3.0.0 3461 2020-02-10T17:00:04Z 2020-02-10T17:00:04Z Senate S S 2012-07-31 112 sshr00 Health, Education, Labor, and Pensions Committee Senate Standing Referred to 2012-07-31T20:03:37Z National Pediatric Research Network Act of 2012 112 6163 HR 2012-09-20 Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions. Identical bill CRS 2012-07-31 sshr00 Health, Education, Labor, and Pensions Committee Senate Read twice and referred to the Committee on Health, Education, Labor, and Pensions. IntroReferral 2012-07-31 Sponsor introductory remarks on measure. (CR S5735-5736) IntroReferral B00100 9 Library of Congress 2012-07-31 Introduced in Senate IntroReferral 10000 9 Library of Congress B000944 Sen. Brown, Sherrod [D-OH] Sherrod Brown D OH N W000437 Sen. Wicker, Roger F. [R-MS] Roger Wicker R MS F. 2012-07-31 True K000148 Sen. Kerry, John F. [D-MA] JOHN KERRY D MA FORBES 2012-07-31 True B001277 Sen. Blumenthal, Richard [D-CT] Richard Blumenthal D CT 2012-07-31 True W000802 Sen. Whitehouse, Sheldon [D-RI] Sheldon Whitehouse D RI 2012-07-31 True B001265 Sen. Begich, Mark [D-AK] Mark Begich D AK 2012-07-31 True B000575 Sen. Blunt, Roy [R-MO] Roy Blunt R MO 2012-09-19 False G000386 Sen. Grassley, Chuck [R-IA] Charles Grassley R IA E. 2012-09-19 False C001035 Sen. Collins, Susan M. [R-ME] Susan Collins R ME M. 2012-09-21 False I000055 Sen. Isakson, Johnny [R-GA] Johnny Isakson R GA 2012-11-28 False P000449 Sen. Portman, Rob [R-OH] Rob Portman R OH 2012-12-17 False Health Birth defects Child health Government information and archives Health information and medical records Health programs administration and funding Hereditary and development disorders Medical education Medical research Research administration and funding Health 00 2012-07-31 Introduced in Senate 2012-09-28T15:03:42Z National Pediatric Research Network Act of 2012 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out the Pediatric Research Initiative, to act through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development and in collaboration with other appropriate national research institutes and national centers that carry out activities involving pediatric research to provide for the establishment of a National Pediatric Research Network.

Authorizes the Director of the Institute to award cooperative agreements and grants to public or private nonprofit entities for: (1) planning, establishing, or strengthening pediatric research consortia; and (2) providing basic operating support for such consortia, including for pediatric research needs and training. Authorizes the Director to make awards for not more than 20 pediatric research consortia. Requires the Director to provide for the coordination of activities among the consortia and to require the periodic preparation and submission of reports on their activities.

Requires the Director of NIH to ensure that an appropriate number of such awards are awarded to consortia that agree to: (1) focus primarily on pediatric rare diseases or conditions; (2) conduct or coordinate multi-site clinical trials of therapies for, or approaches to, the prevention, diagnosis, or treatment of pediatric rare diseases or conditions; and (3) disseminate trial findings.

Requires the Director of NIH to establish a data coordinating center to: (1) distribute such findings; (2) provide assistance in the design and conduct of collaborative research projects and the management, analysis, and storage of data associated with such projects; (3) organize and conduct multi-site monitoring activities; (4) provide assistance to the Centers for Disease Control and Prevention (CDC) in the establishment of patient registries; and (5) report regularly on consortia research.

]]> National Pediatric Research Network Act of 2012 Short Titles as Introduced National Pediatric Research Network Act of 2012 Display Title National Pediatric Research Network Act of 2012 Official Title as Introduced A bill to amend title IV of the Public Health Service Act to provide for a National Pediatric Research Network, including with respect to pediatric rare diseases or conditions. Introduced in Senate 2012-07-31T04:00:00Z https://www.govinfo.gov/content/pkg/BILLS-112s3461is/xml/BILLS-112s3461is.xml 2012-07-31 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.