3.0.0 425 2020-02-10T17:03:04Z 2020-02-10T17:03:04Z Senate S S 2011-03-01 112 sshr00 Health, Education, Labor, and Pensions Committee Senate Standing Referred to 2011-03-01T18:56:31Z National Neurological Diseases Surveillance System Act of 2011 112 2595 HR 2011-07-29 Referred to the Subcommittee on Health. Related bill CRS 2011-03-01 sshr00 Health, Education, Labor, and Pensions Committee Senate Read twice and referred to the Committee on Health, Education, Labor, and Pensions. IntroReferral 2011-03-01 Introduced in Senate IntroReferral 10000 9 Library of Congress U000038 Sen. Udall, Mark [D-CO] MARK UDALL D CO N S000770 Sen. Stabenow, Debbie [D-MI] Debbie Stabenow D MI 2011-03-01 True I000055 Sen. Isakson, Johnny [R-GA] Johnny Isakson R GA 2011-03-01 True C001070 Sen. Casey, Robert P., Jr. [D-PA] Bob Casey D PA 2011-03-01 True J000291 Sen. Johanns, Mike [R-NE] Mike Johanns R NE 2011-03-01 True H001049 Sen. Hagan, Kay R. [D-NC] Kay Hagan D NC R. 2011-03-02 False L000550 Sen. Landrieu, Mary L. [D-LA] MARY LANDRIEU D LA 2011-03-03 False M000639 Sen. Menendez, Robert [D-NJ] Robert Menendez D NJ 2011-03-10 False M001153 Sen. Murkowski, Lisa [R-AK] Lisa Murkowski R AK 2011-03-10 False C000286 Sen. Chambliss, Saxby [R-GA] SAXBY CHAMBLISS R GA 2011-03-17 False S000663 Sen. Snowe, Olympia J. [R-ME] Olympia Snowe R ME J. 2011-04-12 False B000468 Sen. Bingaman, Jeff [D-NM] JESSE BINGAMAN D NM FRANCIS 2011-05-05 False S000148 Sen. Schumer, Charles E. [D-NY] Charles Schumer D NY E. 2011-05-12 False R000122 Sen. Reed, Jack [D-RI] John Reed D RI F. 2011-05-17 False I000025 Sen. Inouye, Daniel K. [D-HI] DANIEL INOUYE D HI KEN 2011-08-01 False Health Advisory bodies Government information and archives Health information and medical records Health programs administration and funding Medical research Neurological disorders Health 00 2011-03-01 Introduced in Senate 2011-03-07T23:14:19Z National Neurological Diseases Surveillance System Act of 2011 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) enhance and expand infrastructure and activities to track the epidemiology of neurological diseases, including multiple sclerosis and Parkinson's disease; and (2) incorporate information obtained through such activities into a National Neurological Diseases Surveillance System. Requires the Secretary to ensure that the System is designed in a manner that facilitates further research on neurological diseases.

Requires the Secretary to provide for the collection and storage of information on the incidence and prevalence of neurological diseases in the United States and other information on neurological diseases, such as demographics information, risk factors, or diagnosis and progression markers. Authorizes the Secretary to: (1) provide for the collection and storage of information relevant to analysis on neurological diseases, such as information concerning the epidemiology, natural history, prevention, detection, management, and treatment of the diseases and the development of outcomes measures; and (2) address issues identified through consultations with individuals with appropriate expertise.

Authorizes the Secretary to award grants to, or enter into contracts or cooperative agreements with, public or private nonprofit entities to carry out activities under this Act.

Requires the Secretary to: (1) make information and analysis in the System available to federal agencies and to the public, including researchers; and (2) ensure that privacy and security protections applicable to the System are at least as stringent as federal privacy and security law under the Health Insurance Portability and Accountability Act (HIPAA).

]]> National Neurological Diseases Surveillance System Act of 2011 Short Titles as Introduced National Neurological Diseases Surveillance System Act of 2011 Display Title National Neurological Diseases Surveillance System Act of 2011 Official Title as Introduced A bill to amend the Public Health Service Act to provide for the establishment of permanent national surveillance systems for multiple sclerosis, Parkinson's disease, and other neurological diseases and disorders. Introduced in Senate 2011-03-01T05:00:00Z https://www.govinfo.gov/content/pkg/BILLS-112s425is/xml/BILLS-112s425is.xml 2011-03-01 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.