3.0.0 152 2023-01-11T13:24:56Z 2023-01-11T13:24:56Z Senate S SRES 2013-05-22 113 sshr00 Health, Education, Labor, and Pensions Committee Senate Standing Referred to 2013-05-22T22:36:07Z 2013-05-22 sshr00 Health, Education, Labor, and Pensions Committee Senate Referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3767) IntroReferral 2013-05-22 Sponsor introductory remarks on measure. (CR S3767) IntroReferral B00100 9 Library of Congress 2013-05-22 Introduced in Senate IntroReferral 10000 9 Library of Congress C001099 Sen. Cowan, William M. [D-MA] William "Mo" Cowan D MA N Health Birth defects Commemorative events and holidays Health promotion and preventive care Medical research Neurological disorders Health 00 2013-05-22 Introduced in Senate 2013-07-16T21:52:55Z Expresses support for the designation of November 28, 2013, as National Holoprosencephaly Awareness Day.

Urges federal agencies to: (1) continue supporting research to better understand the causes of holoprosencephaly (HPE); (2) provide better counseling to families with the genetic forms of HPE; and (3) develop new ways to treat, and potentially prevent, HPE.

Calls on the people of the United States, interested groups, and affected persons to promote awareness of HPE and to take an active role in the fight to end its devastating effects.

]]> A resolution designating November 28, 2013, as "National Holoprosencephaly Awareness Day" to increase awareness and education of the disorder. Display Title A resolution designating November 28, 2013, as "National Holoprosencephaly Awareness Day" to increase awareness and education of the disorder. Official Title as Introduced A resolution designating November 28, 2013, as "National Holoprosencephaly Awareness Day" to increase awareness and education of the disorder. Introduced in Senate IS Introduced in Senate 2013-05-22T04:00:00Z https://www.govinfo.gov/content/pkg/BILLS-113sres152is/xml/BILLS-113sres152is.xml 2013-05-22 Referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3767) text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.