3.0.0 2744 2023-01-11T13:31:27Z 2023-01-11T13:31:27Z Senate S 2016-04-05 114 sshr00 Health, Education, Labor, and Pensions Committee Senate Standing Referred to 2016-04-05T16:14:44Z Advancing Precision Medicine Act of 2016 114 2713 S 2016-04-18 Placed on Senate Legislative Calendar under General Orders. Calendar No. 428. Related bill CRS 21st Century Cures Act 114 34 HR 2016-12-13 Became Public Law No: 114-255. Related bill CRS 2016-04-05 sshr00 Health, Education, Labor, and Pensions Committee Senate Read twice and referred to the Committee on Health, Education, Labor, and Pensions. IntroReferral 2016-04-05 Introduced in Senate IntroReferral 10000 9 Library of Congress W000817 Sen. Warren, Elizabeth [D-MA] Elizabeth Warren D MA A. N E000285 Sen. Enzi, Michael B. [R-WY] MICHAEL ENZI R WY B. 2016-04-05 True Health Civil actions and liability Drug, alcohol, tobacco use Evidence and witnesses Freedom of information Health information and medical records Medical research Mental health Research administration and funding Right of privacy Health 00 2016-04-05 Introduced in Senate 2016-12-06T16:12:56Z Genetic Research Privacy Protection Act

This bill amends the Public Health Service Act to revise provisions regarding disclosure by researchers of the identifiable, sensitive information of research subjects. The Department of Health and Human Services (HHS) must prohibit researchers from disclosing such information from federally funded research to persons not connected to the research. Researchers may apply to have other research covered by this prohibition.

Disclosures of such information are permitted if required by law, necessary for the medical treatment of the research subject, made with the consent of the subject, or made for the purposes of other research that is in compliance with regulations regarding protection of subjects.

HHS may exempt identifiable information collected for biomedical research from disclosure under the Freedom of Information Act.]]> Genetic Research Privacy Protection Act Display Title Genetic Research Privacy Protection Act Official Title as Introduced A bill to amend the Public Health Service Act to protect the privacy of individuals who are research subjects, and for other purposes. Introduced in Senate IS Short Titles as Introduced Genetic Research Privacy Protection Act Introduced in Senate 2016-04-05T04:00:00Z https://www.govinfo.gov/content/pkg/BILLS-114s2744is/xml/BILLS-114s2744is.xml 2016-04-05 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.