3.0.0 660 2022-11-15T16:34:25Z 2022-11-15T16:34:25Z House H HR 2013-02-13 113 From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]By Ms. LEE of California:H.R. 660.Congress has the power to enact this legislation pursuantto the following:This bill is enacted pursuant to the power granted toCongress under Article I of the United States Constitutionand its subsequent amendments, and further clarified andinterpreted by the Supreme Court of the United States.[Page H503]]]> hsif00 Energy and Commerce Committee House Standing hsif14 Health Subcommittee Referred to 2013-02-15T21:16:09Z Referred to 2013-02-13T15:02:05Z 2013-02-15 hsif14 Health Subcommittee 1 House committee actions Referred to the Subcommittee on Health. Committee 2013-02-13 Referred to the House Committee on Energy and Commerce. IntroReferral H11100 2 House floor actions hsif00 Energy and Commerce Committee 2013-02-13 Introduced in House IntroReferral Intro-H 9 Library of Congress 2013-02-13 Introduced in House IntroReferral 1000 9 Library of Congress L000551 Rep. Lee, Barbara [D-CA-13] BARBARA LEE D CA 13 N Health Department of Health and Human Services Executive agency funding and structure Health programs administration and funding Hearing, speech, and vision care Medical research National Institutes of Health (NIH) Neurological disorders Research administration and funding Health 00 2013-02-13 Introduced in House 2013-04-08T19:14:02Z Neuromyelitis Optica Consortium Act - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish, administer, and coordinate a National Neuromyelitis Optica (NMO) Consortium to: (1) award grants of not fewer than five years duration to conduct research with respect to the causes of, and the risk factors and biomarkers associated with, NMO (a neurological disease leading to blindness and paralysis); (2) assemble a panel of experts to provide ongoing guidance and the recommendations on research design and protocols, and (3) designate a central laboratory to collect, analyze, and aggregate data with respect to such research and to make such data and analysis available to researchers.

Establishes eligibility requirements for a consortium (a partnership of two or more universities, health care organizations, or government agencies, or any combination of such entities), including that: (1) it has the capability to enroll a minimum of 25 individuals with a diagnosis of NMO as research participants from the designated catchment area (geographical area), and (2) that the catchment area does not overlap with any other consortium receiving a grant under this Act.

]]> Neuromyelitis Optica Consortium Act Display Title Neuromyelitis Optica Consortium Act Short Titles as Introduced Neuromyelitis Optica Consortium Act Official Title as Introduced To amend the Public Health Service Act to create a National Neuromyelitis Optica Consortium to provide grants and coordinate research with respect to the causes of, and risk factors associated with, neuromyelitis optica, and for other purposes. Introduced in House 2013-02-13T05:00:00Z https://www.govinfo.gov/content/pkg/BILLS-113hr660ih/xml/BILLS-113hr660ih.xml 2013-02-15 Referred to the Subcommittee on Health. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.