3.0.0 1762 2023-01-11T13:17:45Z 2023-01-11T13:17:45Z Senate S S 2009-10-07 111 sshr00 Health, Education, Labor, and Pensions Committee Senate Standing Referred to 2009-10-07T21:02:21Z Trisomy 21 Translational Research Parity Act of 2009 111 3656 HR 2009-09-29 Referred to the Subcommittee on Health. Identical bill CRS 2009-10-07 sshr00 Health, Education, Labor, and Pensions Committee Senate Read twice and referred to the Committee on Health, Education, Labor, and Pensions. IntroReferral 2009-10-07 Introduced in Senate IntroReferral 10000 9 Library of Congress B000953 Sen. Brownback, Sam [R-KS] SAM BROWNBACK R KS N B000944 Sen. Brown, Sherrod [D-OH] Sherrod Brown D OH 2009-10-07 True C001035 Sen. Collins, Susan M. [R-ME] Susan Collins R ME M. 2010-03-05 False Health Advisory bodies Department of Health and Human Services Drug therapy Genetics Health information and medical records Health programs administration and funding Hereditary and development disorders Medical education Medical research Medical tests and diagnostic methods National Institutes of Health (NIH) Research administration and funding Health 00 2009-10-07 Introduced in Senate 2010-01-28T21:54:02Z Trisomy 21 Translational Research Parity Act of 2009 or the 21 Act - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH): (1) in coordination with the directors of specified national research institutes, to expand and intensify NIH programs with respect to translational research and related activities concerning Down syndrome; and (2) allocate specified funds among such institutes.

Requires the Director to award grants and contracts for, and provide for the establishment of, at least six centers of excellence regarding such translational research to: (1) contribute to a comprehensive research portfolio for Down syndrome, provide an optimal venue and infrastructure for patient-oriented research, and conduct basic, clinical, and translational research on Down syndrome; (2) carry out a program to make individuals aware of opportunities to participate as subjects in research conducted by the centers; and (3) establish or expand training programs for medical and allied health clinicians and scientists in research relevant to Down syndrome.

Requires the Director, in coordination of the National Down Syndrome Patient Registry and Biobank (Biobank), to provide for a program under which samples of tissues and genetic materials that are of use in research on Down syndrome are made available.

Requires the Secretary of Health and Human Services (HHS) to: (1) establish the Down Syndrome Coordinating Committee to coordinate federal health programs relating to Down syndrome; (2) award grants and cooperative agreements for the collection, analysis, and reporting of data on, and for epidemiological activities regarding, Down syndrome; (3) establish the Biobank and an advisory committee; and (4) enter into cooperative agreements to develop, implement, and manage Down Syndrome Centers of Excellence.

]]> Trisomy 21 Translational Research Parity Act of 2009 Display Title Trisomy 21 Translational Research Parity Act of 2009 Official Title as Introduced A bill to amend the Public Health Service Act to expand and intensify programs of the National Institutes of Health and the Centers for Disease Control and Prevention with respect to translational research and related activities concerning Down syndrome, and for other purposes. Introduced in Senate IS Short Titles as Introduced Trisomy 21 Translational Research Parity Act of 2009 Short Titles as Introduced 21 Act Introduced in Senate 2009-10-07T04:00:00Z https://www.govinfo.gov/content/pkg/BILLS-111s1762is/xml/BILLS-111s1762is.xml 2009-10-07 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.