3.0.0 1883 2023-01-11T13:30:01Z 2023-01-11T13:30:01Z Senate S 2015-07-29 114 sshr00 Health, Education, Labor, and Pensions Committee Senate Standing Referred to 2015-07-29T15:29:36Z Childhood Cancer STAR Act 114 3381 HR 2016-12-07 Received in the Senate. Identical bill CRS 2015-07-29 sshr00 Health, Education, Labor, and Pensions Committee Senate Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (Sponsor introductory remarks on measure: CR S6138) IntroReferral 2015-07-29 Introduced in Senate IntroReferral 10000 9 Library of Congress R000122 Sen. Reed, Jack [D-RI] John Reed D RI F. N C001047 Sen. Capito, Shelley Moore [R-WV] Shelley Capito R WV Moore 2015-07-29 True D000607 Sen. Donnelly, Joe [D-IN] Joe Donnelly D IN 2015-07-30 False B000944 Sen. Brown, Sherrod [D-OH] Sherrod Brown D OH 2015-08-03 False A000368 Sen. Ayotte, Kelly [R-NH] Kelly Ayotte R NH 2015-08-05 False G000555 Sen. Gillibrand, Kirsten E. [D-NY] Kirsten Gillibrand D NY E. 2015-08-05 False W000802 Sen. Whitehouse, Sheldon [D-RI] Sheldon Whitehouse D RI 2015-09-09 False S001181 Sen. Shaheen, Jeanne [D-NH] Jeanne Shaheen D NH 2015-09-09 False I000055 Sen. Isakson, Johnny [R-GA] Johnny Isakson R GA 2015-09-28 False K000367 Sen. Klobuchar, Amy [D-MN] Amy Klobuchar D MN 2015-10-06 False B000711 Sen. Boxer, Barbara [D-CA] BARBARA BOXER D CA 2015-11-03 False F000062 Sen. Feinstein, Dianne [D-CA] Dianne Feinstein D CA 2015-11-03 False S000148 Sen. Schumer, Charles E. [D-NY] Charles Schumer D NY E. 2015-11-10 False B001288 Sen. Booker, Cory A. [D-NJ] Cory Booker D NJ 2016-02-08 False C001070 Sen. Casey, Robert P., Jr. [D-PA] Bob Casey D PA 2016-02-22 False K000383 Sen. King, Angus S., Jr. [I-ME] Angus King I ME S. 2016-02-23 False B001277 Sen. Blumenthal, Richard [D-CT] Richard Blumenthal D CT 2016-04-07 False C001088 Sen. Coons, Christopher A. [D-DE] Christopher Coons D DE A. 2016-05-09 False R000595 Sen. Rubio, Marco [R-FL] Marco Rubio R FL 2016-05-18 False L000174 Sen. Leahy, Patrick J. [D-VT] Patrick Leahy D VT 2016-07-14 False S000770 Sen. Stabenow, Debbie [D-MI] Debbie Stabenow D MI 2016-07-14 False B001267 Sen. Bennet, Michael F. [D-CO] Michael Bennet D CO 2016-07-14 False K000360 Sen. Kirk, Mark Steven [R-IL] MARK KIRK R IL STEVEN 2016-07-14 False Health Advisory bodies Cancer Child health Congressional oversight Department of Health and Human Services Drug safety, medical device, and laboratory regulation Drug therapy Government information and archives Government studies and investigations Health care costs and insurance Health care coverage and access Health care quality Health information and medical records Health personnel Health programs administration and funding Home and outpatient care Long-term, rehabilitative, and terminal care Medical education Medical research Medical tests and diagnostic methods Mental health National Institutes of Health (NIH) Research administration and funding Social work, volunteer service, charitable organizations Health 00 2015-07-29 Introduced in Senate 2016-08-01T19:22:54Z Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2015 or the Childhood Cancer STAR Act

This bill amends the Public Health Service Act to permit the National Institutes of Health (NIH) to provide support to collect the medical specimens and information of children, adolescents, and young adults with cancer to improve the understanding of these cancers and of the effects of treatment.

The national childhood cancer registry is reauthorized through FY2020 and revised to require the Centers for Disease Control and Prevention to award grants to states to improve tracking of childhood cancers.

This bill amends the Federal Food, Drug, and Cosmetic Act to require manufacturers and distributors of investigational drugs to publish policies for compassionate use of the drugs.

The Department of Health and Human Services must: (1) support pilot programs to develop or study models for monitoring and caring for childhood cancer survivors throughout their lives, (2) convene a Workforce Development Collaborative on Medical and Psychosocial Care for Pediatric Cancer Survivors, (3) establish a task force on standards for high-quality childhood cancer survivorship care, and (4) carry out a demonstration project to improve care coordination as childhood cancer survivors transition to adult care.

The NIH must support research on: (1) outcomes for, and barriers faced by, pediatric cancer survivors within minority or medically underserved populations; and (2) follow-up care for pediatric cancer survivors, including research on the late effects of cancer treatment and long-term complications.

The Government Accountability Office must make recommendations to address barriers to childhood cancer survivors obtaining and paying for adequate medical care.]]> Childhood Cancer STAR Act Display Title Childhood Cancer STAR Act Official Title as Introduced A bill to maximize discovery, and accelerate development and availability, of promising childhood cancer treatments, and for other purposes. Introduced in Senate IS Short Titles as Introduced Childhood Cancer STAR Act Short Titles as Introduced Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2015 Introduced in Senate 2015-07-29T04:00:00Z https://www.govinfo.gov/content/pkg/BILLS-114s1883is/xml/BILLS-114s1883is.xml 2015-07-29 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (Sponsor introductory remarks on measure: CR S6138) text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.