3.0.0 2149 2023-01-11T13:19:29Z 2023-01-11T13:19:29Z House H HR 2009-04-28 111 hsif00 Energy and Commerce Committee House Standing hsif14 Health Subcommittee Referred to 2009-04-29T15:42:51Z Referred to 2009-04-28T14:31:50Z SMA Treatment Acceleration Act of 2009 111 1158 S 2009-05-21 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. Related bill CRS 2009-04-29 hsif14 Health Subcommittee 1 House committee actions Referred to the Subcommittee on Health. Committee 2009-04-28 Referred to the House Committee on Energy and Commerce. IntroReferral H11100 2 House floor actions hsif00 Energy and Commerce Committee 2009-04-28 Sponsor introductory remarks on measure. (CR E993) IntroReferral B00100 9 Library of Congress 2009-04-28 Introduced in House IntroReferral Intro-H 9 Library of Congress 2009-04-28 Introduced in House IntroReferral 1000 9 Library of Congress K000113 Rep. Kennedy, Patrick J. [D-RI-1] PATRICK KENNEDY D RI J. 1 N C001046 Rep. Cantor, Eric [R-VA-7] ERIC CANTOR R VA 7 2009-04-28 True M000087 Rep. Maloney, Carolyn B. [D-NY-14] CAROLYN MALONEY D NY B. 14 2009-04-29 False D000609 Rep. Driehaus, Steve [D-OH-1] Steve Driehaus D OH 1 2009-04-30 False T000462 Rep. Tiberi, Patrick J. [R-OH-12] PATRICK TIBERI R OH J. 12 2009-04-30 False W000804 Rep. Wittman, Robert J. [R-VA-1] Robert Wittman R VA J. 1 2009-05-05 False Y000031 Rep. Young, C. W. Bill [R-FL-10] C. W. Young R FL Bill 10 2009-05-12 False W000672 Rep. Wolf, Frank R. [R-VA-10] FRANK WOLF R VA R. 10 2009-05-12 False S001169 Rep. Sestak, Joe [D-PA-7] Joe Sestak D PA 7 2009-05-12 False F000456 Rep. Fleming, John [R-LA-4] John Fleming R LA 4 2009-05-12 False M001159 Rep. McMorris Rodgers, Cathy [R-WA-5] Cathy McMorris Rodgers R WA 5 2009-05-14 False W000793 Rep. Wu, David [D-OR-1] DAVID WU D OR 1 2009-06-02 False M001147 Rep. McCotter, Thaddeus G. [R-MI-11] Thaddeus McCotter R MI G. 11 2009-06-02 False W000795 Rep. Wilson, Joe [R-SC-2] Joe Wilson R SC 2 2009-06-03 False L000559 Rep. Langevin, James R. [D-RI-2] JAMES LANGEVIN D RI R. 2 2009-06-09 False T000326 Rep. Towns, Edolphus [D-NY-10] EDOLPHUS TOWNS D NY 10 2009-06-09 False H001045 Rep. Harper, Gregg [R-MS-3] Gregg Harper R MS 3 2009-06-10 False M001137 Rep. Meeks, Gregory W. [D-NY-6] GREGORY MEEKS D NY W. 6 2009-06-10 False C001036 Rep. Capps, Lois [D-CA-23] LOIS CAPPS D CA 23 2009-07-07 False H001047 Rep. Himes, James A. [D-CT-4] James Himes D CT A. 4 2009-07-07 False C001067 Rep. Clarke, Yvette D. [D-NY-11] Yvette Clarke D NY D. 11 2009-07-07 False B000574 Rep. Blumenauer, Earl [D-OR-3] EARL BLUMENAUER D OR 3 2009-07-07 False M000485 Rep. McIntyre, Mike [D-NC-7] MIKE MCINTYRE D NC 7 2009-07-13 False H001038 Rep. Higgins, Brian [D-NY-27] Brian Higgins D NY 27 2009-07-15 False P000586 Rep. Putnam, Adam H. [R-FL-12] ADAM PUTNAM R FL H. 12 2009-07-15 False T000193 Rep. Thompson, Bennie G. [D-MS-2] BENNIE THOMPSON D MS 2 2009-07-15 False H001037 Rep. Herseth Sandlin, Stephanie [D-SD-At Large] Stephanie Herseth Sandlin D SD 0 2009-07-17 False G000289 Rep. Goodlatte, Bob [R-VA-6] ROBERT GOODLATTE R VA W. 6 2009-07-17 False M001173 Rep. Massa, Eric J. J. [D-NY-29] Eric Massa D NY J. J. 29 2009-07-29 False H001039 Rep. Hall, John J. [D-NY-19] John Hall D NY J. 19 2009-07-30 False I000057 Rep. Israel, Steve [D-NY-2] STEVE ISRAEL D NY 2 2009-07-30 False R000395 Rep. Rogers, Harold [R-KY-5] HAROLD ROGERS R KY 5 2009-07-31 False D000604 Rep. Dent, Charles W. [R-PA-15] Charles Dent R PA W. 15 2009-09-08 False R000462 Rep. Rothman, Steven R. [D-NJ-9] STEVEN ROTHMAN D NJ R. 9 2009-09-08 False J000255 Rep. Jones, Walter B., Jr. [R-NC-3] WALTER JONES R NC B. 3 2009-09-08 False L000397 Rep. Lofgren, Zoe [D-CA-16] ZOE LOFGREN D CA 16 2009-09-09 False H000712 Rep. Holden, Tim [D-PA-17] TIM HOLDEN D PA 17 2009-09-14 False B000013 Rep. Bachus, Spencer [R-AL-6] SPENCER BACHUS R AL 6 2009-09-21 False F000339 Rep. Frank, Barney [D-MA-4] BARNEY FRANK D MA 4 2009-09-22 False S000185 Rep. Scott, Robert C. "Bobby" [D-VA-3] Robert Scott D VA C. "Bobby" 3 2009-09-22 False A000361 Rep. Alexander, Rodney [R-LA-5] Rodney Alexander R LA 5 2009-09-23 False F000445 Rep. Forbes, J. Randy [R-VA-4] J. Forbes R VA Randy 4 2009-09-29 False K000210 Rep. King, Peter T. [R-NY-3] PETER KING R NY T. 3 2009-09-29 False W000797 Rep. Wasserman Schultz, Debbie [D-FL-20] Debbie Wasserman Schultz D FL 20 2009-09-29 False P000591 Rep. Price, Tom [R-GA-6] Tom Price R GA 6 2009-09-29 False C000754 Rep. Cooper, Jim [D-TN-5] JAMES COOPER D TN H. 5 2009-09-30 False B000657 Rep. Boucher, Rick [D-VA-9] RICK BOUCHER D VA 9 2009-10-01 False F000449 Rep. Fortenberry, Jeff [R-NE-1] Jeff Fortenberry R NE 1 2009-10-06 False B001230 Rep. Baldwin, Tammy [D-WI-2] Tammy Baldwin D WI 2 2009-10-06 False G000410 Rep. Green, Gene [D-TX-29] GENE GREEN D TX 29 2009-10-08 False C001066 Rep. Castor, Kathy [D-FL-11] Kathy Castor D FL 11 2009-10-08 False R000515 Rep. Rush, Bobby L. [D-IL-1] BOBBY RUSH D IL L. 1 2009-10-08 False C000380 Del. Christensen, Donna M. [D-VI-At Large] DONNA CHRISTENSEN D VI M. 0 2009-10-08 False W000796 Rep. Westmoreland, Lynn A. [R-GA-3] Lynn Westmoreland R GA A. 3 2009-10-13 False B001259 Rep. Braley, Bruce L. [D-IA-1] Bruce Braley D IA L. 1 2009-10-13 False B001251 Rep. Butterfield, G. K. [D-NC-1] G. K. Butterfield D NC 1 2009-10-13 False G000309 Rep. Gordon, Bart [D-TN-6] BART GORDON D TN 6 2009-10-21 False M000933 Rep. Moran, James P. [D-VA-8] JAMES MORAN D VA P. 8 2009-11-02 False P000592 Rep. Poe, Ted [R-TX-2] Ted Poe R TX 2 2009-11-16 False K000172 Rep. Kildee, Dale E. [D-MI-5] DALE KILDEE D MI E. 5 2009-11-16 False W000801 Rep. Wilson, Charles A. [D-OH-6] Charles Wilson D OH A. 6 2009-11-17 False P000258 Rep. Peterson, Collin C. [D-MN-7] COLLIN PETERSON D MN C. 7 2009-11-19 False N000183 Rep. Nye, Glenn C. [D-VA-2] Glenn Nye D VA C. 2 2009-11-19 False R000435 Rep. Ros-Lehtinen, Ileana [R-FL-18] ILEANA ROS-LEHTINEN R FL 18 2009-12-01 False B001254 Rep. Boren, Dan [D-OK-2] Dan Boren D OK 2 2009-12-01 False K000188 Rep. Kind, Ron [D-WI-3] RON KIND D WI 3 2009-12-01 False M001157 Rep. McCaul, Michael T. [R-TX-10] Michael McCaul R TX T. 10 2009-12-01 False S000810 Rep. Stark, Fortney Pete [D-CA-13] PETE STARK D CA 13 2009-12-01 False K000365 Rep. Kagen, Steve [D-WI-8] Steve Kagen D WI 8 2009-12-07 False H000067 Rep. Hall, Ralph M. [R-TX-4] RALPH HALL R TX M. 4 2009-12-08 False H001046 Rep. Heinrich, Martin [D-NM-1] Martin Heinrich D NM T. 1 2009-12-10 False S000480 Rep. Slaughter, Louise McIntosh [D-NY-28] LOUISE SLAUGHTER D NY M. 28 2009-12-11 False C001065 Rep. Carney, Christopher P. [D-PA-10] Christopher Carney D PA P. 10 2009-12-16 False J000288 Rep. Johnson, Henry C. "Hank," Jr. [D-GA-4] Henry Johnson D GA C. "Hank" 4 2010-01-12 False N000179 Rep. Napolitano, Grace F. [D-CA-38] GRACE NAPOLITANO D CA F. 38 2010-01-12 False L000551 Rep. Lee, Barbara [D-CA-9] BARBARA LEE D CA 9 2010-01-20 False E000215 Rep. Eshoo, Anna G. [D-CA-14] ANNA ESHOO D CA G. 14 2010-01-26 False B001242 Rep. Bishop, Timothy H. [D-NY-1] Timothy Bishop D NY H. 1 2010-02-24 False U000031 Rep. Upton, Fred [R-MI-6] FRED UPTON R MI 6 2010-02-26 False M001151 Rep. Murphy, Tim [R-PA-18] Tim Murphy R PA 18 2010-02-26 False M000133 Rep. Markey, Edward J. [D-MA-7] Edward Markey D MA J. 7 2010-03-02 False B000490 Rep. Bishop, Sanford D., Jr. [D-GA-2] SANFORD BISHOP D GA D. 2 2010-03-03 False S001175 Rep. Speier, Jackie [D-CA-12] Jackie Speier D CA 12 2010-03-03 False A000362 Rep. Altmire, Jason [D-PA-4] Jason Altmire D PA 4 2010-03-09 False T000469 Rep. Tonko, Paul [D-NY-21] Paul Tonko D NY 21 2010-03-15 False G000559 Rep. Garamendi, John [D-CA-10] John Garamendi D CA 10 2010-04-13 False S001177 Del. Sablan, Gregorio Kilili Camacho [D-MP-At Large] Gregorio Sablan D MP Kilili Camacho 0 2010-04-13 False N000002 Rep. Nadler, Jerrold [D-NY-8] JERROLD NADLER D NY 8 2010-04-13 False S001165 Rep. Sires, Albio [D-NJ-13] Albio Sires D NJ 13 2010-04-13 False E000288 Rep. Ellison, Keith [D-MN-5] Keith Ellison D MN 5 2010-04-15 False P000373 Rep. Pitts, Joseph R. [R-PA-16] JOSEPH PITTS R PA R. 16 2010-04-15 False T000074 Rep. Taylor, Gene [D-MS-4] GENE TAYLOR D MS 4 2010-04-28 False B001252 Rep. Barrow, John [D-GA-12] John Barrow D GA 12 2010-04-28 False E000179 Rep. Engel, Eliot L. [D-NY-17] ELIOT ENGEL D NY L. 17 2010-04-29 False L000569 Rep. Luetkemeyer, Blaine [R-MO-9] Blaine Luetkemeyer R MO 9 2010-05-04 False L000563 Rep. Lipinski, Daniel [D-IL-3] Daniel Lipinski D IL William 3 2010-05-04 False K000372 Rep. Kilroy, Mary Jo [D-OH-15] Mary Jo Kilroy D OH 15 2010-05-05 False C001074 Rep. Childers, Travis [D-MS-1] Travis Childers D MS 1 2010-05-06 False K000360 Rep. Kirk, Mark Steven [R-IL-10] MARK KIRK R IL STEVEN 10 2010-05-11 False M001171 Rep. Maffei, Daniel B. [D-NY-25] Daniel Maffei D NY B. 25 2010-05-11 False M001163 Rep. Matsui, Doris O. [D-CA-5] Doris Matsui D CA O. 5 2010-05-13 False M001149 Rep. Michaud, Michael H. [D-ME-2] Michael Michaud D ME H. 2 2010-05-18 False C001078 Rep. Connolly, Gerald E. [D-VA-11] Gerald Connolly D VA E. 11 2010-05-24 False F000043 Rep. Fattah, Chaka [D-PA-2] CHAKA FATTAH D PA 2 2010-06-08 False C001058 Rep. Chandler, Ben [D-KY-6] Ben Chandler D KY 6 2010-06-08 False F000116 Rep. Filner, Bob [D-CA-51] BOB FILNER D CA 51 2010-06-16 False M001161 Rep. Melancon, Charlie [D-LA-3] Charlie Melancon D LA 3 2010-06-22 False P000523 Rep. Price, David E. [D-NC-4] DAVID PRICE D NC E. 4 2010-07-01 False L000111 Rep. Latham, Tom [R-IA-4] TOM LATHAM R IA 4 2010-07-13 False L000287 Rep. Lewis, John [D-GA-5] JOHN LEWIS D GA 5 2010-07-15 False W000791 Rep. Walden, Greg [R-OR-2] GREG WALDEN R OR 2 2010-07-30 False C000556 Rep. Coble, Howard [R-NC-6] HOWARD COBLE R NC 6 2010-08-10 False D000482 Rep. Doyle, Michael F. [D-PA-14] MIKE DOYLE D PA 14 2010-09-14 False O000085 Rep. Olver, John W. [D-MA-1] JOHN OLVER D MA W. 1 2010-09-14 False R000573 Rep. Ross, Mike [D-AR-4] MIKE ROSS D AR 4 2010-09-14 False T000465 Rep. Tsongas, Niki [D-MA-5] Niki Tsongas D MA 5 2010-09-16 False M001169 Rep. Murphy, Christopher [D-CT-5] Christopher Murphy D CT S. 5 2010-09-22 False M001178 Rep. Murphy, Scott [D-NY-20] Scott Murphy D NY 20 2010-09-23 False S001162 Rep. Schwartz, Allyson Y. [D-PA-13] Allyson Schwartz D PA Y. 13 2010-09-29 False S001156 Rep. Sánchez, Linda T. [D-CA-39] Linda Sánchez D CA T. 39 2010-11-15 False Health Department of Health and Human Services Executive agency funding and structure Government information and archives Health information and medical records Health programs administration and funding Medical education Medical research Musculoskeletal and skin diseases National Institutes of Health (NIH) Neurological disorders Research administration and funding Health 00 2009-04-28 Introduced in House 2009-07-23T21:15:41Z SMA Treatment Acceleration Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish a national clinical trials network for spinal muscular atrophy by upgrading and unifying spinal muscular atrophy clinical trial sites and recruiting new investigators and sites. Requires the Director to ensure that such network: (1) conducts coordinated, multisite, clinical trials of therapies and clinical approaches to the treatment of spinal muscular atrophy; and (2) rapidly and efficiently disseminates scientific findings to the field.

Requires the Director to: (1) establish a data coordinating center with respect to spinal muscular atrophy; and (2) expand and intensify NIH programs with respect to preclinical translation research related to spinal muscular atrophy.

Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and support a spinal muscular atrophy patient registry to provide for expanded epidemiological research towards improving awareness, management, treatment, and prevention of spinal muscular atrophy. Requires the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages.

Directs the Secretary to establish the Interagency Spinal Muscular Atrophy Research Coordinating Committee. Sets forth the duties of the Committee, including to develop a comprehensive strategy related to spinal muscular atrophy research and other related neurological diseases and disorders.

Requires the Secretary to establish a program to provide information and education on spinal muscular atrophy to health professionals and the general public.

]]> SMA Treatment Acceleration Act of 2009 Display Title SMA Treatment Acceleration Act of 2009 Official Title as Introduced To authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes. Introduced in House IH Short Titles as Introduced SMA Treatment Acceleration Act of 2009 Introduced in House 2009-04-28T04:00:00Z https://www.govinfo.gov/content/pkg/BILLS-111hr2149ih/xml/BILLS-111hr2149ih.xml 2009-04-29 Referred to the Subcommittee on Health. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.