3.0.0 908 2023-01-11T13:24:58Z 2023-01-11T13:24:58Z Senate S S 2013-05-08 113 sshr00 Health, Education, Labor, and Pensions Committee Senate Standing Referred to 2013-05-08T22:29:48Z Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2014 113 4592 HR 2014-05-09 Referred to the Subcommittee on Health. Related bill CRS 2013-05-08 sshr00 Health, Education, Labor, and Pensions Committee Senate Read twice and referred to the Committee on Health, Education, Labor, and Pensions. IntroReferral 2013-05-08 Introduced in Senate IntroReferral 10000 9 Library of Congress J000177 Sen. Johnson, Tim [D-SD] TIM JOHNSON D SD N L000550 Sen. Landrieu, Mary L. [D-LA] MARY LANDRIEU D LA 2013-06-06 False B000711 Sen. Boxer, Barbara [D-CA] BARBARA BOXER D CA 2013-06-11 False C001088 Sen. Coons, Christopher A. [D-DE] Christopher Coons D DE A. 2013-09-12 False M001169 Sen. Murphy, Christopher [D-CT] Christopher Murphy D CT S. 2013-11-13 False S000148 Sen. Schumer, Charles E. [D-NY] Charles Schumer D NY E. 2013-11-21 False S000770 Sen. Stabenow, Debbie [D-MI] Debbie Stabenow D MI 2014-07-10 False Health Advisory bodies Cardiovascular and respiratory health Health care costs and insurance Health facilities and institutions Health information and medical records Health programs administration and funding Hereditary and development disorders Medical research Medical tests and diagnostic methods Medicare Research administration and funding Health 00 2013-05-08 Introduced in Senate 2013-08-13T20:16:55Z Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2013 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) to establish and implement a hereditary hemorrhagic telangiectasia (HHT, a vascular genetic bleeding disorder that causes abnormalities of the blood vessels) initiative to assist in coordinating activities to improve early detection, screening, and treatment of people who suffer from HHT, focusing on advancing research on the causes, diagnosis, and treatment of HHT and increasing physician and public awareness of HHT.

Directs the Secretary to establish the HHT Coordinating Committee to develop and coordinate implementation of a plan to advance research and understanding of HHT, including by: (1) conducting or supporting research across relevant National Institutes of Health (NIH) institutes, and (2) conducting evaluations and making recommendations regarding the prioritization and award of NIH research grants relating to HHT.

Requires the Director of the Centers for Disease Control and Prevention (CDC) to carry out activities with respect to HHT, including conducting population screening and establishing an HHT resource center to provide comprehensive education on, and disseminate information about, HHT to health professionals, patients, industry, and the public. Sets forth requirements for HHT population screening, including requiring the Director of CDC to designate and provide funding for HHT Treatment Centers of Excellence.

Requires the Administrator of the Centers for Medicare & Medicaid Services (CMS) to award grants for: (1) an analysis of the Medicare Provider Analysis and Review (MEDPAR) file to develop preliminary estimates for preventable costs of annual health care expenditures associated with untreated HHT and socioeconomic costs associated with preventable medical events among Medicare beneficiaries with HHT; and (2) recommendations regarding an enhanced data collection protocol to permit a more precise determination of such costs.

]]> Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2013 Display Title Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2013 Official Title as Introduced A bill to amend the Public Health Service Act to improve the diagnosis and treatment of hereditary hemorrhagic telangiectasia, and for other purposes. Introduced in Senate IS Short Titles as Introduced Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2013 Introduced in Senate 2013-05-08T04:00:00Z https://www.govinfo.gov/content/pkg/BILLS-113s908is/xml/BILLS-113s908is.xml 2013-05-08 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.