matsui, Doris O. [D-CA-6] Doris Matsui D CA O. 6 2018-07-03 False B001274 Rep. Brooks, Mo [R-AL-5] Mo Brooks R AL 5 2018-08-28 False F000466 Rep. Fitzpatrick, Brian K. [R-PA-8] Brian Fitzpatrick R PA K. 8 2018-08-28 False K000389 Rep. Khanna, Ro [D-CA-17] Ro Khanna D CA 17 2018-08-28 False R000580 Rep. Roskam, Peter J. [R-IL-6] Peter Roskam R IL J. 6 2018-09-06 False E000293 Rep. Esty, Elizabeth H. [D-CT-5] Elizabeth Esty D CT H. 5 2018-09-06 False B001285 Rep. Brownley, Julia [D-CA-26] Julia Brownley D CA 26 2018-09-06 False S001201 Rep. Suozzi, Thomas R. [D-NY-3] Thomas Suozzi D NY R. 3 2018-09-25 False D000191 Rep. DeFazio, Peter A. [D-OR-4] PETER DEFAZIO D OR A. 4 2018-09-25 False B001270 Rep. Bass, Karen [D-CA-37] Karen Bass D CA 37 2018-09-27 False H001056 Rep. Herrera Beutler, Jaime [R-WA-3] Jaime Herrera Beutler R WA 3 2018-09-27 False L000582 Rep. Lieu, Ted [D-CA-33] Ted Lieu D CA 33 2018-10-02 False B001281 Rep. Beatty, Joyce [D-OH-3] Joyce Beatty D OH 3 2018-11-06 False M001193 Rep. MacArthur, Thomas [R-NJ-3] Thomas MacArthur R NJ 3 2018-11-06 False Health Congressional oversight Government information and archives Health information and medical records Health personnel Health programs administration and funding Health promotion and preventive care Medical research Medical tests and diagnostic methods Public-private cooperation Research administration and funding Research and development Health 00 2018-02-27 Introduced in House 2019-08-26T18:37:33Z Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018

This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health.

The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.

]]> RARE Act of 2018 Display Title RARE Act of 2018 Official Title as Introduced To expand and improve the programs and activities of the Department of Health and Human Services for awareness, education, research, surveillance, diagnosis, and treatment concerning rare diseases and conditions. Introduced in House IH Short Titles as Introduced RARE Act of 2018 Short Titles as Introduced Rare disease Advancement, Research, and Education Act of 2018 Introduced in House 2018-02-27T05:00:00Z https://www.govinfo.gov/content/pkg/BILLS-115hr5115ih/xml/BILLS-115hr5115ih.xml 2018-03-02 Referred to the Subcommittee on Health. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.